Hello my name is Donna and im 43 for give me if my spelling is very good as the ra is kicking me in the a......I was diagnosed with ra 5 years ago, and was one of the 10% that has that strange get a paint for 2 days and goes like it came no swelling or anything, i considered myself blessed, well the past 3 days have been the toughest and i cried alot, went to the er twice cant get my doctor to call me back or see a doctor till tues, my rate wat aalways high and was always told by my ra doctor that i would get hit hard, well i had the norm feeling like i broke an angle, the next day it went away by the time i woke up, them whammo, for the first time ever, pain in feet, to stand walk, stiffness my left finger, my right knee and wrist, the pain got worse as the night went on, i went to the er when i got fever, and bad cramps, he told me i had a virus, go home and rest and didnt think ra as there was no swelling, the next day, bammo, plenty of swelling in my right foot and and the pain the same, it hit me this is ra? Im sure I am not alone and you all have been there, the fear, anxiety and worry, i have cried on and off for days, I just dont know what to do? I havent evewn been able to get my ra doctor on the phone, just to ask him hope to cope with this, do I not walk on my feet when swollen of I take the motrin and it works can I work if it dont hurt? will I hurt myself more? how long will this last, will i wake everyday like this? it always scared me more that he told me that i cannot take any drugs that would lower the severity due to drugs i took as a child with hepc and tb. so now what?...I am terribly sorry for dumping this here buy dont want my family to know my anxiety over this, and i wanted to know i really dont ever want to go take steriods, I really rather try natural things to help me with pain and symtoms, any ideas on the natural remedies that have worked for you or advice? I wish you all the best in advance, whoever read this whether you respond or not, Bless you! and thank you:)
Donna - it seems to run about 50/50 in here - you either connect the first time with a great rheumatologist and everything works out, or you connect with every crackpot rheumatologist that should have their licenses pulled. Welcome aboard and I hope you find in here what you are looking for in terms of support and great advice. Take care ~~ CathyDonna - if you are looking for a non-traditional treatment, I would suggest researching antibiotic protocol or visit the Road Back website. This treatment was accepted by the American College of Rheumatologist about 10 years ago and has parity with the other treatments they have endorsed. Best of luck, no bill, otherwise they would throw me in jail :) CathyThank you Cathy, I so appriciate the warm welcome, I am in much better spirits, and accepting that i even have this, as i was really having a hard time, it was extremely scarey, but now that the bulk of the pain has passed 4 days later, I am now just looking on the web for all sorts of treatments that are not drug derived, which is so important to me. Hopefully i will be ready for any future bouts, and will right down all my questions before seeing the doctor, as well as make clear what i wont take, and search for alternatives. Including docotrs:) What seemed to help me the most was a friend being worried she may have it, as her joints also hurt all at once no swelling but her father has a bad case of it, and after showing her my swelling ect...I told her..if im gonna look like a frankenstein, well Im gonna be a damn pretty one' I polished my toes and my nails just as soon as I could as the pain subsided, and she laughed so hard i seen her worry leave, it made me feel strong again and realize I had a choice, I can cope or I can complain, Well I dont there may be days I dont cope well, and I will be alone till it passes, and when I can I will share it:) Thanks again for your support CAthy, it meant alot to me to see a response:) ...better than my doctor! Send me a bill!
Please stay on this board. There are people that will give you advise. You need a good education. If you have RA bad you need to get a treatment plan of some sort going so you do not get worse. Read around some of the post and keep checking in. And vent here anytime. I am sorry you are swelling. I am sorry all you are dealing with. I am glad you found us. Get an education check out your options. But do not suffer more than you have to. Some people do Antibiotic Protical. People can steer you in the right direction for that. But keep reading and get some answers.Hello All:)...
Thanks again I will definately take advice, althought I was diagnosed 5 years ago with a rf of over 300, it really didnt effect me physically till I First wrote in here:)..You guys helped a million, again my gratitude,
And will look into the site, I went to the regular doc and he said blood sugar levels were high the two nights I went to the hospital, so waiting for the fast blood test, and will hope for the best there as I am just accepting the ra, dont want diabetes, both parents have it, as far as the RA doc seen him today, hes great, I asked the nurse about the No phone calls back and she said she never got, its possible its a shared building, and gave me a card with her name and ext to call:)...so that calmed me down, then the doc, well I made one neg comment like well its all down hill from here' he said Dont say that!...hes all in all very good, I asked all my questions, and he aswered well he told me that plaquinol, think i spelled that wrong but hopefully know what i mean..lol..will be the best option for me as the other drugs he dont feel are safe for me, he told me first i have to go to get an eye exam before i can start it, then also no motrin, as that would higher blood pressure, and shown higher risks of side effects, and want me to take naprosyn for pain relief, I like the fact that he took my backround very well into consideration, as well as my concern on meds, I told him what if' I dont take the plaq, he said hey..its hard to tell....it can come back again quickly or a year from now, the point is to stop damage to everything, thats why he want me to take it, I really hate the idea of taking a med indefinately, but want to best thing for me....and are they any long term users of the plaq, that have feedback on their experiences with use? Well time to hit the hay:) gotta pack my ebay items that I sold, I sold 3 times more than normal the day it hit me. talk about timing:)..lol..but getting caught up. Wishing you all the best day you can possibly have
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