I have have experienced twitching for a long time. The twitching can move from spot to spot but mostly stays in my calf area. After alot of searching and telling my doctors( who really didn't thing much of it) I think I have found a name for it and a whole support site. Its called BFS or Benign Fasciculation Syndrome. I read that a lot of Fibro Patients suffer from this as well. The only way I can explain it is like air is being pushed along your muscle. It was also explained as pop corn popping, or a worm crawling under your skin. My is not painful just darn annoying!! I already take a muscle relaxer for Fibro and my slew of RA meds and I only feel this getting worse. Has anyone else had these symptoms, or am I just really strange when it come to medical problems LOL. This is the site if you care to read . Thanks
http://nextination.com/aboutbfs/forums/viewtopic.php?f=2& ;t=203
Chris,I twitch, but not as much as i did the first year i was sick.
I get times of full swelling that my body twiches. Sometimes my arm will fling itself, legs move left to right, hands switch, fingers move etc. I twiched so much when first sick that i wondered if parkinsons disease was going on.
Still not sure why all the twiching occurs.
I was told I didn't have Fibro.
I have twitching like you describe, but it calms when I am on more prednisone so I'm not sure if it is BFS, but it acts like it. My drs have never answered my questions about what is causing it. They are starting to think I am developing fibro so maybe it is related to that. I take nortriptyline for nerve pain and that works well and I think it has reduced the twitching some. Maybe your dr will let you experiment with some different meds to see what works best. I know it drives me crazy when it gets bad.
Sign me up big time. My twiching started about Sept 05. I had just got off Enbrel ( side effects ) and this began. 24/7 in my calves. Also toes and feet. Actually they can be anywhere but mostly below my knee. The BFS site shows a LOT of people with the calf problem. I hate it. My calves hurt quite a bit when walking.They feel like pulled muscles. Also my stamina for say standing has decresed. No FibroI am so glad that others twitch like i do.mine is almost my entire body- at first I thought I was having a "mini" ceasure. Mine is not painful, usually is really quick, but definately uncontrollable. I too have Fibro.
I think the twitching has gotten worse since the increase of Cymbalta from 30 to 60. I know when I was on prozac in the past it was really bad. I am just so gratful that I am not strange and others have this as well. At least I know I am not alone
P.S. I really think these are muscle Twitches, not nerve
I thought the nerves misfiring was what caused the muscles to
twitch(?)
Laker maybe you are correct...dunno 4 sure. Either way it's sucksI had serve twitching happening as a bad reaction to medication. Myochrisine inj (gold shots) for RA was the medication causing it. Because gold stays in the body for a long time this wild twitching went on for about a year. It made me miserable.
Even now 20 years later I still have episodes of it.
Twitching can be symptomatic of a number of nuerologic diseases like ALS. If the twitching is really bothersome go see a nuerologist
Interesting, thanks. Yes, I have this too. I was concerned that might be linked to the early development of MS. I have RA and Enbrel brought out strong MS symptoms, including twitching and so I am being monitered for that now. I am happy to hear that this can also be linked to something not to serious.Gainsville. I too went South on Enbrel. Got very sick and then the Neuro problems started ( they continue ) Twitching is the worst for me. How are they monitoring you? Have you had MRI or EMG ?