For what it is worth! I want to say to all you parents who have children with JRA. The courage that these kids have is remarkable. I am a 50yr old woman who has wondered"why me" These boys and girls get up everyday and face the same sh.t . Being a parent of three beautiful children who are relativly healthy. I can't imagine the strenth that you pull from. To all of you now adults who have struggeled with JRA . I hope I can pull from you ,the strengh and courage.
a=nut
Awwww *hugs* No biggie....it's what we do...LoLI need to "buck up" and quit being such a whinner.
a=nut
You are not a whiner!!!!
that's my new moto!!!!!!!!!!!!
a=nut
omg you've never heard me whine I take it. LOL!apeanut, I totally agree with you. I couldnt imagine dealing with all this as a child. These JRA'ers are something else (in a good way!)
[QUOTE=apeanut]
For what it is worth! I want to say to all you parents who have children with JRA. The courage that these kids have is remarkable. I am a 50yr old woman who has wondered"why me" These boys and girls get up everyday and face the same sh.t . Being a parent of three beautiful children who are relativly healthy. I can't imagine the strenth that you pull from. To all of you now adults who have struggeled with JRA . I hope I can pull from you ,the strengh and courage.
a=nut
[/QUOTE]
AMEN!
Being a 'normie' mum with a 10 year old who was dxd with JIA at 3 years old, I have to say I am totally in awe of and humbled by my daughter's attitude to life and to her arthritis. I get my own strength from my incredible child.
I've said many times I wish I could have her pain instead of watching her suffer with it. But I know jolly well that I would be a complete whinger about it, totally unlike Becky.
I've taken care of a few of these brave kids. Some of them say things like, "I can't remember not having it so I don't know the difference." I know how much pain I have and can't imagine having a child in pain all the time. There was a thread called "are you an obnoxious patient?" I can only imagine HOW obnoxious I would be if one of my babies would have had JRA!! Hopefully one day there'll be a cure.Bex, There's not much you would'nt do for your kid's. One thing your child has is a parent who care's very deeply about her. Bex like I said earlier I believe That I am a bigger baby now then what I was when I was a kidd. Take care of Becky's mom because she needs you well.
a=nut
Everyone takes pain differently and all pain hurts, from child to adult or man to women or RA to non-ra.
If you have a boo boo and need a little love and care, complain all you want.
My husband gets a bad papercut or some other owie and i treat him like a baby. He then complains that he is acting like a baby when he knows i hurt more, but i tell him that all pain hurts, so everyone can complain about their boo boos which is what will make them feel better.
Wendyr
I think of my daughter every day. My father has RA, crohn's disease is huge in my family as the most popular form of arthritis.
I worry daily that my kid will have it. She already shows some symptoms but nothing as big as i had as a child, so i keep praying that everything will be ok.
I would go all out on a doctor if it was she that was sick. There is nothing i wouldn't make them do to help her. It scares me to have a kid so sick.
When i was growing up, they didn't diagnose this often back then, or they didn't look for it. I was told all sorts of things for my pains from doctors, one being growing pains (that never stopped). So my mom didn't have to feel bad about me being sick. I am happy i didn't know i had it as a child, i would hate to have had to worry all those years about how i would end up.
Thanks anut that is so
very nice of you! I have 2 girls in their teens with JRA (JIA is finally
going to be the term here in the States very soon!) and my girls continually
amaze me with the way they handle this disease. It is very different when
your kids have it vs. you having it. You just know what they are going
thru and want to take away their pain both physical and emotional. It can
be very frustrating for these kids (even the little ones that I know that have
it) because there are times they can't do what their friends do, they fight the
fatigue and don't completely understand why it won't go away, and most of
all...especially for the school age kids...it sets them apart from the other
kids and they are "different" and that is a very hard thing for them
to take. I have seen my girls handle this with their heads held high and
the attitude of RA doesn't have me...I have it.
As a parent to watch your children go thru this it is totally and truly one of
the most heartbreaking things in the world. Especially if it is a
situation like our little family where an adult has it also. I just want
to take the pain away from my girls. I would do anything in this world to
take this disease from them and put it on me. I don't care that it would
be extra physical and emotional pain. Give it to me....not to my
babies!!! I can't even begin to tell you how many nights I have cried
over my girls having this. How I have beat myself up over them having it
(even tho it really is not my fault). How I have cried and screamed in
anguish that it isn't fair. How I have questioned God about how He can
make children sick. How my faith has wavered and gone from having none to
putting this all in God's hands. How I have watched over my sleeping
flaring child in the dark of night with silent tears leaving their trail down
my face. How I wished my tears were the tears of a
How do I do it everyone asks. Well, I answer, one day at a time.
Everyday dawns with a new hope for a cure. Everyday dawns with
researchers discovering new medications to treat this and getting closer to
figuring out the cause of this. Everyday dawns with the knowledge that I can
shuffle and gimp out to my living room and turn on my computer and my simply
wonderful support system of my friends is at my fingertips. Everyday
dawns with my husband fighting this fight just as hard I do right by my
side. Everyday just really dawns with a renewed sense of hope, faith, and
determination. That is how I do this.
Wish I was as eloquent as you, grammaskittles. I found myself nodding away saying yes, yes as I read your post. You put into words everything that chokes me too much to say out loud, I guess.
One day there WILL be a cure - and everyone with this horrid disease deserves to be first in line, so they'd best make up lots of batches of it!!
Love to all, have a good Sunday.
Dee