prednisone ... love ... hate ... | Arthritis Information

Share
 

Prednisone and i have a love hate relationship.  We love each other until january.  I know the timing is random, but it happens in january for some reason.

My menstraul cycle gets to where it doesn't end.  So have to get off pred for about 3 months and start up again.

This will be painful.

I loved being on prednisone, I hadn't felt so good for a very long time, had more energy, swelling and pain in hands went down. I've been off it for a year and although I'm managing without it, I kinda miss it.I know what you mean! D*mn stuff makes me manic as all get out so I hate to take it but I feel much better when I take a boatload of it.You all should take it and have diabetes. Now that is fun....:(I had to take more insulin when I was on it, but it was a small concession for me, when the relief was so great.   Now if it made you diabetic, that would be different. My PC would never prescribe it because he said it would make my diabetes really hard to manage, but an orthopedic surgeon, who is friends with my husband said, "You're already diabetic, you'll know what to do."

I AM sooooooooo happy to be Off of it!!

I know it helped a great deal, but a gain of 40 LBS and the insane cravings, i have enough trouble dealing w/ my weight as it is, so far, i've lost 10 lbs, i don't know how, lol.. but i still have a long way to go.

I haven't gained weight, don't get hungry but i do have a square face instead of a more roundish one and my hair thins and skin dries.

But, luckily my sugar level is perfectly normal on it, but it is low if off it.  For some reason i have a low blood sugar and have to keep candy with me for if the sickness shakes come.  I have had that problem since a little kid.  But on pred it's normal, i hardly have to eat sugar to regulate my body.

My husband said to keep using it until thursday, that's my rhummy appt and my arava gets upped.  So i will do that.

But I love pred.  It has been the only thing my body didn't hate for so long.  it scares me to leave it behind.

I have that love/hate relationship with pred.  Love the stuff because of what it does for the RA.  Hate the stuff since I have a puffy face and I break out like a teenager.  I'm almost 40 years old for goodness sakes!!  Stop that face!!!  No more zits!! LOL! 

I have just recently stopped my pred. The weaning is complete.  The hands, feet, and wrists are once again poofy.  My body wants to know where it's friend the steroid went.  Hmmm...this has possibilities.  The Steroid sounds like a comic book hero. Hmmmm...I think I see a writing project on the very near horizon.....

Bubba...so sorry that you have to go off the pred.  I know exactly how you feel.  I hope that you do not have too much pain from having to be off of it.

Bubba, what other meds are you taking?  I was on Pred. for about 4 years and COULD NOT taper off. 

I decided that I had to taper off when I was diagnosed in October with steroid induced bilateral cataracts.  Also, my glucose was all over the page, up, down, up, down, just wouldn't stabilize.  I'm not diabetic but I think I was headed in that direction.  I've finally tapered off and to do that I increased my pain meds and then tapered.  Once I got to 5mg. of Pred. per day Humira and MXT kicked in and I'm in clinical remission.  This is the first time I've been in remission in 10 years! 

I've been on and off Pred. and the last 4 years have been on it without a break.  I don't have a love/hate relationship with Pred.  I just hate it.  I gained 40 lbs., became depressed, developed cataracts, slept in 2 hour increments, and believed that I'd never be well.  Once I decided that I had to taper, and then started to taper, life improved and now I feel better than I have in 10 years.

I have to stay on 5.5 mg. of Pred. because my adrenals aren't doing their job.  They became lazy while on the Pred. and won't start back up.  I'll deal with 5.5mg but I can't deal with 35mg. of Pred.  It almost destroyed me while saving me.  I think I'll only take it again in short bursts if possible.  Lindy


Copyright ArthritisInsight.com