Is This Statement True? | Arthritis Information
A friend who was being treated for lupus many years ago was told by her doctor that if you have one autoimmune disease, you have three. I don't think I have three. Heck, they can't even figure out which one I have! It may be that this thinking no longer applies but I'd like to know your thoughts on this and if your doctor has said anything similar. Hmmm I never heard that. i do know that if you have one, you are more likely to get another. But my RD said that doesn't mean that you WILL get another, just that the odds are more in favor of that than for the general public.I guess I got the 3 maybe now I can quit??
RA, Sjogrens, cardiomyopathy..
I got more then 3 could somebody tell my body to stop coming up with more PLEASE!!!!
[QUOTE=meme]I got more then 3 could somebody tell my body to stop coming up with more PLEASE!!!!The ONLY thing I've ever read that even remotely relates to what that Dr said...
Was that they had discovered the main ...gene? I think? that "holds" AI diseases, had the ability to hold 3. And yes, if you have one, you're prone to more.
However, that was a while ago and I think they've done a lot more discovering as far as "were" AI diseases "live"
Did that make sense????
Yes, it did.
You know, a lot of things I've read say we're almost all of us resistant to certain hormones. Like insulin (glucose) estrogen, adrenal etc. I think, but can't prove (yet) that we almost always start in the thyroid, the adrenals or the pancreas. Something called the HPA axis. Then we kind of move on from there as the disease progresses.
I thought I was 'just' Palindromic RA - but - there was a point that my thyroid function was low and my PCP refused to send me to an endocrine. There are apparently 4 tests that show...something...and if she's have run that 4th test (after the knock down for the 2nd and 3rd) she would have found it. Last October my thyroid sort of bottomed out and nobody caught it before then - not my rheumy, not my PCP and not my AP doc yet the info was there in my chart if anybody (me???) would have thought to look for it.
I'm beginning to think that if we could stop the progression when the orignal system is 'attacked' we might not go on to develop any more of these diseases.
Or, I'm wrong. :-)
Pip
You are right. It started with the thyroid for me - confirmed by biopsy Hashimoto's thyroiditis - a localized autoimmune disease, as opposed to the 100+ forms of RA and other autoimmune diseases named so far, which are systemic. I think our HPA overloads trying to fight off the disease, then it spreads. But thats JMHO. And I have multiple autoimmune diseases, a different multiple diagnosis from each rheumatologist I see!
Pip...you should go into library science. You could do research to your little hearts content and get paid well for itYou know who Pippy reminds me of???
The mother on this move I saw once.....It was probably a made for TV. They told her her son was autistic, then they said he had some other disorder....they bounced him around and around, till finally he was just lying in a bed, not doing ANYTHING.
She and her hubby did TONS of research all on their own, and yes CURED HIM. He was up and walking and talking in a couple of years. And it all came down to what he ate, and how his body was processing things. (I think)
I remember one part, where they figure out what's wrong with him, and the father draws a picture of a water tap on the white board, and explains that certain triggers stop the tap from flowing, so if you take them away, it opens back up and the boy can function again.
It was a GREAT movie, and yes, based on real life!!
I wish I could remember what it was called. It was YEARS ago...
Yeah ! Kinda like Lorenzo's Oil. Very good movie!Was that the name of it?!?! Or is that another one very similar?? This is gonna bother me all day now...
Good call katie. I can SO see Pip in a role like thatSon-Rise : A Miracle of Love
Shew. That would have bothered me ALL DAY. >.< And it was all about autism. It's been a long time since I've seen it.
arriscolwell2008-02-03 14:57:32OK, I saw the RD today and I'm ashamed to admit I didn't ask him this question like I planned. Even though I have a list I always seem to get a little intimidated and end up only asking questions until I think my alloted time is up. Don't yell at me, I know it's dumb. I'll put it on my list for next month when I see him again. But I'm thinking that since this doctor made that statement many years ago, new research has nixed that idea. I never heard or read that anywhere else. I started with Urticaria (pressure and cold), then thyroid (had surgery to have half of it removed) and now RA. I DONT want anymore either.I heard you can "collect" AI diseases. As far as I know, I only have RA. (knock on wood)
I wonder if there is some sort of link between those that have multiple autoimmune ds and those who only have one. Does genetics have a role maybe? It is just weird how some people seem to have 3 or more and others of us just one...or why some people are so severe and uncontrolled and others are able to get results with medications relatively easily.
The movie you are thinking of was Lorenzo's Oil. It was a true story and his whole problem was based on a break in an enzyme link
Copyright ArthritisInsight.com