Well my appt. is 10:30 this morning.I am so nervous.I think mainly because I do feel so bad(well better now since on pred.)It has been a really hard 3 months physically and mentally.I just hope I don't get in there and start crying.I am afraid I will hear there is nothing wrong with me,atleast that she can find.
I will post as soon as I get back.
Sheila 1366,Reheumy . said she told me this 3 years ago,I forgot it had even been three years since I last saw her.
But anyway, she took a look at the blood work my gp did in July and said no RA or inflamation,stop predisone cause it will make anyone feel good even if they don't have arthrtis,gave me a list of vitamins to take,a perscription for lidocain pain patches,and wants me to have blood work in 3 weeks and back in her office in Dec. So there we have it friends. Atleast I can relate to fms.My 19 yr. old has it and I have read a ton of stuff on it,most sounded very famailiar to me whe I was reading it.But I still wonder. Can I still hang out with you guys?I still wonder about the RA possibly being something to be concerned about but for now I will focus on taking my vitamins and getting back in the gym.And since I am off the predisone I will probably be back here whining and crying about how bad I feel.
Back to popping motrin.Watch out stomach,here it comes. Sheila I was dx's in the early eighties with FMS but my present rd says I have rd. The treatments for ra have helped me a lot more than anything they ever gave me for fms. There is also a new treatment for FMS some drs are trying that seems more effective than anything else ever has been. It's provigil. I take it and it helps tremendously. But then of course I overdo it and croak like I am today. Symbalta is also something new for FMS that seems to work. Some day I think they'll decide that they are both aoutimmune diseases that cause bad quality of life issues. The trouble with FMS is that there is no blood test or anything that explains why you feel so lousy all the time so psychologically it's harder to accept. The thing you have to do is find what's going to make you feel better. I've been searching for 23 years. The burning pain and fatigue are the killers for me. Hang in there I really do think researchers are making progress in treating this. In the meantime if you still feel lousy after doing what the rd tells you maybe you could ask to try one of the other drugs. Stay strong. Hey Everybody. Just checking in with my friends to see how everyone is today. I a m reading alot of stuff on fms.Boy, they say get rid of caffine,artificle sweetner,soft drinks,take tons of vitamins,exercise,RELAX(what the heck is that
Well, I did drink one cup of coffee this morning with artifical sugar.But to make up for it I am drinking a big 64oz. jug of water.I will be in the bathrooom all day. I need to get rid of this fluid retention anyway from the predisone.
Sheila
Good question cuz I dunno either ...
FMS is fybromyalgia syndrome.
SheilaRA, FMS, whatever... I just hope your meds help the pain! And I sure hope you stay!!!
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