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Listen,

 
You have to start telling the truth and the trueth about AP Therapy. I had conversation with Dr. Richardson, One of the Senior Fellows of Rheumatology at the University of Michigan Hospital in Ann Arbor Michigan. He told me that he "loves minocin" . He told me that he prescribes it to all of his minor arthritis patients. He says that it is effective in 90% of all "minor" rheumatoid arthritis patients. He says that it is equal to the effects of plaquinal only he considers minocin safer than plaquinql. Dr. Richardson told me that when it comes to moderate and severe RA, there is no comparison to the benifits of the dmards and biologics compared to AP therapy. I asked him about the corruption of Doctors and Pharms and government and everyone on the take and he told me "absolutely no". You know what, I believe him. I actually put my life and well being in his hands and profession. I have come form not caring whether I live or not live, from every movement caused pain to I look forward to doing something more and the more I do the better I feel. Maybe the drugs that I take will kill me but oh well, I have  had a couple of enjoyable RA years thanks to Dr. Richardson and my other professionals, and I do mean enjoyable. If I can say one thing that yous take to heart is, "enjoy what the drugs have given us." Cool isn't it? Gosh, I used to be in such pain. I was bent over, I was crippled. If I die from the drugs and treatments that they prescribed, I still say to them, "Thank you, thank you all very much." To everybodty within reason, your doctors really do care about your well being. They are not being paid off. Next time you talk to your doctor, ask them if they really care for you, it's that simple, you will know if they lie to you, we've all had kids, right? Seriously, I have nbo problem with anyone taking anything for their sicknesses, if you want to try horse urine, try it and good luck. If AP therapy was the cure, I promise you, I would tell you. If in the future, AP is found to be effective, I promise you, it's not a war, I will tell you so. Trust your Doctor, or see the witch doctor, either /or.
 
LEV
 
 
Of course the sheep believe the shepherd. It's what they do. Hummm.... I am suppose to be on Minocin, my RD put me on it without me even mentioning it to her. I asked why she was RXing it to me, she said because it will help decrease my swelling.
 
I took it for about a week and it made me lightheaded and dizzy. So... I stopped taking it because of my right hip and my balance issues from my right hip. I did not want to fall or anything so that is why I stopped taking it.
 
My right hip seems to be getting better and my swelling is down, but not completely gone. So... I am not sure if I will be trying the Minocin. I will ask my RD about it when I go to see her the 25th.
 
I can say... that Imuran does cut the swelling way better than 10mg of prednisone does.
Arriscolwell,
 
What do you mean?
 
LEV
You, my friend, are the sheep. Katie, you crack me up Janie.

Then who or whom or whos or whoms is the shepard? Do you know the shepard Arriscolwell? Does the shepard have a name? Do you think you should clean your soul? Do you have a soul? If I were to tell you that your soul is dead, will you believe me? Do you believe that good will triumph? If it does then "adios" ? Then adios, arriscolwell. Right? Right? Adios me arriscolwell>

Joonie,

Too scrambled to comprehend. You should be in remission by now, what's going on?

LEV

Your "wonderful" doctor is the shepherd. Gee, you're not very smart, are you?

Joonie, I understood your entire post. :)


Who are YOU to judge my soul? I'd be very careful with comments like that Lev.
Arriscolwell,
 
Yeah, yer right, I'm wrong.
Has nothing to do with smart, it has to do with listening to who we should be listenig to, and it sure ain't Oprah, listen Arriscolwell, turn off everything, listen. You will be very surprised. Hate me, like I care. Boo-hoo-hoo, Arriscolwell doesn't like me. I used to think that rheumatoid arthritis hurts but hey, there is no comparison to the pain I feel from the knowledge that Arriscolwell doesn't like me. Oh woe is me. Of course, I'm just kidding, not.
LEV
I was told that my RA was severe and aggressive.  It also seemed to attack me overnight.  My inflammation numbers were extremely high.  It took TWO years for the minocin to put me into remission (no pain) with a lot of ups and downs.  I'm only sharing what worked for me.  Three rheumys told me that I would be in a wheelchair, totally disabled within a year without their protocol.  The MTX had me throwing up every day, unable to get out of bed and sicker than I had ever been in my life.  It was my choice to find an AP doctor and my choice in treatment.
 
Now, living in South Korea, I am being told that yoga will cure my RA to where I am drugfree.  So guess what, I started today, 5 times a week.  I'm willing to see if I can wean off the minocin. 
 
That's my story and I'm sticking to it.
 
Becky in Suwon, South Korea
Beckey,
 
Good for you. What works for you works for you. I know for a fact that most APers constantly herx. Not me on my enbrel. Tada, no pain pills. I don't herx. It is not even in the enbrel vocabulary. If I eat fried food fried in polyunsaturates then I herx.  Good for you Becky, Good for me too on enbrel, right? Hello, anyone home? Lights are on.
 
LEV
Yobosayo???????????????????????????????????????Kamsamnida!Actually Lev, "an nyeong ha se yo" is how you greet someone  in Korean. "Yeo bo se yo" is hello but only used for the telephone. Only been here 7 months so I'm still learning.
 
Just thought I would give you a heads up.
 
Becky in Suwon, South Korea
[QUOTE=levlarry]
Joonie,

Too scrambled to comprehend. You should be in remission by now, what's going on?

LEV

[/QUOTE]
 
 
Lev,
 
I hate to burst your bubble, but I do not think I will ever go into remission again. And if it does happen while being on meds, I still will have all the damage that has been done over  26 years of having this disease. I will still have pain and problems from the damage that has already been done. So, if you look at it from my point of view and have been in remissions before, there is still pain and meds involved on a daily basis. Mangable pain? Sure... but I want to experience a day without any pain at all. Will I ever get that option? Sure, when I die and get to enter the pearly white gates.
 
Me, myself... I hope there is a cure for this disease, but I will not truly benefit from it in the way that everyone else will, because I was BORN with it and the damage has already been done. I am all for if it can keep me from getting more damage... sure count me in.
 
 
joonie2008-02-11 02:03:28Lev,
 
Why are you trying to start a fight?
 
Let me pose a question to you.  Think very seriously about it and answer honestly.  If every DMARD failed you and you were in extreme pain, would you try AP?
Okay I am finally going to go out on a limb here.  Laugh if you must.  But being new to all this all these shortcuts like APers and herx.  I have no clue what a lot of these initials are for.  I feel real dumb about now.  LOL

Why does believing his dr make lev a sheep?  I believe my dr and I promise you I am neither a blind idioit nor a farm animal.  Don't you believe anyone?

Good question....Dear Crazy Man -
 
I disagree, I am willing to bet you 0 cash money that Dr. Richardson will be on the over 0 in Pharma payouts when Michigan goes to Pharma disclosure.  I'm tired of posting JAMA studies on how even small gifts influence doctor prescriptions.
 
I've seen 3 rheumies at the Great U.  You remember them?  The wonderful doc that told Michelle she was just 'fat and depressed' and MISSED a diagnosis.  My SIL talked to my rheumy (not knowing he was mine) and he told her 'nobody at the U uses AP'.  I had trouble getting AP out of him - and he has a PATIENT - ME - on it and doing wonderfully - yet he tells my SIL that?  Hmmmm.  Maybe my rheumy forgot to go to staff meetings?
 
While I'm glad something is working for you, you insist on saying we are not telling the truth.  EVERYBODY NOTICE HE STARTED THIS THREAD AFTER JSNM positive AP post?  Hmmmm.  Why do you do that Lev.
 
Sorry, Katie, the sheep is Lev.
 
Pip
P.S.  Joonie - Minocin has dizziness as a common side effect when starting.  It goes away, usually within 3 months.  if you start up, you will still probably be dizzy.  Keep working at it.   You deserve a pain free life.

So we should have figured this out before - living in Michigan is bad for your health!

shykymom, here's a previous thread about abbreviations that may help you:
http://www.arthritisinsight.com/forum/forum_posts.asp?TID=10784&KW=abbreviations
 
I believe:
AP = antibiotic protocol and AP's= people on that protocol
herx = short for Herxheimer reaction, basically toxins released into the body when bacteria die due to antibiotic treatment
 
If I've gotten those wrong, I hope someone will correct.
Nope, got it perfect.  Sorry ShyKyMom, didn't mean to skip your question.
 
Becky - be careful on stopping.  If you didn't get all of them, then it's coming back worse than ever.  From posts on the RB - it's usually 18 to 24 months after stopping AP.  I too, want to go abx free (get my 'cure') but am not willing to try until I'm sure I've fixed everything that got me into this in the first place.  Yoga is great for you and should help with the stress aspect.
 
Hugs,
 
Pip
Edited to change 'bad' to 'back'.
Pip!2008-02-11 09:20:39Hill, have you noticed how many posters from MI.  I think you're closer to the truth than you know.
 
:-)
 
Pip
I am from MI pipand my rd is willing to try any treatment a patient wants to try,  he knows that not everyone can do the same meds and that some want alternative ways to control pain and swelling so that they can feel better and be able to continue with their lives.   He feels a patient needs to be listen to, if a patient brings in an article on a different procedure to treat their ra, pa, etc he is willing to try it.   I know there are drs out there that are more then likely to prescribe what the med companies are promoting but please do not put all the MI rds in the same basket, we have alot here that do care about their patients' well being and do not play with the med companies.  memeMeme,

Amen to that. I've always been very healthy, happy and sucessful...all the time while living in Michigan.

Hmmmmmmmmm...maybe attitude is everything

Another "high risk" factor for developing RA I have noticed on this board is having the name "Linda, Lynn, or Lindy". 

Hillhoney LOL!  Any "L" name - I still get them all confused!!!!Hi Hill, Pretty funny and makes as much sense as anything else.  This thread shows there are many possiblities and few answers.  It's RA at it's most confusing.  LindyActually - my joke (failed at that, alas) was that health in general isn't good in MI.  Remember the killing grounds and Dow? 
 
Sorry, Meme and Lynn, I was speaking from experience about the Great U.  I've joked before that the fog of academia seems to create some sort of shield and they can't see beyond the 'hive mind'.
 
Yes, I think attitude is everything.  I did the research and knew what I wanted to do.  Hubby backed me up because I made him read everything I found and he saw what his aunt went through so...he wanted to see if this could work.
 
I've posted before...10 docs in the A2 area told me 'it wouldn't work.'  3 were rheumies.  One was an infectious disease doc!  Sheesh!  9 were willing to prescribe...but NONE were willing to MONITOR me.  Only one doc refused to prescribe. 
 
Since I am a medical error magnet...I WANTED TO BE MONITORED.  My rheumy at the Great U did nothing but dispense the Mino.  He did not run blood tests to see what was going on in my body.  He NEVER mentioned probiotics.  So...when AP failed...it wouldn't have been him...it would have been the med.  Meanwhile, I had high LFT's PRIOR to starting AP...so...in theory...I could have had liver failure (except my AP doc put me on milk thistle) under him.
 
If you've got a good doctor willing to work with you, more power to you.  But, in trying to go 'outside the box' my hubby and I ran into brick wall after brick wall. 
 
My hubby was the one to give the final say - get out of dodge, we need to go to Cali.
 
Pip
Hill...what about me? Linda from MICHIGAN!!   I never stood a chancethe fence.....[QUOTE=Linncn]

Why does believing his dr make lev a sheep?  I believe my dr and I promise you I am neither a blind idioit nor a farm animal.  Don't you believe anyone?

[/QUOTE]  Because Arriscolwell says so thats why. She sounds very bitter and eager to start a fight. I believe my Dr  too and he has helped me. Arriscolwell, If yours sucks too bad/ Get another

Maybe not?  You can start our experiment!

Pip
Holy crap!! My middle name is Lynn, too!!!!!!ROFLMAO
Too bad we can't take a poll on here.
# of Lynns
# of Michigan folks
# of redheads
# of Mexicans and Indians
 
LOL 
Thanks guys, I needed this!!
Uh oh.........have I cursed my daughter?  Her middle name is Lynn (from Mi no less).  I think I'll just keep this little discovery to myself.I feel so left out!  But my middle name starts with L, so is that close enough?I think the number of Linda's, Lynn's......is due to the age group.  Linda was a popular name in the 50's, I think the most popular girls name.   Most or many of the women here are in their 50's so it makes sense that their would be an abundance of Linda's (and variations of the name).Ok, we need to add age to the poll!
 
I have no L's - but I'm still here.  :-)
 
Pip
What a minute now my name doesn't start with an L nor does my middle name and I am next door to the Dow killing fields besides having their toxic train through my town at least 3 times a week and I am still here.  OmG I hate the name of the baseball team that is sponsered by Dow and located in Midland.  The Loons  I wanted them called them Dioxin Advangers.  hehehee lolol  Remember don't come fishing near me the fish have at least 3 eyes and the chemicals in their body could cause a national disaster.  One of the big jokes around here is if the deer are glowing you are near a Dow plant.  lolololol  meme
Ps I am 50 andRachel's initials are ra  OMG hehehehehehOh, you have to be kidding me!  The Loons?
 
Did you ever see that old documentary about Dow?  It was horrifying.  Get this, I went to college with the daughter of the man that defended them. 
 
Hugs,
 
Pip
I lived in Midland Mi for the longest time, right next to Dow and my step dad is retired from there and yep, has ra, as does my mom, Lynda!  I now live downstate and have no names that begin with L, however, I am a redhead but than again they tell me I have a super nasty systemic case of sarcoidosis and not ra after all! You only get one point on the poll.
 
;-)
Oh wow...well, my middle name starts with an L, and my mother wanted to name me Lynn, but my dad said no...I have been a redhead a few times...and I lived in Chicago, is that close enough??  Oh, and I am 36, so I don't think the age thiing falls into the name part.
 
LOL...thanks, I needed this laugh today
My name is Linda, not redhead but I am 50% Irish, early 40's, live in Michigan, don't live near the Dow plant but their bubbles have scrubbed my tub.I feel so left out, I have no L's in my name at all, I live in the south and I clean by tub with Lysol...Oh, hey wait! Lysol, does that get me a point??? Oh and I'm 46, does that count for anything??Interesting, my middle name is Lynn too.
 
Pip: Not planning on stopping minocin, maybe ever. I feel too darn good.  Although, today after my first yoga lesson, my muscles will tell you different.  I am so sore.  We'll see how today's class goes.  These Koreans sure are limber.
 
Becky in South Korea
Good to know Becky - not that you shouldn't attempt it...just that you should be prepared.  And apparently limber.  :-)
 
Reader -  I think you get a 1/4 point for the Lysol.  :-)
 
Pip
Whoa!  What's being a redhead got to do with it? 

That's what I'd like to know. That is all I've got in common with you all...except my red comes from a bottle. Does that still count? Otherwise, I'm out!!

25% irish
Not red-haired (except for a few years when I was Clairol dark auburn)
No redheads in the family
Not named Linda (but had a grandmother named Lorraine the Pain)
Been to Michigan twice and I live near Lake Michigan
I clean my tub with Cascade and bleach (don't know if Dow makes either of them)
I'm 39
Jeeesh, now I know why I have the triple threat of RA/PA/OA
 
Lindy's my first name, my middle starts with an L
My best friend lives in Michigan
Diagnosed at age 53
I lived close to a chemical plant
I use lavendar oil mixture to clean
I'm a lost cause, my points are sooooooo high, no wonder remission has been so reclusive.
 
Uh oh
My name is Lori Lynn
I've been to Lake Superior (which borders Michigan...close enough right?)
 
 

And you people question why I left MI? 

See!  See!  It's some sort of AI vortex!
 
Pip

Wow.  Imagine the travel brochures.....After visiting the nation's "most dangerous city" make sure you stop by Michigan's own AI Vortex.  We offer an extensive list of auto immune diseases, take one home today!  And if your name is Linda, you won't even have to go to the Dow plant to get one!

 
Linncn2008-02-11 20:10:00

ROFl

Oh sign me up!  Can I come over there right now in the dead of winter?  Northern Illinois isn't miserable enough.  I'm sure I have room for another AI disease or two... and a night of dodging bullets and corruption in Detroit would be such a breath of fresh air.  The crime and cronyism around here is getting rather old. Jaz, come on, it's 9 degress here so wear a hat!!  I'll even drive you by the Manoogian mansion so you can see where the "Hop Hop Mayor"resides!OMG I'm there!  WOOHOO!!!!
Oh and it's 7 degrees F here.   HA! I had such hopes for Kwame. 
 
He has no L's in his name.
 
Pip
Nope.  No L's. I wonder if we'd have his problems if we were all K's?
 
Jaz, ok, leave the hat at home
It was 68 here today.  Who want to visit?
 
And as a bonus...you'll be 2500 miles from the toxic AI vortex.
 
Pip

ok.  I'll come.

LOL...Yeah, nuts we have all become.  :)  I'll join the line to the loony bin!!
 
Hey Pip...I'm packing my bags and heading down for some warmth and sun!!  Oh, how I wish that were true...but, I am hoping to head down there soon!!!  Maybe spring break??
My middle name is  (Lynden ) does that count...Told you girl, just let me know!  And if Disneyland is involved...
 
Pip
It's an L - you're in!
 
Pip
OH NO!!! LOL
My maiden name was Shepard.
Middle Name is Lee, Lee is our family's name mom's middle name, had an Uncle Lee Jay, daughter's middle name is L, grandpa Leroy.
I live in IL close to a chemical plant
I have lots of red tint in hair, son has red hair, as does hubby, grandma, sis, runs all over both sides of family.
AND
I am part Cherokee indian.

I'm so screwed!Yep, looks like it.
 
We'll ohm in your generral direction.
 
Pip
Well, my name is Lori Lee....guess i'm in this tooFirst fizziology...now the 6 degrees' of Michigan (The L Connection).
 
Oslo, anybody?
 
Pip

I AM "L" isa .......................I have never been to Mi but red hair does run in the family.

OH LEV......Enbrel doesnt mean the end of pain pills. Mine have increased since i been on the enbrel.
Okay,
kweenb, I would give good thought to any possible cure. I have considered minocin, seriously considered it. If nothing else worked I would consider even the least of them. It's not a war, I just want the facts, not a bunch of non professional opinions and statements without merit. Good for everyone that is helped by every means with this dangerous disease. I don't want post of accusations against the medical profession and federal agencies. You don't want some one saying well someone on your street is a thief and so therefore your whole street is full of thieves including you, would you? Are you the type of person to try to mislead people with your opinion rather than truth and fact? Of course not. kweenb, it's not a conspiracy, minocin is not very effective for those with moderate to severe RA, that's just fact. If the facts were that they did work for my disease, I would cautiously try it.
 
pin cusion, I didn't mean the pain medicine statement to be taken so broadly. I know that there are those with such damage that pain is constant and not controlled by medicines. But, if you are having joint pain because of active RA and not damage and you have been on enbrel for a time long enough to be sure that it has reached it's max performance for you then it is time to talk with you health care professionals about changing medicines. As you know, each biologic only works on so many people and not on others and somewhere in between with still others.
 
Oh yeah, I live in Michigan and what a great state it is. I think that in the ethnic study concerning RA they study found that irish, scottish and that area of the world, that lineage has a high rate of RA and of course Michigan was a settling ground for those immigrants. Listen, you have to wear thermals under your clothes in the winter in Michigan, they feel so good, not like the old scratchy woolen ones. The best part about Michigan winters are the Michigan springs summers and falls.
 
LEV
 
 
I'm not part of the MI AI vortex. (Grew up in TX.) BUT I am of Mexican/Indian decent.
 
Hey, LEV! I'm one of those folks who fall into the "Enbrel isn't working anymore" category. My next visit is at the end of this month and I'm going to discuss options with my RD. I try not to take the pain killers (hate the constipation! Ugh!) but I'm noticing that I have to on some days. I don't know for sure that I have any damage... as far as xrays and MRIs go. I can, however, see that my fingers are starting to turn in. Ucky. I mentioned it to my RD at my last visit and she kinda shrugged it off. I dunno...  *sigh*
 
I hope you're having a great day!!! *hugs*
I have had the same RD for almost 11 years and his best interests are keeping me as pain free as possible and to keep the damage down.   My husband and I just love him because he really cares about what we have to say.  We do as much research before we  go into his office with requests and even suggestions on what to do next , if I have a flare up.   He really listens, to the point that he often takes my advice on what to do next. 
 
I have been on Enbrel for 6 years with arava ( some times I take predizone ) 6 months ago we decided to go for the Humira w/ mtx 2 months later . The mtx made me so sick that I asked to go back on Arava and now I am back on track to doing great.
 
I guess my whole point is that if your RD won't listen to what you have to say then find a new and good one that will.   For a brief moment, I had the misfortune to have to use another RD due to an insurance change....What an 'eye-opener' that was!  I realized that there are 'production-line' Dr.s and 'Good Ones'....We were soon back with the 'Good One'.
 
Also do some home work so you know where you want to be with medications or even take certain medications...The more you can tell your RD, the better he can work with you. 
It's your life , take control !
MrsA,
 
You know, I really never had a Doctor until I got hit with this deadly disease, just didn't believe in them. But, all of the Doctors and healthcare professionals that I deal with are so nice and understanding. It would really upset me if even one of them just shrugged if I mentioned curling fingers. I will say tho, I did have sme trouble with my Rheumy because he was always so short but, after following his advise, I am a new person, I guess I wanted to be extra special, in short you may want to doctor shop. Oh, I am planning on changing to rituxin next month, Dr. Richardson and Dr. Susan seem to believe that I can get completely off the mtx and prednisone, looking forward to it. My Doctors are like Maime's, they want me to be the best possible, I am very fortunate, very fortunate.................................LEV
 
Good for you. What works for you works for you. I know for a fact that most APers constantly herx. Not me on my enbrel. Tada, no pain pills. I don't herx. It is not even in the enbrel vocabulary. If I eat fried food fried in polyunsaturates then I herx.  Good for you Becky, Good for me too on enbrel, right? Hello, anyone home? Lights are on.
 
LEV
 
Lev- you say you didnt mean it to be taken so broadly but reading the above statement you wrote  you make it sound like enbrel is the only drug that works without needing anything else and that AP is a load of rubbish. It doesnt matter what we take, we all come on here because we hurt and have bad times. Each to their own and all that. My lights are on and I have a brilliant doctor ( you actually posted a piece about Dr Bamji on here) but I still need pain pills.

Pin Cushion,

When I said to Becky "good for you" I sincerely meant, good for her and I'm happy for her. Even the filthies and the nasties on this board bring me no happiness in listening to their pain. I have always been one to advocate any medicine but I'm also an advocate for truth in medicine. I speak alot about enbrel because I take enbrel and so I am very informed about enbrel. It may sound like I am pushing it but I'm not, it is the one I use and so that's where the most of my knowledge comes from. I know that enbrel does not work for all. I am very happy that there are so many new and different drugs giving more chances for relief to so many more sufferers. I know also that if I try to have a good thread response to you, you would try to turn my post into something bad, shame on you. You still got the same "one of the group" mentallity. None-the-less Pin-cushion, even if the author of the RA Bible were your Doctor, if the enbrel coctail has not taken away your pain then it is time to question the coctail and consider a change, pain is bad. There are other medicines that may work better and take away the pain and so keep the erosion and joint damage at bay, but hey, do what you want, and probably the first thing you will do is to spin this into something bad. You may want to clean your soul, I've heard that it's good for pain relief.

LEV

Its not my soul thats bad Lev. its my body!!!  My soul is just fine, I have nothing to search my soul for, I am happy with who I am and dont need to change that, My family are happy with who I am and my friends are happy with who I am so definetley no problem there.
Why shame on me? I havent tried to turn anything around to make you look  bad, I just question what you say, we cant all be in agreement with everything , its just difference of the opinion that you dont like.
Okay Pin-cushion,
 
I posted to you concerning the broadness of pain and you re-post something that I posted to Beckey and you tried to spin it into something bad when it wasn't bad. I didn't say search your soul, I said clean your soul, or don't, I don't care but if you do I will know that you did from the change in your postings. Why shame on you? Because you took a good response from me and tried to spin it into something bad because you didn't want your friends to think that you were actually civil to LEV, they'd probably kick you out of the "club". When you cleanse your soul, you will leave the "club". You might want to question your friends and relatives to see if they really like you just the way you are, just try it, watch their eyes when they answer. Just a suggestion.
 
When in the Becky post and I said "tada" it wasn't meant to be "in your face" it was meant like "hooray" or "thankyou" not in a mean way to Becky. When I said Good for you to Becky, I truly meant, good for her, tada for her. Hooray for her. I really don't beat around the bush or camouflage my meanings. Hooray for her and me and everyone that has found relief from this dreadful disease no matter what course or path they may have taken. I honestly hope that in the very near future you too can say "tada".
 
LEV
Lev,
 
You really need to have one of your doctors give you something for your 'personality disorder'.  You are a really sad man with no hope and you take it out on the people that do.
 
Pin -
 
There's a club?  Can I join?
 
Bizzy -
 
You go girl!  This is our resident board drama queen.  Sorry. 
 
Hugs,
 
Pip

PIP- Maybe we'll get membership forms

Lev- I am now convinced you are 100% jealous of the others closeness on the board. Its all you go on about. I posted a geniune question to you and now I am part of some sordid club.....huh?????
EVERYONE ELSE ON HERE THIS IS FOR YOU...If i agree with what Lev says then I would say so and be civil to him ( he seems to think I wouldnt agree to this in front of you) but as he cant be civil to anyone I am off this post and only reply to people who have genuine questions. Why waste my energy.
[QUOTE=levlarry]Clean your soul, what's so hard about it? Quit cryin'.[/QUOTE]

HI guys, if you check out my post on "feeling like poop', you will see that I was posting a genuine post, not hurting anyone and this is the reply I got from your friend and mine Levlarry.  Don't know what I did to deserve it but I think you are definitely right , he needs help, major help, talk about showing us all he is frustrated and unhappy with his lot, I think he he is living in La la land.  Regards Janie.
Janie, I don't thik your's was the one Lev was talking about.  Their was part of another thread where some were talking about "poop".Thanks Linc, I still wanted to post about it as I really didn't deserve that response and when people are sick and vulnerable, I don't think this is the kind of "support" one expects from a support group. Cheers anyway, Janie.  That's what I mean Janie, that that response wasn't to you.  Unless their's something  I missed, I thought that response was directed at the people in the other thread.HI Linc, thanks again, unless I am misunderstanding it though I am sure he is aiming it at me. Regardless that is no way to support anybody.  Cheers Linc.
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