Rheumatoid Arthritis and Restless leg syndrome. | Arthritis Information

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I don't know how many of you wonderful people have RA, Restless Leg Syndrome, fibro, and to top it all of I have a mild form of bi-poler.  Needless to say I am on a great many drugs.  So for Humira, enbrel, remicade, and now I am on Orencia.  My rummy has said that one more shot of Orencia and we are going to have to move on.  I have all of these pop up since giving birth to my angel girl three years ago.  I have had no kind of relief, except of course when I am on predinose, narco, and fentynel 100 mcg.  I don't understand flares I am in one everyday.  My husband has to help me get out of bed and my mom is here almost everyday and my 21 year old son has also been a great benefit to me.  Last week my restless leg syndrome started acted up around  wesnesday night, I couldn't sleep no mater what I did or what I took.  I am on 2 mg of requip.  Thursday night the same thing.  I would take small cat naps some during the day just to keep my sanity.  Friday night same thing, and sat.  Then came sunday.  I ask my mom to take to the minor emergency clinic and they  gave me .25 myprax and 15 mg of temazepam.  When I got home about 3 in the afternoon I went to bed thinking that i was going to sleep.  I didn't, so I took more and 2 hours later still unable to sleep, my arms, legs neck every muscle in my body had a mind of its own.  By 7 pm I took everything 10 .25 myprax and 10 15mg of temazepam.  I was crying and very upset by then.  I asked my mom to take me to the emergency room.  They thought that I had tried to od.  That wasn't it.  I just wanted to sleep.  I was on 4 nights of no sleeping.  They put me in a crash room, hooked me up to and iv and pumped something in it that made me nuts.  And to beat all I still could not sleep.  The nurse's even saw it an commented to my mom and by this time  my husband was there.  They had never seen anything like this before.  The kept me there all night, still didn't sleep good, every 2 hours they wake you up to change your iv or make sure that you didn't come unhooked from a vitals monitor.  The Doctor that let me go in the morning said I needed to have  my doctor take a very good look at my drugs.  I guess I feel very bad for scaring my family, but I did not try to take my life like the first doctor emplied.  I feel like my body as failed me.  I am in pain everyday, and then to not be able to sleep, I truly thought that I was in Hell. I am still very dizzy and not very steading on my feet.  I guess what I am trying to say please be so careful with your drugs.  You might not be thinking straight and do something like i did. 

 
Sandra
Geez Sandra, so sorry you are having such an awful time of it. I hope you can get some sleep and be comfortable really soon. I always write down what I take and the time so I don't get the meds confused. Maybe you should try something like that. I really hope you can get some relief really soon. Hang in there, girl.
take care
Sorry you're having such a rough time, Sandra.   I hope things start to look up for u soon.
 
I have a questsion about the RLS...did u have this before using the fentanyl patches?  I ask this because I seemed to have symptoms of RLS when using fentanyl patches.  Just curious about your experience.

Kelstev,

I have had restless leg syndrom for along time, before any of the of problems showed their ugly heads.  It is a disease and It is horrible.  Some time I believe that the patches almost help control my legs.

Sandra

ok..thanks.  I guess what I've noticed probably isn't connected. 
 
 
Sweetie -
 
Has anybody looked at your thyroid?  MAKE them run all 4 tests.  As I was getting sick I had RLS coming on all the time.  Now I only notice it as I'm nearing mense.  If my thyroid levels are OK, no RLS.
 
Hugs,
 
Pip
Bless your heart.  I feel so bad for you.
 
I have RLS too.  It is HORRIBLE!!!  I've found that mine is more manageable when I stay on my multivitamin with iron.  They checked and my iron was on the very low end.
 
I tried Requip too, but it actually made my RLS worse.  The best drug I had was Neurontin, but I couldn't tolerate the side effects.  So, now I take Klonopin, but sometimes the RLS is so bad, that doesn't even work.
 
I feel lucky that mine only lasts a few days when it hits.
Oh you poor baby.  I know just how you feel.  I have RLS too which has been helped somewhat by the RA drugs I'm on, but on those days when it comes back it's hell.  Yours sounds much worse and of course you're going nuts if you can't get any sleep.   I hope your doctors figure out what to do.  In the meantime, when you can't sleep, try posting your worries and frustrations here.  It may help you to vent to people who understand what you're going through.  Many of us have been there.  Hugs.

Sorry to hear that you are having such a hard time right now.  Not being able to sleep is the pits. I take Requip for RLS and we have added 100mg of Lyric at bedtime as well, the two together seem to be working fairly well.

reader

Trinity. It looks like you are on the kind of medicine that would keep you from leading a normal life. You are on way too many narcs. Sometimes narcs can cause more pain and can certainly alter your neurological state. You also need to find out if you have primary or secondary restless leg. Have your doctor rule out secondary. You could benefit from a pain clinic. I feel bad for you sound like your quality of life is poor at this point.
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