Where is everybody? | Arthritis Information

It seems as if many have had a hard time to find the way back to this forum after the time it was shut down for service. I myself had to try several times until I managed. Too bad if some want to come back but cannot find their way back!

Ragnar

I've been wondering the same, Ragnar. It took a bit for me to get back in, and for a time it said I wasn't allowed to post replies. Seems to have let me in today, though. I'm in process of going from 2mg to 1.5 mg. It'll take me a couple of weeks of switching between the two before I'm down to 1.5mg. What I hate most about dropping is the feeling of emotional fragility I get. If anybody says anything unpleasant to me I either get bad tempered, or upset, where normally it wouldn't bother me.

Hope everyone else joins us soon.

MargaretYes, it is quiet here! I've been reading the posts, but haven't much to say. I seem to be free of PMR (after 2 years! knock on wood!) but am still tapering off prednisone - I'm at 4.5 mg and reducing by .5 mg every 2 weeks. So far so good! The weather has been wonderful the past few days, and I managed to do at least some horseback riding 4 times last week! Friday I leave for a few days in Southern California, visiting family.

Ruth

Hi everyone

I am like Ruth, I come in to the computer and read everyday but do not post. I figure no news is good news.

My up date is....I am currently tapering from 12.5 mgs to 10 mgs and as of this morning feeling not too bad. I had a few painful days last week and this Sun. and Mon. so hope this good feeling stays.

The weather here has been pretty good although we did have snow again last Fri. The sun reappeared on Sat and has been out ever since. I feel like I have been wasting all this sunshine but hope by golf season I will be up and swinging.

Have a great trip to California Ruth. It seems like every other person from here is either in Mexico, Nevada or California. Lucky guys!!

Take care everyone.

Sorry...I forgot to ask how you are doing Smartie and Chico? Hope you both are still doing OK.Hi Pat - thanks for asking. It is hard to work on the computer with my right shoulder frozen. I did see my rhumy yesterday. Waiting for the bloodwork. I was real stiff from driving for two hours with my pmr and shoulder so bad so he saw me in a bad way. He is nice and smart and isnt ugly with me about my decision to go predless. He does think I am foregoing a quality of life. I see him again in three months. I am actually thinkng about letting he treat me with the pred if I am not way better by then. Maybe i will change my mind in a day or so but going on like this sometimes just does not make sense... even though i think i am better....it is still pretty bad. I wish more folks would post who have gone thru this predless.

Hi Smartie

So sorry that your shoulder is being such a burden to you. That has got to be so painful and such an inconvenience along with the PMR. It's so nice to have a Dr. that is civil to you and now the choice is yours if you choose to go back on pred . We are at an age where we don't need someone preaching to us. Did he say what dosage you would have to start at if you decide to go back on? Maybe it will be a much lower dose and it will be easier for you to taper off of. Don't wait too long to make your decision.

I don't know if I mentioned or not before but my new GP has left it up to me on when and how I reduce the dosage and this works well for me. I have to be careful that I don't start going too fast because I don't want to start all over again. Going through this once is quite enough. I wish you much sucess in whatever path you choose as none of us should have to endure this pain. Good Luck.

Ruth, Smartie -

I have been reading the posts for quite a while, but haven't written anything, since I have been free of PMR for about a year now, after having it for 5 years.

So glad to hear that you are free of PMR, Ruth!! And I can relate to being pred-free, but still having the symptoms. I did take pred, but only for one year. Didn't get to take it when I most needed it because of incompetent dr. at the time, and then after a year on it, decided I just needed to be free of meds for a while. I can honestly say the PMR is gone - I trust for good. I have other issues, like back problems, that are flaring up lately, but I can live with that. Also just had Mohs surgery for a squamous cell cancer on my temple that had been there for about 3 years. Thankfully they got it all, and I have only a 2 inch scar that is almost invisible. Yay!
If if it isn't one thing, it's something else!!! Hi Everyone:

So glad to see reply to 'Where is everybody". I read the posts most days, but don't seem to have any important news. I am at a stand still. I am still on 20mg Pred, still painful ankle for triamalleor fracture in Nov 2006. I am on pain pills. I would love to reduce all my meds, but the pain of PMR and ankle gets me down. Will try to add more positive posts in future.

I have also been coming here to see how everyone is, but there has been no news. I am doing the same. Although I have had a migraine for 2 days now. I think it is the weather. 50 one day and -2 the next.

Smartie, sorry you shoulder is giving you a problem. Have you had an MRI to see if you have a tear? I had 2 shoulder surgery's. The second one was to fix what workers comp didn't do right.

Ragnar, thanks for your information on reducing the pred. It helped me to get off the pred by going slow.

Hugs to all and hope you are doing ok, Geri

No mri. It froze up shortly after i got off pred. It has been a touch better since my RMT has been using ultra sound on it. I am feeling somewhat better now. That long trip without my nsaid (i had passed out a few days earlier and was afraid to take it till i talked to doc - nothing serious) was just too much for me. I take one with a stomach protector so i feel a little better about it. Try to just take one just 2 or three times a week. I would call my pain low grade (from the horrible stiffness) but continously having it is sometimes too much to take. Still waiting for my blood tests. Good health to all....I did take awhile to get back here. I had the site bookmarked, but it didn't come up. I deleted the later part of the url and it brought up the main site but couldn't get on the forum because the password pop up kept coming up.

I haven't posted because I just don't have anything much new to post, other than I thought it was going away but then returned. I had about three days of normal. I couldn't believe it. I'm hoping it gets back that point again, but something tells me it will be a few months again.

It's nice they didn't change the set up here. It is so easy to read. Some forums one has to click on each message to read. I like where one can read all the messages to each thread.

Mary

I wasn't able to log in for weeks after the shut down, so gave up for a while. I was doing great, but reduced to 8 mg about a week ago (from 9) and hip girdle has been painful and stiff and shoulders/neck tired. Today ot was bad enought that I took a new nsaid the doctor gave me. Not sure what I will do from this point.

Glad most are ok, sorry about the shoulder... take careHello all
I haven't had much time to log on recently but I'm still here --just dropped to 3 mg pred and NO fosamax!

A bit stiff but ok

Copyright ArthritisInsight.com