Does anyone know what their | Arthritis Information

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anti ccp number was if they were tested?  My doctor doesn't know about anti ccp and doesn't know what's off the scale and whats not. 

thanks for your help and support hope you are all ok.
I'm not sure what my number was, but I know it was negative. My GP didn't
know what the anti-ccp test was either, it was ordered by my rheumy. Sorry,
I was absolutely no help Ah Julie.  That doesn't mean you have it bad.  The reason why they call my ra aggressive is because my flares are very hard to control, I already have damage, and I always, even on prednisone, have some inflammation.  The anti-ccp had nothing to do with calling me ra aggressive.  Julie, I know you are freaking out right now.  If you look back at some of my flare times, I have really freaked out myself but then you learn.  Flares pass and there is so much you can do to make things better.  I am happy you are turning the corner and being pro-active.  Don't choose the worst case scenario, I think optimism should be part of your treatment plan.  It is mine.  No one knows what is going to happen but you can take care of yourself, find the right rheumy and feel better soon.  I do and I still don't have the right meds yet.

This clinic you are going to will shed a lot of light on what you are going to face. I'm excited about that for you.

Roxy, I've been reading your posts for a long time and I'm so proud of you just now. 

Lovie, I'm excited too, (in a weird way) and it's all free on the NHS apparently!


My CCP antibodies were 385 with normal being <20.  Obviously, I'm one of the "lucky" ones who didn't have negative bloodwork.  But remember that these numbers only make things easier to diagnose.  Doesn't mean you don't have RA if tests come back negative.  Weird, though, that your doc didn't know what they are, or offer to find out for you...
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