We now know that I have fybromyalgia and my good friends have not run me off.
Love, Good Morning Sheila, There is a Fibro board on the Arthritis Foundation website. http://www.arthritis.org/communitiesnew/Forum/msgboard.aspx It's not like here, but it is quite active. I have become a member there to post on the JRA board. I have never posted on the RA or Fibro board there. I read alot of posts and get info, but there is no place like home. Please stay with us. Like you mentioned there are some of us with both. Like Joonie put it we have grown to love you and the girls and it would'nt be the same here without you.
I think I saw a board for Fibro on here as well...but stay, we're lots of fun and these guys are good besides there are books out there on Fibro, some really good ones. I bought one a few years ago when they thought I had it and you know, it actually helped me a lot. You can check at your local bookstore, I can't remember the name of the book but maybe I'll dig it up and give you the name. It was written by a very knowledgeable lady with Fibromyalgia and contained a lot of good good tips involving vitamins, foods and exercise as well as case studies from different people....darn I wish I had the name now.... now I will have to dig it up. LOL, Jackie Thanks wayney, I'll be checking those out too.
Sheila
http://www.sover.net/~devstar/
It's done by the author of the Fibromyalgia and Chronic Myofascial Pain
Syndrome: A Survivor's Manual. There are 2 editions.
Personally, I own both...as well as her book the Fibromyalgia
Advocate. I like edition 1 because it's written more
plainly. The second one has more updated info but isn't as
plain English as the first one. THe Advocate book is also
excellent. I highly reccomend reading any or all three.
This link is to a yahoo group on RA but we also do a lot with
fibro...the main reason I'm posting this link is while you have to join
the group to read posts and all...the links section is public...and
there are tons of them.
http://health.groups.yahoo.com/group/ra-factor/
If you do go there and don't wanna join...just click on the links
section and it will lead to all kinds of stuff.. Lyn has them
well organized. She also puts out a newsletter with all
kinds of topics. http://groups.yahoo.com/group/AIandCD/
In the intrest of not hiding things...these two groups I'm heavily
involved in. The RA group I'm a mod on...and the AI group, well I
am assistant editor of the newsletter and write special in depth things
for it as well as taking over putting it out if Lyn needs to be
away.
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