New and scared | Arthritis Information

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My name is Martina and i live in British Columbia Canada, i am 30.

I am scared as i don't understand what RA is
I asked my Doctor to test me for Lupus and when my blood test results come back
My RA Factor was a bit high what does that mean?
I see a RA Specialist this coming Monday. what should i excepted for the appointment and what should i ask?
 
any help would be very helpful and thanks again for reading my post
Hi Martina and "Rheumatoid Factor. In RA, antibodies that collect in the synovium of the joint are known as rheumatoid factor. In about 80% of cases of RA, blood tests reveal rheumatoid factor. It can also show up in blood tests of people with other diseases. However, when it appears in patients with arthritic pain on both sides of the body, it is a strong indicator of type 2 RA. The presence of rheumatoid factor plus evidence of bone damage on x-rays also suggests a significant chance for progressive joint damage.

Erythrocyte Sedimentation Rate Test. An erythrocyte sedimentation rate (ESR or sed rate) measures how fast red blood cells (erythrocytes) fall to the bottom of a fine glass tube that is filled with the patient's blood. The higher the sed rate the greater the inflammation. In addition to rheumatoid arthritis, the sed rate can be high in many conditions ranging from infection to inflammation to tumors. The test is used, then, not for diagnosis, but to help determine how serious the condition is.

C-Reactive Protein. High levels of C-reactive protein (CRP) are also indicators of active inflammation."

If you show a RF you are called seropositive and if you don't seronegative. The other main indications of RA are show through your ESR and C-Reactive Protein levels in a blood test.

There is a lot of take in at the beginning. Try not to get too anxious or jump ahead of yourself. One step at a time here.

As for what RA is: it's this -

What it is:

Rheumatoid arthritis is a condition that causes inflammation of joints and associated pain, swelling, and stiffness. Rheumatoid arthritis causes the body's own immune system to attack joint tissue, breaking down collagen, cartilage, and sometimes bone or other organs. This chronic disease varies between people and fluctuates over time, often marked by symptoms that improve only to re-emerge later. In some cases rheumatoid arthritis is mild and lasts only a few months (this kind of rheumatoid arthritis is called type 1), while in others the disease becomes progressively complicated by disability and other health problems, lasting many years (this is called type 2 rheumatoid arthritis).

Rheumatoid arthritis most often affects the wrist and finger joints closest to the hand, but can also affect joints in the feet and throughout the body. Anyone can be affected by rheumatoid arthritis, but women are more likely to develop symptoms, which most often begin between the ages of 20 and 30. The causes of rheumatoid arthritis are not yet understood, but many effective strategies have been developed to manage its symptoms.


It is scary, when they say you might have RA. Try and learn as much as you can but don't overwhelm yourself either. When you see the rheumatologist, they will explain more and maybe you will get a definitive diagnosis too.

Deep breaths and try and keep relaxed until you see the rheumy, not much more you can do until then and they decide what it going on.

It means you have an elevated RF factor!  Not trying to be mean - just saying, it takes a lot of confirmation to get a diagnosis.  How do you know it's RA and not Lupus?
 
Hang on and don't be scared!  We're here to help and answer questions and DO NOT freak out at all the awful things you can see on line about this disease.  It's bad...but we manage!
 
Hugs,
 
Pip
thank you so much for posting this for me
 
Hugs
Martina
No problem, Martina. As any questions you need. You can also PM, private message, any of us and ask questions. No question is too stupid. We are definitely happy to answer. Knowledge is power with this disease and makes you feel less scared.  Oh, Martina, from what I understand a slightly elevated RF doesn't always mean you have RA either. So don't jump ahead of yourself before you have a definitive dx (diagnosis) as there may be something else going on.

And the rheumatologist will probably give you an extensive physical and order quite a few tests. It can take a few months to dx a rheumatic disease. Sometimes they have to do tests to eliminate things, so it is a bit of a patient process. My first RD appointment took about an hour. And it took two months with extensive testing to dx me properly.
Hey Martina, I don't have anything to add really.  Just wanted to welcome you.  And as Cordy said, ask anything.  Most likely someone here knows the answer.okay good to know thanks for posting this
 
Hugs
Martina
Thanks for the welcome
 
Hugs
Martina
 
[QUOTE=Linncn]Hey Martina, I don't have anything to add really.  Just wanted to welcome you.  And as Cordy said, ask anything.  Most likely someone here knows the answer.Hi Marti!  Welcome!Thanks for the welcomeHi there. Sorry for your news, but you have found a great place. This website is extensive and the people here are compassionate and very knowledgable. Hi Marti, sorry you need to be here, but if you have RA, then this is definitely the place to be!!!  Welcome and best of luck, Janie. Thanks for the welcome JanieWelcome Marti  - hang in there until you have your next appt.  Write your questions down and bring them with you and take notes while at your visit if needed. When you're trying to take it all in, it's hard to remember everything. I had a long list of questions for at least the first 6 visits, slowly worked my way down to just 2 or so each visit.
 
Cathy
Thanks for the welcome Cathy i will be having questions with meWelcome to the boards!Thanks for the welcome DebbieThe waiting and not knowing is just awful. Well thankfully you will see the specialist soon. Sometimes that is a long wait in it's self. Some of the blood work will take a while to come back. You will be alright. I am a pretty happy person in all reality. I may not always sound like it. The unknown is always a scary place. I am sorry you are going through this. We are hear and we will listen and try to answer your questions. Whatever the out come let us know. Welcome to the board.

Thanks Milly

 

thanks for replying SnowOwl
 
the only thing i cannot prepare is my family history. as my mom passed away and my Dad Disowned me.  but i can get everything else prepared thanks for posting this
Hi.. and welcome..as far as family history, its helpful, but not essential. Can you remeber your mother? did she have symptoms of RA?  How about your Dad, did he have symptoms?  Do you have aunts or uncles that you can talk to?  Sometimes your parents might not have it.. like in my case, but  other relatives do..
 
 the biggest thing to know about RA is that it CAN be managed, and more is being learned about it all the time.  If  your dr diagnosis you as  having RA he  will probably recommend  quick and agressive treatment.
 
Remember people who post on message boards do so because they need information and or support..  Most people with RA are out living perfectly ordinary lives and  probably dont post here..
 
good luck..
HI Marti...I live in BC, too, so maybe I can answer some questions for you. I know a lot about different resources for RAers. I live in Vancouver, where do you live? The first year with RA is the scariest and the worst.Gimpy-a-gogo2008-02-28 12:28:32I live in Port Coquitlam and my new RA Specialist is in Burnaby on Sunset Street near burnaby hospitalI go to the Arthritis Centre at VGH. Anyway, if you ever have any questions just ask! Okay i will do thanks
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