So that little blip of "feeling good" that came on Wednesday and made it into Thursday is now completely gone. I still wanna know...was it stopping the Imuran for the antibiotic to work (which it didn't as far as my swollen sinuses can tell) and now I'm back on it? Was it just one of those random times? Was it the Rituxan finally trying to help? Did I do something different (less or more) at physical therapy, either on Tuesday to make it better or on Thursday to make it worse? Arrrrggghhhh!
Hey InnerGlow. You remember my half thought on your other post? Well.... I found what I was looking for, because I remember reading it, but could not for the life of me remember what I meant or even where I was going with my reply LOL! I just knew it kinda sounded like something I read. Anyways... here it is....
Joonie, yeah, that is why I was off the Imuran in the first place. But for whatever reason, my dr didn't want me to stay off it for the whole 10 days or longer.Oh ... P.S. I am probably wrong, never said I was a knew what I was talking about. I can't offer any thoughts with regard to the Imuran, but I can certainly understand why you want to understand what's happening. It's the one way we can feel we have some control over the situation if we can figure out the whys and wherefors and maybe even get a bonus light bulb moment and learn something that can help fight the disease.Imuran is a drug which also suppresses white blood cell function more generally than Cyclosporine. Like all medication, Imuran has side effects. The most common side effect is a drop in the number of white blood cells. White blood cells fight infection. If your child has dangerously low white blood cells in their body, they may be more susceptible to infections, colds, or other viruses. This does not mean that they cannot fight infection. It means that their ability to fight off or resist infection is less than before your child was on Imuran. Imuran is available as a tablet or in liquid form and is usually well tolerated if taken with food or a glass of milk. The liquid form must be refrigerated and is stable for one month. The white blood cell count will be monitored and medication will be modified accordingly.