New Ruemy | Arthritis Information
I just don't know? Well he talks like he is the best RD ever. He knows all but of course isn't telling because he wants some test run understandable. RE exrayed the hands. I thought he said he wanted the feet also but i got to exray and thats not what was on the paper work. I got a shot in the hiney. He said i am not bad swollen because of the pred, but then says but i have not seen you swollen badly. But he said five mg of pred will get me no where a waste of time. Had nurse give me the shot in the hiney for swelling and said not to cut back to less than ten. Says pred does not cause this kind of swelling in the face at least not the way it came on with me one side first. Says I have migranes not sinus headaches. But i was not there today for the headache. Kept accusing me of taking water pills as if i was lieing to him, because of my low potasium problem. I would say no i don't and he would ramble and bring it up again, like he was trying to trip me up. So i said hey, I could not be taking water pills as they have sulfer in them, all of them do and even low dose i am highly allergic to water pills, diaretics. So I said please find another cause for the low potasium as it is not me taking diaertics. Because really that is the truth so why waste all of this time. Where am i oh i have a headache. Anyway he was going to change me to phenobarbitol, I said sorry i am allergic to that. Wrote out a script for Resteril for sleep and fibro stuff. As yes i could sleep all of the time but if i take something for staying awake or high dose pred then i am not really sleeping much at all. He also said the provigil is not good for me as it can cause stiffness. Especially with the albuterol inhaler the combination is just going to make me stiff. He had two theories on my lower abdominal cramping. He said even if i wasn't allergic to everything i am hard to treat because i have to many conflicting problems. Hmmm I already knew that so was not suprised. Well i was swelled enough to prove i swell. But not swelled enough for him to just look at and say i have RA, then he said but that is because of the high dose pred. Well yes i know that. He was saying yes you are swelling and it would be worse, I believe you. But in the sort of way you do not want to hear when you have a headache. And not sinus or pred causing swelling in my face. And he seems to think he knows what is wrong with my hands but isn't talking yet. I am still going to the ENT tomorrow. Well RD did order a bone density test also. And he said we are just going to start from scratch. Fine because I have not been getting anything done any way or at least nothing that works. So it's like everytime i got frustrated with him, he was like i have to say this today because i just met you. So he is like thats the sort of swelling you would have with this or with this. Then he says but the high dose pred is why your swelling is not outragious. And he said for today we are keeping your fibro dx because your in alot of pain. As if i did not notice. Then he said do you need any pain pills i said no i just had them filled. So i really did not exspect to get as much done today as what i got done today. So that is good. I got the shot and a hopefully more helpful pred dose and a tranquilizer. And bloodwork and exrays and bonedensity test ordered. ANd was told i have maybe had a migrain headache for a very long time now. But i am still going to get a secound opinion on that because i do have Ears nose and throat issues and i want a specific answer not one made by someone asking questions but by someone doing test. He first yelled at me for not taking my Provigil as prescribed but said it was prescibed totally wrong. As to say do what i tell you or i will not work with you, but as to say he understood why i was doing things my own way on that particular matter as i can not take 200 mg of provigil a day and be anything but a basket case. It is just to much medicine. And then i guess i would be a stiff basket case on top of that. But i was stiff long before the Provigil it just adds to the problem. He said temporarily i can use it and when my next appiontment he will give me something more sutable to my needs, or at least try. The swelling in my neck or what i think is a swollen gland that i get that hurts under my jaw, hes says this is nonsecquenchel. As my three year old niece would put it don't worry about it. I already figured that out sort of because it went away when i quit swelling last time. Except that is where the swelling to my face all seemed to origanate from. Anyway this guy acts like he knows just whats going on, he is the true expert and it is for now none of mine or your buisness whats wrong with me. At least not till next appiontment.Try that with a migrain or how ever you spell that. I thought migrains where the one thing i did not have. LOL He was more interested in my Barrettes Esopogus and GI issues than any other RD's have ever been. So maybe he is a good doctor? i do not know but part of me just really can't stand the guy. He is young good looking and all about himself and how much expertise he has. But i don't have to like him if he can make me well. So i am still confused and whats new. Well if the shot makes the swelling come out of my face than it was AI related and not pred. But parts of it hurts so I will get back to you after ENT tomorrow but of course we will have to wait on more test i am sure. Patients is a vertue but a shot in the hiney and tranquilizer will probably make it easier to handle along with the pred and the vicoden that where just not cutting it.Oh, Milly - sorry, but I'm not putting much faith in this guy. The ENT is the one I'm hoping for. Hopefully he'll do a CULTURE!
Hugs,
Pip
It just doesn't sound like he's working with or listening to you. If it were me, I think I'd be looking for someone who would do both.
There could be a lot of reasons for what is going on, including your low potassium. I'm with Pip... I don't have much faith in him either from what you're describing.
Man, Milly.... your new RD sounds uncaring in a way. I hope he gets better after a couple appointments, if not dump him.
Oh and my potassium was low by .10 on my blood work for my RD. And I am allergic to sulfa.
Much hugs and hope tomorrows appointment is a more productive one for ya!Hey Milly. Well, I guess that wasn't just an appointment, but a dis appointment as well (haha). Maybe he won't be so hard to take after you see him for a while. I'd at least give him another chance.Milly, I think I would give the guy another chance - at least until you get all the results of today's tests and you make him explain what each one means... Hang in there and I hope your face unpuffyfies
Deb
That's NOT a word.Oh i am not changing RD's everyday. And we were getting along better at the end. It was just i had a headache already and I am i thinking i don't like need this when i am sick. He was getting it at the end. He only had the stomache to do the fibro pushing on me about three times and he wasn't going to torcher me anymore. And he did believe me in the end. And he did honestly say i would be difficult to treat. Not because i am non compliant but my medical conditions conflict. He said i was very confusing. That would fall under agreeing with me. He does not like people to take addicting drugs. But he asked me before i left if i needed pain pills. And he did not act as if i was being noncompliant when i told him i was allergic to phenabarbitol. I said i need a muscle relaxer and he said lady you need a tranqulizer. My eyes are all dark and look like i have not slept in a month that is not true it is just how i look. I am always tired and i always have a headache and i mostly always am stiff and in pain. Thats just me. I don't like it i am tired of it. But i guess i am more used to it then he was because he couldn't stomache it. My shoulders were already pushing on my neck before he did. Well it wasn't good. He probed me around three times maybe four and thats all i could take i thought i was going to pass out. I think he maybe was going to also. I am a screamer sometimes i don't mean to be, it just happens. My neuro always brought the nurse in the room he would say for a witness. And he would say please not so loud you will scare all my patients out of the waiting room, they will think i am tourchering people in here. It was just one of those days. The shot is taking some of the pressure out of my shoulders and off of my neck. Good deal nothing else was working today. So now that i have had a nap and feel a little bit better i am starting to like the Doc a little bit more maybe? I just need to bring a tape recorder to keep up with this guy. He knows what he's saying he has it all memorised. I have a headache and can't keep up. They were way ahead of schedual. I was earliy they pulled me back in without finishing my paperwork. I was handing them things as they did my bloodpressure. My bloodpressure is always really good or i would have not gone along with that. They were rushed i was slow as a turtle. LOL Mentally and physically. And i was complicated. I slowed them down it really scared the nurse or whatever she was. She was afraid of someone and getting yelled at. I was not afraid of getting yelled at. I would just stop get a look on my face Hmmm I'm so confused and think which is hard when you are tired and have a headache. I am tired and confused and slow. LOL The slow really got them all shook up, they didn't like it one bit. This was a mass production line I was rubbing my forhead and trying to think. Really that is who i am. And i did not want to say the wrong thing being rushed or forget to say something being rushed. I could stick up for myself it just took a long slow process. I mean i can get up and go to the kitchen half way between writing this post. You have no real idea how slow i am unless you are this slow yourself. This is sort of funny. The big long speech about compliance. And i had mentioned breaking the Provigil in half. He said take ten mg of pred a day, i don't care how you take it all at once or five in the morning and five in the evening. The tranquilizer is a capsual don't break it in half or bite it, it could hurt you. He is like really you are right that is alot of medicine 200 mg is the highest dose of Provigil. You are supposed to try to get by with less if you can. So he was really telling me to be non compliant with last RD. Thats how i took it. I was not feeling well enough to battle the drug store so tomorrow i will be in bed for the night much earlier. I took a nap this afternoon. I feel like Elvis or Johnny Cash. All these meds to get things right. Who would ever have thought it would end up like this? He says temporarialy till we get it straightened out. I refered myself Friday my GP's office would not forward any records or bloodwork. Called other RD office they may or may not but it will be a while and i think they are none to proud of them selves for not having helped me by now anyway. So i did not have my hopes up for much to happen today. I did bring my copies of what i had like my positive rf and anti-ccp and the last few cbc's. So he could not just hook me up to a biologic today it would have been unethical and against the law. As well as i was do for some blood work anyway. Some of my meds say to have things checked regularly and he was concerned about the potasium and sugar levels also. He did help me get through the most painful day i have had in months and not a moment to soon. My eye lids that were dark brown are almost a normal skin color now. I am still in pain. Still have swelling but i think i may get some sleep instead of crying all night. It is bad but a lesser bit of tourcher. I could have seen a lady instead on Wednesday same building but i knew i would not make it until then. i just really thought maybe he would give me a muscle relaxer to help take the edge off and hoped he would want me to keep the pred dose up above five mg. And i thought he would in the mean time have time to get some of my records and what ever. So it was a neccasary appiontment with helpful results. It was a bit of an emergency. I just need to have a day when i do not have a headache at the Rd's office so i can better comunicate it is hard when you are sick. My shoulders and neck hurt but my headache is better. Maybe just some pressure coming off. That shot should help with allergies and asthma stuff as well. Well good night. Got to get up for the ENT tomorrow and will try to have a shorter post tomorrow. Just trying to get some water in me. The shot seems to be drying my skin out really quickly.Milly,
this may sound kind of nit picking but I know ( and I suspect there are others) that I am having a really difficult time reading your posts in this thread. It would be much easier to read if these long posts were broken up into paragraph.
thanks
I'm glad you're feeling better about your dr. I hope he turns out to be the one who can "fix" you. Make sure you tell us what the ent says.
What Buckeye said is true for me too, Milly. I'm not complaining about a long post, I like your posts. But it's kinda hard on my eyes to read it when it comes in one long chunk. I find my eyes keep going back to the same sentence over and over again.
[QUOTE=milly]He first yelled at me for not taking my Provigil as prescribed but said it was prescibed totally wrong.
He said temporarily i can use it and when my next appiontment he will give me something more sutable to my needs, or at least try.[/QUOTE]
Milly,
These two statements really stood out for me. Especially the first one. I would dump any doctor who yelled at me. That was totally uncalled for.
Why would he say he'd give you something more suitable at your NEXT visit. You were there. Why couldn't he give you something suitable at that visit?
If he was the best RD you could find, and you had something that could be cured and you'd never have to see him again, that would be fine. However, you have a chronic condition and it's important that you build a trust relationship with your RD. I'm not sure from reading your post that you'll be able to do that. Personally, I'd be constantly 2nd guessing every treatment he'd give me.
Sorry to be so negative, but you deserve better.
Copyright ArthritisInsight.com