Don’t know if I can do it! | Arthritis Information

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Well today was marathon training - 11 miles.  My timing was bad.  I didn't have the energy and quite frankly, everything hurt.  I'm down to 20mg of pred everyday so it isn't helping as much.  Next week is a 10 mile marathon and that actually feels like a vacation; however, the week after we bump up to 13 miles.  I'm really wondering if I have reached my limits.  My coach told me not to worry about it and we shall see how it goes; of course, he doesn't know I pop pills like candy and have a condition. 

I guess there is nothing I can do but try; if I can do it, I can't do it.  The only thing keeping me going now is that someone asked me the other day if I was trimming down.  Yippee!  If someone asks me that everyday I may be able to suffer through it - who knows!

I've been back to work so haven't been on much but occassionally I sneak a peek.  I'm so excited to us meeting each other.  What a great support group.  Let's keep it up!

I'm sorry. Why are you trying run marathons with RA?  Guess I must be missing something.....?

Susan

Susan, I walk and if you ask your doctor he will tell you the best thing you can do for yourself is exercise.  I don't mean to be rude but it amazes me the amount of people on this post who think that they should just sit like lumps on a log because they have RA.  It's not a death sentence!

I'll admit that it might be a lot but if you look at the Arthritis Foundation you will find a lot of RA sufferers who walk for the cause -some of them 26.2 miles on crutches.   Since we all suffer at different rates and different ways, we should each make our own decision.  Mine isn't aggressive nor mild so I push myself.  I want to be healthy!

Cristene.  I am soooooooooo proud of you.  We all are !!!  I will be walking with you soon and hiking in no time

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Note: was not trying to be funny was just trying to encourage, she did say if someone told her she looked like she slimmed down she would try to continue with her training.

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Cris - I am very Proud of you for making it this far. I would have stopped way back about the first post on it...lol. You are an inspiration for some of us who wish they could train for a marathon, which many of us would not even think about attempting because of all the pain that it will cause.

But if you do not feel like you can continue then, do what you feel your body says. We are all still proud of what you have accomplished (walk well over 2 miles at one time), and that is something to be proud of especially with having RA.

Like you said you have only a mild case, but any case of RA, is painful and hard to do things you love and want to do, because you end up paying for it, with pain, fatigue, or worst a flare.

But you got a bonus with your training -- weight loss! Which is good to hear and you probably feel better already!

Well, keep us posted on if you continue your training or not.

 

Hey My rheumatologist wants me to start weight training.  well, there are some of us that don't have mild cases of RA or that have enough damage that makes walking even short distances torture.  so i don't want to be healthy? is that what you are saying?   i could accomplish a lot more had i had proper treatment but please don't imply that those of us who can't do all the exercising we'd like, don't want to be healthy or that we're giving in to RA and are "sit[ing] like lumps on a log because [we] have RA".  
i seldom take offense at anything on here...but this got to me.  i feel guilty enough at what i can't do...i don't need someone to make it worse.  great for you that you can excercise. but no need to make those that can't feel worse.   i've actually been told by physical therapists that at times, pushing to exercise can cause more problems.  my doc never once said anything other than i'd like you to start exercising when your diseases are better controlled.
Well done Cristene for sticking with it. That is quite an achievement for someone with your circumstances. I've been very lazy lately and need some motivation to get going and work out more. I would start running but I have asthma so I can't run more than one lap around the track before I'm wheezing and gasping for breath. That along with RA, migraines and dodgy eye sight I'm a bit of a walking disaster.Cristene, great job!  I have been weight training for 15 years.  I have bad wrists and hands with lots of pain on bad days. What I do is wrap them and wear a wrist brace and exercise. i am not as strong aas i use to be, but something is better than nothing.  so i go to the gym and try my best and do what i can.  the doctor told me to exercise also, it keeps you healthy. as long as you don't overdo it, you will survive. just take some motrin for the pain.

Like wayney, I have had RA since I was a child. I understand why it upsets wayney so bad. Because We both have been limited by what we can do, since a very young age, and we just have grown to come to accept that we cannot exercise and do things like newly diagnosed people use to be able to do. We did not get a chance in our life to be "healthy" and "normal". So to us this is "normal". Like when my RD told me I needed to walk a mile each and everyday. I wanted to literally laugh in her face! I mean I almost failed PE because I could not walk a mile in an hour! Yes, when I have good days I would like to be able to exercise, but I know that if I do it will just cause me more pain and fluid build-up and ultimately lead me to a flare.

I say exercise is fine for those of you who have done so before RA, but as for me and wayney we are forced to be "lumps on a log", because we probably have more damage done to our bodies from not having the treatment ya'll are able to receive to prevent damage.

I did not really take offense to the comment, I just over looked it. I just wanted to elaborate on possibly why wayney took offense to it. I know I am not as bad off as wayney, but I do understand where she is coming from. I do have times where I feel bad that I cannot and have never been able to do "normal" things. The most "normal" I feel is when I am pregnant. I can do so many more "normal" things. I did exercise a lil while I was pregnant. I did not enjoy it though, because I was not use to exercising since I have never been able to get my body to the point to where exercising made me feel good. Exercising always made me feel worst and like a loser because I could not do lunges or squats or stand on one foot without falling over.

I say exercise if you think you can and if it makes you feel better. Just do what you feel is right for your body.

Sure I am a lump on a log, actually I am a lump sitting on a computer chair...lol.

 

This Lump sits in a wheelchair or bed with puter.  Only thing I can do is my pool therapy. Guess was the term used, that hurt a bit.  I have only been a Lump for few years.  Used to be active.  Well, never 11 miles! But tennis, real swimming and lots of walking since I never learned to drive a car. (Another phobia).  But good for those who can do plenty excercising.

I almost got a new excercise yesterday, when planning on smashing this wireless router with a hammer.  Fortunately my hands are too crappy to do it, as it is working today. Yipee :-)

Wayney and Jooniper - I totally understand and I'm sorry I offended you.  I just took such exception to the comment about why I would want to do something like a marathon when I have RA.  I should have walked away and either responded later or never.  I just don't want to come here to be judged or to judge.  We are all individuals who are at different levels and I know RA is painful.  I've dealt with it since I was four and I know we each can't all do the same things. 

This is not the first time someone has responded to me that I should not being doing this because I have RA and that I am in denial.  I'm not but I want to encourage myself and encourage others to be themselves.  Personally, I hate exercise and always have.  I'm not athletic and never have been and "yes" I too also sit around like a lump on a log on many a day but when I feel good, I try again.  I know I'm not alone and I'm sure each and every day you all do the best you can just like I do. 

I can only apologize and say that I for whatever reason just took it very personally and I'm very sorry if my reaction also set off others.  I empathise, sympathize and encourage each of us in whatever you want to do and to be the person that you are - it's exactly what my rheumy tells me - encourage each and every RA sufferer to be proud and do the best you can.  It's all we can do!

 

PS:  Jooniper - I can't lunge either so don't feel bad.  In fact, I hate to say it but I can't even touch my toes and personally I think that is sad; however, it's my reality!

Oh You guys.  Lets not get mad.  Wayney, I am sure that Cristene did not mean that for those of us that can't exercise should be.  It is just ra is such a battle.  I am feel overwhelmed most of the time with this battle.  I cannot imagine what it would be like to have ra since childhood.  I think Cristene is just getting defensive because sometimes she is "put down" for trying so hard.  I say go for it while you can.  I can't do what she is doing right now and to tell you the truth, only six months ago it would have been "a piece of cake" - Only because I have been a walker/runner/hiker my entire life.  Now I can't do it.  I am grieving.  If I had ra from childhood, I would never have been able to do it.  My heart breaks for you and everyone that got this at a young age.  That is why you are such a treasure - you and Joonie and others that have been dealing with this all your lives.  You are half of the age of many of us "newbies" and you have so much to teach us. 

I know how emotional I have been lately.  Prednisone makes me feel crazy and still having pain on prednisone puts me over the edge.  I am scared too.  Scared to death of the limitations this disease puts on you.  We shouldn't battle each other, ra is enough of a battle.   I know there are many on here in my shoes and worse.  I hope we can be more patient with each other and support each other.  That is the problem with getting to know each other on the computer.  No body language or tone of voice to better communicate your true meaning.  Cristene has a big heart.  I am sure she did not mean to offend, she may be feeling defensive.  I know I have felt defensive about my determination to do all I can with this diagnosis.  That defensiveness is the anger at ra and the determination to beat it.  It may be misinterpreted  as aggression against other people's philosophies.  IT IS NOT!   It is our desperate attempts to cope and deal with RA.   I am just learning and I am so grateful that I can learn from you.  We are people in pain and fear.  I hope we can support each other and be patient with each other.   

I am happy that you are doing your training, you are inspiring others who are not as bad off as many.

I can touch my toes...lol...heck I can touch my palms to the floor. Hubby cannot even touch his ankles...lol. Being able to touch my toes and the floor means I do not have problems in my hips. Otherwise i would probably have trouble doing so. But for hubby it is due to his belly and not being so limber...lol.

And cris it is not sad that you cannot touch your toes. Like I said hubby is "healthy" and cannot touch his toes, he is only 20lbs over weight.


Chris-It is so great to hear how you are pushing
through your training! Yea!!

It's inspiring to me to try to start walking again-I
would love to be able to walk that far, but think I'll
start
really small.

Thanks for sharing and keep on going!

p.s. About 8 yrs. ago I took some adult ballet
classes and actually graduated to point shoes.
Don't think I'll ever be there again...BUT I can still
touch my toes!

Thanks guys!  I really did make an ass of myself and to be honest, I don't even know why.  Like Roxy said above, she is scared and to be honest, that is my biggest emotion regarding this disease.  Before I got medication, I was so stiff I thought I would freeze into a statue and never move again.  Maybe that is why I try so hard to get out there and walk, even though it hurts. 

Truly I'm an idiot but if my walking is inspirational to just one person then I am happy.  I don't fault anyone for not doing the same as I.  We each have our own abilities and strengths.  Mine has never been athletic so maybe I'm crazy.  I even tried hip hop (well guess what - no way), I couldn't do it.  It hurt so badly on the old hips that I couldn't stand it.  I tried the rumba in ballroom dancing - same problem.  So I really do understand.  I guess walking is the only thing I can do.  It does hurt but mostly after I'm done and at one point, it was getting pretty severe but back on the pred and it's a little better so I can't give up yet but if I have to, I will do so.  Here's my new picture!

I'm feeling like such a jerk (justly so) that I couldn't sleep so I'm out here posting this hoping I can sleep afterwards.  Early morning flight to LA then back again Tuesday morning. 

You're not a jerk or an idot.  Just human.  Now get some sleep or you will feel like a STIFF Lump on a Log. 

and have a safe flight, please!

You make me laugh.  I'm best at being a stiff lump on a log - how did you know?   By the way, if your hips swing any faster, I'm going to get dizzy.  I wish I could move like that!

Good.  Laughter is good for us all. 

All of us will probably post something we wish we didn't, at one time.  Should make it a rule:  Not a true member here, till we do. :-)

Now go get a good nights sleep, and I'll teach ya the Hula some day.


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