Can't sleep, kinda of a vent..and med results ?'s | Arthritis Information

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 hi, i'm not sure where to go to vent or just talk, so its here, lol

 
sigh, i'm FRUstrated, is the best word.. I saw my Dr, friday,  i took my friend/ caretaker, to make sure i was hearing right, but.. lol, too many people.. and i can't answer questions, just a yes or no... i always have a back story, lol..
 
The problem is my Dr
, knows nothing about bipolar,  thats ok, he's not expected to, but if I go find a shrink.. guess what? They are going to know nothing about Ra..
(which means finding the righ PAIN meds, is going to be hard, sigh)
 
I was on this new med, Opana, that i liked, twice a day, time released med.. i quit it
(a no no) but i was trying to get off all the meds, the vicodan, darvcet, valium.. and that.
(( ohh funny, i called a friend and mentioned i was taking too much stuff and she was like, well maybe you just have to lower the Tylenol, when i mentioned the narcotics.. she was like ohh s... LOL, yeah tylenol is a real med, HA LOL
 
Several days w/o all that stuff,
 
and i actually was feeling more ALIVE.. more creative (since I write, thats impt!)
Anyway, i tried the Opana again, after 3 doses, .. i have to take myself off, call the Dr
and.. and.. i'm broke and out of sleep meds.. even tylenol pm would help!
i'm sure i'll find money somewhere, in this house! lol
 
So i'm a bit grouchy , irritable, bc i've only had 4 hrs of sleep (i'm an 8-10 hr gal, plus naps! )
and ohh ITCHY!!!  (its part of the manic side)
 
Its soo frustrating when meds are good for one illness , but tailspin~ not great for the other illness.. it was also making me manic.... not that theres anything wrong w/ that!!
lol..
   but for bipolar, Sleep is incredibly impt, to stay sane.. truly..
 
so i'm sitting here itchy, frustrated, i'm ok.. i'm just venting , its not like the end of the world or anything.. its just another step, ya know?  Finding what works and what doesn't.
 
Manic-d's w/o sleep.. a no , no.. it causes you to go into a really bad manic, irritable place.
So no one offend me ok/ LOL.. joke!!!
 
Its just Hard, bc also the opana was really helping w/ the pain.. lowering it soo much and most of the day was fine, but nighttime noo (nothing would put me to SLEEP and it has to be taken twice daily..
 
Right now, i'm kinda literally ,.well not literally, it'd hurt too much, i hate Pain, LOL
pulling my hair out, 
 
I WANT SLEEP... oh i could crash out on valium, hmmm
~~~~~~~~~~~~~~~~~~~~~~~~~~~
Second Part,  Med Report and don't ask me why i didn't ask my dr, all these ?'s :P
(will email) next visit~ 2 months..
 
Carbon Dioxide low
Sed Rate 49 High  (is that the inflammation part, he did say i was still inflamed, really?
note: sarcasm
 
Aklaline Phosphate 132 High (does this have to do w/ diet/ food??)
 
White Blood Cell Count 11.3 High
 
C- Reactive Protein  2.26 High ( i know some of you guys have talked of this.. i eat plenty of meat!.. but of course, then that may have nothing to do w/ this.
 
Yes, i will email my dr and ask him these questions.. ( he doesn't like email, but being hard of hearing.. sigh, too hard.. long on the phone)...
 
ohh yeah, i'm not in pain, just b*tchy as h*ll!!! LOL
 
again need good soft sleep!!!
sex 5 x a day might help, but not by myself..doesn't quite do it.. and not in the mood to put an ad in craigs list.. JOKE!
 
in a nutshell its the bad manic  (theres also the good, the great and awesome manics)
and in the ditch ones..
as the title says on the book~ A Brilliant Madness!! lol
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
 
even if you have no clue what to say, just a hi, would help..
Thanks Whispered..
Whispered2008-03-23 07:48:56I don't have a clue what to say so...HI!!!
 
I do have some experience with Bipolar...from a family member, not myself...so I know how difficult it can be to cope.  Then add RA on top of that...major frustration indeed!  I hope everything gets better for you soon.  Kind of quiet here on Easter Sunday...off to pick up my wife at the health club and go to church.
 
Good luck,
Alan
The more I read, the more I find that many people are bi-polar. THere are meds for that aren;t there? WHy would they not mix with RA meds?
 
I am new to all this an dfrustrated and so sick of being sick and condemned from friends and family that do not understand. It is like I have the plague...like I am not good enough anymore. SOme people can be cruel and I am holding my own.
 
I am with you, it is hard to sleep and I am not bi-polar......just dx with RA and Fibro and that is difficult enough cause i am sick all the time.
 
 
You email your DR?????Hi Whispered.  RA and bi-polar are tough enough on their own, but together is more than twice as tough.  Do you have a primary who could be your advocate between your specialists?  She/he could be the central doc who looks at all your meds and makes sure that both your conditions are well managed.  Or, have you given your psych and RD permission to talk to each other?  You may want to do this so they can coordinate your meds.  You know, of course, how important it is to have both RA and bi-polar to be well managed.  I hope you can get some good rest soon.
Take care,
- Joy
Whispered - I personally think its the MDs who are bi-polar.  Mental disease and autoimmune go hand-in-hand, and with specialists not being able to integrate their territorial pieces of our bodies, it's very frustrating to get them working together for your mental and physical health.  That's why I think they are the ones with the metal problems.  The only thing you can do is bug them until they buy, die or move away.  Don't give up - Cathy*hugs the snot outa Whispered*
 
That's right lady, the SNOT!
 
 
Okay, deep breath and let's start from the very beginning. You DO still need some form of pain control, right? So what was wrong with the Opana? Were you just adding it to the list of meds you wanted to quit, or was it too expensive?
 
I DO have to say SHAME! for stoping all those meds like that! You know better!!! Okay, that's outa the way now.
 
What about seeing someone at a Pain Clinic? I would think they would possibly have the most well rounded knowledge of the uses of pain meds, so you might get someone who's familiar with BOTH B-P and RA. It's a thought!
 
Okay hun, I'm at work and that's about all I can think of right now. I'll add more as it comes to me!!! *hugs*
The only thing you can do is bug them until they buy, die or move away.
 
What the heck do you mean by that? Who is the snot? You want someone to die????????????????
jodejjr2008-03-23 12:20:47I think Cathy has a good point.  You shouldn't have to be the one dealing with how to coordinate the different medications you need.  The medical professionals are supposed to do that.  You need help, we all do, and you need sleep most of all right now.  I think it's a good idea to see your PCP if you have one, tell him/her exactly what's going on, and ask for assistance in coordinating your care with the specialists.  I know how frustrated you must be right now.  I hope your PCP can put this all together for you.   hi guys, thanks for the support!! I appreciate it..
 
Its not about the $$.. thats all paid for.. medicaid/care.
thanks katie, i needed the snot gone :P lol
 
The Opana.. pfffffff how to explain,  bc i was stubborn and just took one more dose, seeing if i could figure it out..(i'm thinking its addictive.. yep..)
 
I'm a rapid cycler, meaning, i can be manic~high, and the next hr, severly depressed..
 
The opana is making me irritable And manic and feeling good, and tired, and down
ALL
at the same time!!!.... yeah weird!!
 
Works welll w/ the pain, not so great w/ the emotions..
 
Right now, i don't have a good regular Dr.. (no car, even w/ a provider, its just hard )
ok thats a good excuse but true... lol
 
I am going to make myself get an appt, w/ a shrink, just for the meds. Its just i'm sooo beyond tired of going to therapists.. i recommend therapy for everyone, but after 20 yrs or so.. the bipolar is pretty much.. ok.
 
Its VERY VERY Difficult to find a good therapist who is really gets the bipolar and add the meds.. (if i lived where I used, to, then i'd just go visit the same therapist, i had for yrs)
 
Mentally, i feel strong... and it was very dumb, to take the opana, today.. (thats my manic impulsive side!! lol eek)
 
and um fyi: meds for bipolar, can take YEARS, literally to find the right ones and doses!!
Seriously.
Usually, its a combo of several drugs...
 
I've found the right ones, for me, so I'm a bit worried, about a Dr wanting to change
my meds, which they may do, but i'm also very stubborn, LOL
so doubt that will happen..
 
gawd i'm babbling!!!..
 
ok, going to go work on my FOUR coupon envies, for my coupon train!!
some FOCUS might be good..
 
um i'm kinda out of it, anyone tell? lol ( i did take a valium, one allergy pill, slept for 6 hrs, then for some wild reason, decided to try the Opana again.. thud.. lol
 
Its becoming Spring/ SUMMER here, i mean its in the 80's and this is when i start going manic.... meaning very little impulse control..
 
Will post some freebie deals later, for y'all and your patience!!
 
thanks again.. the babbling brook~
 
ps's, thanks alan, snowowl.., jesse,  everyone... my pcp.. i dont like, she's very  r and r (rules and regulations type, ugh)
um most therapists, dont want you on valium, which i refuse to give up (me an addict..naw, naw, lol)
 
washcloth.. why washclothe, why?? lol
want to wipe everything away, start fresh?
 
oh why so hard meds, bc ra and bipolar , they don't mix great together... thats what i'm talking about.
The opana, great med, not good for the bipolar part!
 
ohh yeah, i'm also hard of hearing, over 50 %, so i have to use relay operators, they take forever and my dr is super busy, so I actually email his asst.. and she talks to him, for me.
I have a great RHEM and his staff, are wonderful!!
really really nice and super understanding~
A real blessing, thanks katie, i needed to get that snot out! lol
 
i must, i must get off this puter and get to work!!!
envie time!
Whispered2008-03-23 15:27:30Gawd Jode chill - it's just an expression in the retail business - you bug them til they buy, die or move away.  You are not wanting someone to die, that's stupid. 
Whispered - you keep posting - I always enjoy your posts and it was time for you to finally vent a little in here :) 

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