new support group | Arthritis Information
http://www.gazettelive.co.uk/news/teesside-news/2008/04/10/pam-s-battle-against-polymyalgia-84229-20742800/
This is a link to an article about a support group in UKit's the same group that produced the newsletter I referred to in the post headed 'interesting newsletter' . They are very active, and are getting good links with medics who are doing research.
Margaret
ahhh....sometimes i will google PMR and hit "news" on Google and find articles.....did not realize this was the same one...
Is there a web address for the support group?
Donna, NY
Web address for one of the four support groups in the UK.
We are working towards a National Organisation to highlight PMR and GCA and get much needed research into cause and cure.
These two diseases are not life threatening, they just destroy your quality of like and because these two diseases mainly occur in women - they have just not been seen as important.
They are now as most women are bread winners and need to work.
www.pmr-gca.org.uk - well worth a visit.
mrs UK
So, we need to change the way this disease is being perceived. It takes away the quality of life we used to have and leaves us struggling with pain. Guess we have to change this perception.
Donna, PA
Check out this web site -
National Medical Research Foundation - FOR PMR AND GCA!!!
http://www.chroniclelive.co.uk/lifestyle/your-health/2008/06/09/wheels-are-in-motion-as-mavis-fights-for-sufferers-72703-21038760/
Another link to an article on pmr and gca in the UK - also has USA website in it and that NMR Foundation is working to set up support groups in the USA and funding for research.
Go for it.
Mrs UK
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