Will there be a cure for RA? | Arthritis Information

 

I know that someone on the board had stem cell therapy and it cured her RA, but it's not likely that anyone will get this unless they are an extreme case and happen to be in the right place at the right time.

Just wondered what other people thought on this one.    Any new drugs coming along which look fabulous??

Anna
No Anna - nothing I've seen coming down the pike inspires me with hope.  I'm sorry, but almost everything is a 'therapy'.

No, when the medical profession say's the cause is due to "an over active immune system", auto immune response.
This is a falls conclusion from falls premises. It's like their saying "We don't know what it is, bit this answer is quite convenient".

I've had two meds tell me I'll never get rid of RH to my face!!!!$%&*$$

This is obviously a symptom, not the cause.
From personal experience the disease is caused by a pathogen, something that is inside you, that is in your gut and in your blood system, it may be bacteria, something you consume, what ever.
But it is not you immune system.

When the meds drop the auto immune boloney we might get somewhere.

Start with these key words: Candida, food intolerance, sugar, celiac. You will be amazed at what you dig up.

These people below are part of the solution who have done amazing work from personal experience, but remember we won't have a consensus which leads to the answers until everyone (meds, naturopaths etc)  join hands:)

Dr John Mansfield

http://www.frot.co.nz/dietnet/resources/ediet_howto.htm
http://www.frot.co.nz/dietnet/reviews/mcferran01.htm

Erica White:

http://www.nutritionhelp.com/


Obviously there are countless others on the right track, but these two resources I found the most helpful. 1. Pathogen... yes I think this could be it.    However, I have a friend who tried the antibiotic protocol with disasterous results.... so I can't go there.
2.  Diet, gluten, etc.  All family are gluten and dairy intolerant we have been gluten and dairy free for about three years.   Diet helps but does it cure?  
Going vegan, dairy and gluten free will have a fantastic effect for any one with RA I believe, but have you ever tried to maintain one of these diets for a long, long, long, time ? v.difficult.
Anna
Hey Greeno - welcome and EXACTLY!  Hugs! Hi Pip! Thanks for the welcome! I'm really looking forward to contributing and learning from this forum.

Anna - Yes it is very difficult to stay on the diet, and I'm no expert at it, but we all know the alternative is not worth contemplating. When I did Dr John Mansfield's elimination diet it took about 6 months before I could get back into the water and go surfing again:) These days I use the diet to maintain some sanity, when I feel really good I can drink some wine, go out for meals etc, but after a while I need to return to the diet for a month or 2 or 3 (what ever it takes). Without the diet I might as well be stuffed like a moose.

I'm completely gluten free, and dairy free. I'll allow gluten inn on special occasions, but totally ban dairy.

I wouldn't try the antibiotic protocol since it doesn't fit in with my theories on the subject. As stated I believe the problem is caused by a Pathogen (most probably Candida), and antibiotics only make your body a happier environment for Candida.


I have been watching the Garven institute, they have something that completely cured the mice and it didn't come back, so it should be testing on regular people at the end of this year, then RA people in a few years.Hi Pip
Very severe gluten and dairy intolerances in  our house, no gluten or dairy ever passes over the door...  its hubby and daughter.   When we go out its picnics and packed lunches, never eat in restaurants EVER.  Because of them I have been completely gluten and dairy free for about 3 years.   By accident daughter drank a glass of juice last year which had been sweetened using a wheat derivative and passed out.  We have to be extremely careful.
No cross contamination either.
Also, but through choice, we never ever eat red meat (and I mean NEVER), just a little organic chicken or grilled fish.
Anna
im celiac. no gluten ever did the no dairy thing for awhile but i didnt notice a diff. I dont think it helps me joints at all its just my stomachI don't see much progress on this in the future. Even getting a diagnosis is like pulling teeth from a T-rex. Double that one for what should be ordinary care. I didn't have one-tenth of the aggravation getting something going for my lymphoma. All I have to do is mention my asthma and I get a fast response. Arthritis doesn't even get the time of day. It takes upwards of a week to get a return phone call from my GP's office.

Short of them stumbling over a cure, it will not happen. RA is small potatoes, OA is large potatoes and it's still nothing by comparison to cancer. Frankly there's no incentive to do any major research. I think if anything happens it will be because of a byproduct of other research probably in the cancer field.

Bubba
Thanks for the Garven institute thing.
Will do a bit of reading and like you keep watching.
Anna
I think there won't be a cure for RA until the medical profession accept that RA is a symptom and not a disease.  For example .  Imagine you had a runny nose and you went to the docs and they said 'Oh that's RN (runny nose) here, take this tablet or this injection or whatever".  Well, yeah that night work for one person but not for the next because whilst their runny nose might be caused by a cold, another persons might be hay fever, dust allergy, cat hair, sinus problems blah blah, so the RN (or runny nose is really just a symptom) RA in my opinion is really a symptom of something else.  In one person it might be a food allergy, or it may be hormonal or gene based or perhaps caused by a parasite or infection, each root cause bringing about the same symptoms and a I believe that the medical profession must consider that there are different root causes which must be treated in the individual rather than treating the symptom alone which would be a bit like giving someone a tissue to blow their nose all day or fusing someone's nostrils rather than figure that they were allergy to their cat.  Still, it's like they just don't get it and I really don't understand why they don't get it coz it's as plain as the nose on their face.  Maybe it doesn't pay as much to get it. Anna,

My mother has RA and had been on Cortisone for a number of years. It was hard to watch her suffering from this condition and the drugs were making her sick and her hair was also thinning and falling out as a side affect. I heard about a all natural product through a friend that had helped her mother. It was called Mums Rub (conveniently named :) I found out that I can order it online from www.mumsrub.com .

She used it for a week and the pain had gone. She is now weaning herself off the Cortisone and has made a miracle recovery. The doctor was amazed and so was I. Just wanted to share this with you and I hope it can help you to. All the best.
Hi luke,

does Mums Rub provide the ingredients, I just checked the website but no mention of ingredients. Can you get them if on the back of bottle, and post here. Very interested.

Thanks.

Greeno (and Flint and OK everybody else :-)

I'm thinking you're not taking this far enough back. 

Greeno - candida is a symptom of yet another pathogen exposure.  Start checking out mycoplasma.  In particular strep, c. pneumonia and m. fermantens (damn, you'd think I'd learn how to spell them by now).  What I think happens is the original pathogen (one or God Forbid, multiple co-infections) are able to take over the body as a result of hormone changes, stress, bad diet and possible recent infection and it's looking like recent research is showing it changes the body to make it more hospitable. 

I'm convinced of the 'leaky gut' aspects allowing the myco's to get out of the highly acidic nature of the stomach and intestines.  Once out, the hit the brain gut axis (HPA axis) and can change the natural PH of the body so it's more favorable to other pathogens - like candida.  Like we have maybe candida as a minor problem which gets AMPED on the disease onset.  So, yes, working with diet to handle candida works somewhat, but unless you remove the original instigator of the entire process - forget it - a cure isn't happening. Pip, why do you think it's easier to say the one than the other?  The key words are "no cure" not what the cause is.  Of course I'm not saying that no one, or even anyone, doesn't care what the cause is, but if my RD said it's an infection with no cure, I would do what I'm doing now.  I wouldn't be rioting because the root is an incurable infection rather than AI.Infection is curable. I'll riot with you, Pip, for the cure.

Pip, I misunderstood you.  I thought you said that AP was not a cure.

No - it's not a cure.  Right now it's a holding action.  My AP doc says about 10% can go into medicine free remission after a couple of years - but that only 10%.  Thanks GoGo - right now there is only two of us.  Now we'll look like we're dancing! "Riot For A Cure" would garner more press than "Walk For A Cure".   Should we start in Michigan?  Detroit has a long riot history, right? Doing our part to search for a cure..."I know it's down here somewhere."