I Guess It Wasn't The Salt After All | Arthritis Information

 

I am not a happy camper.  The pain is back today and there's no reason for it.  I guess I have to admit I've joined the rest of you who faithfully take their meds, try to do everything right, and still have problems.  Nearly a year later you'd think I'd "get it" but I can't.  After living my life with the occasional illness that is over and done with after time or medication, I still can't accept that this is forever and maybe will never be under total control.  I continue to get fooled by those days when I feel great and think, "OK, NOW it's under control, now I know what I have to keep doing to stay well and now my life will go back to relative normal."  I still can't accept that this is going to be my life and that I'm going to have a chronic condition that's not controlled no matter what I do. 

I have taken my meds for so long that it is just a normal part of my day.  For a long time I would forget but around midday I would be reminded.  Acceptance is such a huge part of getting better, or so I found.  At times when I have something strange going on, different pain, etc, my family will think it is RA related but you just get to know the true symptons.Cindyslou, thanks for your response.  I'm really good about taking my medication and will continue to as long as I think it's what I really need to get this under control.  Right now I'm just not convinced of that.  As we all know, this disease is so complex, it just makes it so hard to pin it down, and therefore, pinning down the right treatment is hard and so frustrating sometimes.  I want it to be like is used to be...diagnose the problem, take the medication and all will be well.  Sometimes it's not that simple with autoimmune diseases.  Just a thought Jesse~have you considered AP?So sorry you are involved in the RA crap shoot- it sucksKeep your chin up Jess. I know it gets frustrating....even after all these years it still gets frustrating to me as well. We all go through that. Thank you for your responses.  Linnc, I'm keeping AP in the back of my mind as an alternative.  I mentioned it at the beginning of my therapy and the RD was not receptive at all.  At some point I'm going to bring up the subject again, especially since he doesn't want to start me on the next round of drugs.  He feels at this point the benefits don't outweigh the risks.  I think the worst thing is, just not knowing for sure if this truly is an RA type issue or a cervical spine issue.  I know part of it is RA, but I'm not convinced it's the whole story and that I need this current medical therapy, since it's not doing what I think it should.  Or maybe this IS what it's supposed to be and I just haven't come to grips with it yet.  The search continues......  Sorry, to hear it, Jess. (((((((((((((((((((((((jesse)))))))))))))))))))))))