Anna's Cure Thread - part 2 | Arthritis Information

 

Pip!2008-04-17 17:13:57I think it would be good practice to test for Lyme's disease if anti tnf's don't work.  If continued joint pain, etc.  Sounds like it would save the patient money, the insurance company money with less stress and sometimes harmful incidents to the patient.  I would think the insurance co. would rather pay for a Lyme test and antibiotics  than years of dmards and anti tnfs.  LindyOk.. Correct me if I'm making incorrect assumptions. babs102008-04-17 18:20:26

My bad.  This just really freaked me out and I didn't explain myself.   Trying again. 

Pip, it doesn't matter where the cure comes from.  Like many of us have said, it could be a simple cure and inexpensive, but the road to the cure is very expensive. 

Thanks sweetie - let us know what you find out.  Thanks for the synopsis. I'm so darn busy these days I haven't been able to keep up on reading about new developments, so it's great to at least get an idea and a bookmark for future reference!gotcha Pip.. I totally get the RA/Lyme similarities....Thanks for explaining it.  Any dr who would deny us a Igenex test is being ridiculous.  RA treatments are very expensive and if discovery by a mere blood test of Lyme would prevent the need... Wouldnt' they all want to do that??From the Science Daily article (please note this is full spin mode):

"When the antibiotic treatments were completed, DNA analysis showed that small numbers of the Lyme disease-causing bacteria remained in the tissues of the antibiotic-treated mice. Ticks allowed to feed on these infected mice were also able to acquire and transmit the infectious bacteria. Curiously, despite the apparent viability of the bacteria, they could not be detected by standard laboratory cultures.

The findings support the theory that the bacteria remain viable and that some bacteria evade antibiotic treatment by taking refuge in collagen-rich tissues, skin, ligaments and tendons."

This study shows that Lyme bacteria is not detected by standard testing.  This study shows that current antibiotics do not completely wipe out the infectious bacteria and it remains in you (so maybe your body is not attacking itself, right?).  This study shows that mice with this condition can still spread disease.

You know, this isn't the first time it's crossed my mind that maybe all arthritis is Lyme's. Especially since it's been discovered that Lyme's disease can be transmitted by fleas and mosquitoes, and not just ticks as previously thought.

That would also explain the large sacle push by certain interests to deny the existance of lymes.

I'm really wanting to see that new documentary "Under Our Skin:the Untold Story of Lymes"
http://www.openeyepictures.com/underourskin/Lyme was discovered when a bunch of moms called the CDC because all their kids were being dx'd with JRA.  GO MOMS!!!!!! Well, it's odd, isn't it, that Lyme's can be so recognised as an infectious disease but RA can't, even though the symptoms are sometimes almost indistinguishable.

I have a good friend with Lymes who had multiple diagnosis (diagnosii?) before Lyme's, including MS. I hooked her up with a doctor I knew about from the Road Back. He has dozens of people's testimonies on RateMDs who say he literally saved their lives, and yet his license is being revoked because of how he treats Lyme's patients with long term antibiotics. It's crazy. And heartbreaking.

It just doesn't make any sense.

Those doctors that are denying entrenched Lyme's disease exists all have very close ties to pharmaceutical companies, who have powerful lobbyists at the federal level. It's just so mind-bogglingly evil. Don't they know that?
Suzanne2009-03-14 18:37:31Well, you don't have to look into it for too long or too deep to find dozens of stories like that.

To me that's a sign there's something valuable hidden at the end of the Lyme's rainbow.Pip, Fantastic info. Exactly what I was looking for..ThanksThanks 6t5 hi all i just wonderd what is lymes  i have not heard of it..
Boney

Lyme is an infection from a tick bite (usually) that can present like RA or the other auto-immune diseases.  It is curable by antibiotics - but not just 2 or 3 weeks.  The tests for it are junk so you have to go to a specialized lab.  Mainstream medicine is saying we're all 'auto-immune' yet more and more is proving to be 'infection.'

Wait a minute, calm down.

Here is a map showing where lyme is, most states don't have it.

http://www.cdc.gov/ncidod/dvbid/lyme/riskmap.htm

It is a completely different disease from RA.Anna - No need to keep scaring people. Lyme ticks need temperate climate, though the African lice sounds scary.

Here is a world map.

http://www.cdc.gov/ncidod/dvbid/lyme/who_cc/index.htm   


Yeah, Pip, stop scaring people with your, you know, reality and everything.

Seriously, though, I don't think giving people a heads up on what might be the source of their health woes is ever a bad thing, Anna. But as someone who doesn't like being challenged, I'm guessing you won't be lining up to see Under Our Skin: the Untold Story of Lyme Disease, an infectious new film about microbes, money and medicine. But that doesn't mean the rest of us can't have a discussion about it.

The fact is no one knows how widespread Lyme Disease is, and some doctors now believe that Lyme can be spread by mosquitoes and fleas as well as ticks.

What's interesting about Lyme is that it's a type of arthritis known to be caused by infection.

Some Lymies think its an STD too.  Who know?  All I do know is we need to be sure is what is going on in our bodies.  It's the only way we can heal.  I live in a Lyme endemic area. I truly beleive it is an Epidemic that is spreding. Perhaps it's always been around. Remember that for years many thought it was JRA or RA. On Long Island NY they had something called Long Island Knee. They thought it was a form of RA. The Deer Tick can carry all kinds of other transmitable diseases. The testing leaves a lot to be desired. If your body does not respond with an anti-body after the bite your test will be Negative. Remember the test is not to see if you have Lyme but to see if your body is reacting to the bite. There are so many False Negatives that even the CDC says diagnosis is based on Synptoms. The CDC requirements for a Positive test are from 1993, Crazy !!!. For example, if you get a Western Blot test, the results are shown as " bands " There are some very specific bands that can only be form a Lyme tick. The CDC requires that you need 5 of these bands to be positive. So you could have 4 and the test will say Negative. Most DR's don't know anything about Lyme. They will look no further into Lyme. Labs like Quest and Lab Corp are not noted for their Lyme testing. Here is another example of how the CDC gets it wrong. Say you have a test and have 4 bands show. The fifth band is band 31, Band 31 is a very Lyme specific band. They will not include it since a few years back they actually made the Lymerix vaccine ( it's been taken off the market ) from it. They will not include it since they fear someone may have taken the vaccine years ago. So 4 bands that are Lyme specific and band 31 and your DR gets a NEGATIVE result mailed to him. Some Labs actually list ALL the bands when you get the test back and a good DR can make a jugement form it. Igenix in California is one.MDL another. Any way you look at it it's scary. This week in my local paper there was an article about how Lyme can Live on even after treatment. People have died from it. If your DR says OK we will do an Elisa test you can agree but also get a Western Blot test done. Oh and half the people bitten never get the Bulls Eye rash Dr's speak of. I have seen how debilitating this can be first hand. You are the second person that's posted in the last week about MDL.  Can you send me a link for my files?  I swear I thought they went out of business.  Maybe that was Great Smokies Lab or something like that.  Pip, Mdlab.com.....Please post your Igenix results. Also ck out Lymenet.org for info on tests etc...6t5 -