Just wanted some feedback on it.My daughter is starting it tom.She is 19 and has had fms/cfs since she was 12.Been a very long road for her.She recently was also dx. with endometriosis and a food allergy to seafood so now she has to carry around an epi-pen.She has been very depressed.I wish I had a milion dollars and I would take my family so far away from here and start a new.
In the state of NC the lottery was just past.Maybe I will get my chance to win that millions.I can dream til then.
Love,
Sheila
Just thought I would share my daughters exsperince with provigle.
Dr. told her since she was taking amytriptlyn(sp?) that she should take only half at night,she takes 100 mg. every night.He said that the privigel will make the amytriptyln stronger.Well, boy did it ever.She could barely wake up yesterday from taking the provigel that morning before.It is weird a med. that is suppose to give you energy and also have the ooposite affect on you if you take amytriptlyn.We through the sample box away.No more provigel for her.Poor thing.She is in a major flare due to surgery ashe had 2 weeks ago.Hadn't seen her this bad in years.She cries everyday.We go see her pscyh, soon and the reheumy.Hope to get her some help.
Has anyone has any success with provigel.i have heard alot of good things about it it's just not for Amber.
Love all,
Sheila
I am so glad the it helps you Kathy.I jhave heard great things about it.I wished it would have helped with Amber.
Can you explain to me neuropathic pain?I'm sure it has to due with the nerves but never read of it in fibro. information.
Sheila
I'm beginning to think that the pain of FMS is from inflammed nerves but what do I know? My heads a little foggy right now so I'll get back to you when I'm clearer about neuropathic pain but for me its a burning pain in my shoulder arms hands feet legs and front of my head that I thought was from fibro. It makes the RA pain much worse. I don't know for sure that its the provigil but I haven't had it since I started taking the provigil. Before that I had it just about all the time, some of the time it was worse than at other times. Sometimes I don't know whether to call it pain or fatigue but the nervous system has a role in perpetuating it and makin it worse.