Ok... I feel better now. Ok so why can't swim team be now. I can make a few of them if they had them now, but they have not even started up for this year.
I guess it is a good thing that daughter might not get to do swim team this year. It will greatly help me to not feel so guilty for not being able to attend her swim meets.
hey joonie
they need to tweak your remicade. i had a good 4 years on it. maybe you need it more frequently. maybe you need a higher dose. you will make a swim meet :-) but i am telling you do not stress about it because then your body goes bananas at least mine does. w.w.
WW is right, you need to either have an increase in dose or infusions closer together. Your RD needs to know how you're feeling. Even though I'm in clinical remission I still have some swelling. I don't think it goes away entirely. The best thing is I have wrinkled fingers for the first time in 10 years. You'll get there Joonie, it just takes time and tweaking of the meds. LindyI'm sorry you're still going through all this Joonie. You aren't at the end of your options yet, hang in there, Biscuit.Aww Joonie...why so much pain and misery for you? Why can't they just get that cocktail right and let you have SOME painfree days?
I'll keep you in my prayers.
Have you talked to your RD? There is alot of room with the remicade dosage. Call the doc up, tell him how you feel. Don't sugar coat it. You deserve to feel better!!I second grammakathy's sentiments 100%I am not on Remicade anymore. My RD is thinking of switching me off Remicade to Orencia because of my newly developed high blood pressure.
I am now 2 weeks late for what would have been my 2nd real dose of Remicade, it has been postponed until my next RD appointment May 5th. That is when my RD will make her decision on if I should stay on Remicade or be switched to orencia. If I get switched she said I had to wait 8 weeks before I could start Orencia.
The Remicade worked so well for me last infusion. Just the that RD is disappointed about my stroke, my new HBP and rapid pulse.
I guess it is just my time to be disappointed. I was not disappointed when RD told me I will probably be took off the Remicade. But I was doing ok RA wise then, and now I am not. Time for disappointment to set in.
Me I am hoping to stay on the Remicade. But my mommy, my hubby and everyone else thinks I should not take it anymore. They just do not understand the "freedom" Remicade gave me for those few weeks it was working.
I actually felt like doing something and could do somethings I love to do. Like my cards I made. But my hands hurt more now and they do not cooperate like they were and cannot bend most of my fingers because of swelling. My elbows are swelled again, so I am having a hard time even putting my glaases on my face. Lately I have not even been wearing my glasses because I just cannot reach that close to my face to put them on.
You know something is wrong when people look at you like you like "aww... poor you". They had not been looking at me like that for a while now, but the looks are starting again.
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