Whatcha been up to? hey joonie!! morning... lol .. night owl here..
was just thinking the same thing, I love daily doings..
and whatcha up to.
Thurs, was the first, and my caregiver came over , it was sooo pretty out.. our first of the month, crazy shopping day, where i go to tons of stores, first stop 99 cents, they had hamburger helpers for 99 cents! and Hip Loreal makeup , that sells for 10 bucks reg.. and is great stuff.. to get it for 99 cents, is just WOW!!
I was just really enjoying shopping there.. my provider, asked if she could leave me there and just run home for a few minutes and i was like nooooooo, i want to go for a DRIVE!!!! she thought that was soo funny, but seriously
driving is what relaxes me and i love driving thru the neighborhoods, the plants are all blooming, soo vibrant, purple, reddish purple, yellow, its just gorgeous, plus the mtns are there.. SD is just beautiful.. its a fascinating, fun city, where there are always things and places to do.. you can't get bored here... unless you don't have a car.... like me!! Lol
anyway, i had spents hrs on the nets, finding the free / cheap deals... like Cvs.. i did 4 separate transactions and got 3 FREE
Aquafresh toothpaste and 8 more ECB bucks, to spend..
weeee..
have to figure out, how much i saved!!
by the time, we got to our last place, the grocery, i was ready for the electric chair.. the wheelchair, LOL..
so that was thurs and man, i've been crashed since then!!!
plus, weirdly feeling better... Ra is strange..
you know the hardest times, for me, to post, is when i feel better, bc then i feel kinda guilty, plus to be honest, i get scared when i read all the stuff... that "could" happen.. but I do care and try and support people as much as possible..
I like this board.. and going out shopping again Tues.. Yay!!
ohh ugh, my caregiver Agency, my caseworke,is coming over, for a meeting this wk.. i soo need a couple more hrs and always worried, i'll get decreased...
ohh my darlin baby, needs to go to the vet and get her itchy/ allergy shots..
I'm just hoping i can stay better... its weird, i'm able to totally block out how bad my bad pain days are... and I hope others feel better too.. and i have no idea why i'm feeling better?.. i'm definately not totally pain free, but much better then before, ya know?
Have you ever, sat outside, in a nice serene place, i was sitting on my porch, looking thru the pine trees, to the swimming pool and beyond that our mtn, in the background.. and thinking what if i just entered this body.. and thought how lucky, i am to live in such a great place, be on disability.. it helps for me to find the good in life and to give back gratitude and thanks. Plus, i have such a great caregiver!! She rocks!
blessings and joys to all~ wishing you painfree or less pain each day...
Whispered2008-05-04 02:13:43Not much mate, howzabout you? Love Janie
Hi whispered, I really enjoyed reading your post, I can imagine you enjoying yourself and I am so pleased you have a caregiver!!! I have a motorised scooter, do you have one, it has absolutely changed my life for the better, I love it and so does my hubby, as it makes me feel independent and I can shop for small things like bread and milk to save him having to do it always. My two boys love it too, we go on rides together, them on their bikes and we do donuts in the empty car parks, and play following the leader on our bikes doing silly things together!!! I hope you can get one if you need one. I couldn't afford one and my GP wrote on my behalf to the local disability charity shop, all the money they make they put back into the disabled community, magic people!!! Hope to read some more posts soon, love JAnie, love to you too Joonie, you always keep me entertained and I don't thank you enough. God Bless you both and your families. XX
[QUOTE=joonie]
So... how the heck are ya?
here have a seat, some sweet tea, or a latte and some creamcheese brownies
sit and have a natter.. we like to hear your adventures, past, present, future, any will do!! :D
don't be shy!!
hi whispered ... a southern accent in the uk goes..
ooooohhh arrrrrrr oooohhhh arrrrrrr.. do you have this accent.
Boney...
and they have cream teas and fudge...
I don't have any good news, so i will leave it up to the rest of you.
BUT.... I love the iced tea mmmm i live in the south and drink that a ton :)
Hello Ya'll!
Well, boney we know what you are up... a bunch of no good.
Whispered ... Go to know you do have some good days! It might help if you did post on a good day. It kinda helps some to see that there will not always be bad days, and that there is some good days. I know probably should take my own advice, but if I feel good I am no where near a computer and probably 65 miles away walking thru a Target or Wal-Mart.
Janie - Glad to be entertaining for you. But boney seems to be pretty entertaining!
Awww... Bubbagump! Much hugs to ya! You sure are having a rough time. I feel bad to post about mine, and then turn around and read some of your or some others and feel like mine is not that bad... at least I respond to the meds, but they just won't give them to me!
Much hugs & prayers your way. Oh Joonie thanks for the sweet words. I was doing good for about a month, actually doing great, but i was on high doses of pred, and they still want me off it even though it helps and hasn't damaged me. Drives me bonkers.
Please don't feel bad about your pains or complaining about them. Even though some may have more troubles, it doesn't mean your troubles aren't important too.
My husband said he feels bad when he pulls a muscle or stubs a toe because of what i go through, but i told him that it doesn't mean his doesn't hurt.
So feel the pain, vent all you want cuz even a papercut can be horribly painful. Every pain counts as much as another.
god bless and i wish they would give you some drugs to help.
They did give me something that helped it was the Remicade. Are you still on Remicade? If you are off, is it because of financial problems?
There are companies that accept almost every single person into their program and get biologics for them. And if they make too much money but not enough for the drug, they pay partial payments and that company pays the rest. RA doctors know of all the companies.
I qualified for Hemura, but due to female health problems, i can never take a biologic cuz of infections.
they wanted me on Hem because it came from humans, i have multiple chemical sensitivity, so they are afraid to give me something chemically made.
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