Need EMERGENCY HELP | Arthritis Information

Share
 

Guys - help me.  I've got family in the hospital in a lot of pain.  She's got Ulcerative Colitis and they wanted to 'verify' the Alocor caused the last flare so gave it to her again - and she's bleeding bad.  MORONS.  She can't keep any food down and they can't get a vein - they're reduced to using one in her feet. 

 
What's that shunt like thing they use when they need to put something in to stay for a while?  Pic?  Pict?  Anybody know what I'm talking about?
 
Also - when your kidneys are failing, I was under the impression that they gave glutathione pushes to help your body recover.  Somebody here corrected me and said it was something else - something that started with an N.  Anybody have any idea what I'm talking about.
 
Hugs,
 
Pip
What is alocor?

PICC lines are the semi-permanent IV lines.

Was it N-acetyl cysteine (mucomyst)?  Though I thought that was used for liver issues, not kidney....

Wish I could help more!  Prayers your way!
PICC line, central line.

Something else is a Porta-Cath.

I've heard a story about the N thing, can't remember enough to help, sorry.  Used for OD , too, I think?

Keep us posted, Pip.  Take care.
All I have for you are prayers- I'm not up on the medical things.Ok - thanks - calling home - I think the two picc things are the most improtant.  She refused to go to the Great U so we're working with a lot less - not that much less - but she's a fighter.  I think she's been berating doctors and nurses!  I'm soooo proud!
 
Love you guys!
 
Pip
Oh dear---I don't know any thing but I feel distressed for you. I'll be thinking of you and sending good vibes your way. I hope it all resolves okay.

Keep the faith, Pip.
Prayers your way.
Pip, PICC lines are peripherally inserted, centrally placed lines. Can be placed in radiology or by specialists. They are heparinized to ensure patency. They still run a risk of infection and it is best to keep the line running on an IV pump as the more times you access the port, the more opportunity for infection to get in. They are nice because blood can be drawn from these lines so make sure they place a big enough catheter so blood can be drawn. Suzanne mentioned porta caths. These are very nice as once they are not being used, they are deaccessed and stay under the skin so the risk of infection is not there. Good luck. I hope she gets better soon. hi pip sorry dont know anything about  Ulcerative Colitis
just wanted to send ..well wishes to your family member..

Boney

Deleted to next post, wrong button, me bad - more huggles Pip, they have you on the job and all our prayers. 

justsaynoemore2008-05-09 12:04:32[QUOTE=justsaynoemore]Hugs ~~ Cathy PS Did the morons get their answer?[/QUOTE] Pip I am late here, but i would also say a port!   God speed your in my thoughts and prayer'sWhen I was hospitalized last fall, I woke up black and blue from a zillion tries at an IV line.  They had one actually sewn into my femoral artery in the crack of my leg.  I guess they are very prone to infection and they took it out after a few days.  Than, they used an ultrasound machine to place a pick-line in my upper arm.  It was threaded all the way through to my chest area.  But for some reason, they said they couldn't draw blood from that one.  I think it had something to do with the fact they were pumping blood thinners through it and they had to take blood from a vein farther away or something to that effect.  It took a good three months for all the bruises to go away!

I hope they get her settled and she starts feeling better soon!

Love and hugs
Hi Pip,
 
My thoughts and prayers are with you...keep us posted.  Hiking_gal
Hi Pip, someone said that it was a med beginning with 'n' used for overdoses, is it Naltrexone?  Sorry this is late, I hope she is improving by now - God Bless, love Janie. Hey Pip......I don't know anything about all of this, but I wanted to tell you I'll be praying.  Keep us posted.The hospital sent her home - they don't treat 14 year olds.  She is improving now that the immunosuppressent is getting out of her system.  And she's getting her appitite back so her mom is shoving probiotics in her.  LOL 
 
Oddly, in my research it appears that NAC IS glutathione, just a more stable form of it.  And I found this cool study where this researcher, in decidedly researcher fashion, basically says 'this is some powerful stuff' - it stops cancer in its tracks in petrie dishes.
 
Hugs,
 
Pip
 
http://www.eurojgh.com/pt/re/ejgh/abstract.00042737-200709000-00006.htm;jsessionid=Lk4T2XZrksqhcygLhrY7qz3kmVjSWsgxV1TQx82GRJ1fvtXt9wB1!-341159882!181195629!8091!-1
 
http://www.smajournalonline.com/pt/re/smj/abstract.00007611-200511000-00012.htm;jsessionid=Lk3M2zMhRTB2jCJJqFlNsc8W2MF3q6Vw1Z8Mhnn8WGKGTggCn15v!-341159882!181195629!8091!-1
NAC (also called n-acetylcysteine, acetylcysteine, and Mucomyst) is not glutathione:

http://en.wikipedia.org/wiki/N-acetylcysteine
http://en.wikipedia.org/wiki/Glutathione

Additionally, I found an article about the use of mucomyst (NAC) to protect the kidneys prior to contrast dye usage:

http://www.uth.tmc.edu/radiology/vascular/mucomyst.html

Pippy, why haven't you emailed me about this!?!??!

Do so! Pronto! I have much to share!! *hugs*
Hope that the young lady is doing better, and hugs and prayers her (and your) way.  I was going to say portacath as well, but that's all been taken care of already.  (And I thought that down here I was supposed to be ahead of the rest of the world.  Hey Kiwi - How ya doing?  I saw you're back!  WooHooo!
 
Katie - I thought I did!  Will email!
 
Hugs,
 
Pip
P.S.  She's doing better!
Hi Pip! Don't have anything to say, I just wanted to show support.
Copyright ArthritisInsight.com