(the more fun stuff is at the bottom, if you want to skip drs reports, lol)
hi guys, I've had a couple people write and ask if i was ok.
(which i really appreciate :) )
When i go out w/ my provider, for like 4-6 hrs... then the next 3-5 days, i spend Sleeping 15-18 hrs a day.. not all at once!!
So I've just been dead..hit the wall.. or think ahhh i'll just take a nap, go to sleep at 3pm and wake up at Midnight!
The Exhaustion has been pretty severe.
Rhem visit: I kept him busy, lol, I'm getting xrays and blood work, in preparation for another RITUXAN Infusion ($,000 bucks.. eek.. luckily medicaid/cal pay!).. That will happen later this summer, don't see him again until July.middle of July vacation... back "home" no family/ relatives, but some good friends and its my soul home
I finally talked him into letting me get a Lifetime Handicapp
Parking Hanger.. yay.. also got B12 shot and cortisone shot.
Plus, lol.. yep more.. I'm pretty sure I have sleep apnea, so I'm going to have to go to a clinic. I really don't want to have people watch me sleep, but I think its pretty bad and the Dr. says it can be very serious.. i mean, for goodness sake , i wake my ownself up!! lol
lets see, ohhh yeah, also got the fun diagnosis, that i have a tiny bit of Fibro.
Good news, is he is also signing up, for me to get a scooter!!
Yay!!! Can't wait.. have to go to the stores, find what I like, then call my nurse and have her deal, w/ the paperwork and beaurcrazys.
The scooters, aren't like motorcyles, more like the electric wheelchairs you see at the market, but much nicer..
When my friend and i were in the shop looking, I also noticed some nice recliners.. hmmmmmmm... think in a couple months, i'll try for that!! lol.
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Also bit of ... hmm depression.. or the birthday blues.. turning the big 0 birthday (not saying which, isn't an O enough? lol)
in about 10 days (June 3rd)
I'm sooo celebrating tho and making it last.. for months.. LOL
.. 2 vacations .. one my sister is paying for me, to visit, later in june.
I'm going to rent a car probably a couple days after my birthday, on the wkend, its much cheaper and just go out and drive alllllllllll over!! Go to the ocean, maybe the desert too.
Get a massage and lots of food freebies and just Relax and enjoy!!!
Some days, i'll admit its rough to come to the forums, bc, seriously i get scared.. when i read about some of the things people are going thru.. and other days, i'm too exhausted and may just post one thing and then Nap! lol
I'm still very much into couponing and freebies.. i saved about
88 bucks at Cvs this past wk, not too bad!!
There are a lot of good things going on... I though i was comfortable, w/ just having the "basics", but I want more....
Its very frustrating, when you're soo tired, that even if Brad Pitt came by, you couldn't get out of bed, or care.. and I do have have goals / dreams, i want to achieve.. so i'm continuing fighting for that.. and to get better, I guess and accept..
my pretty ordinary basic life...and i have 2 beautiful cats, that i adore, good friends, a place to vent, coupons!!..
So life is how you look at it.. and ..man the cortisone shot helped LMAO!!
peace~ and joy~ and Serenity~