Orencia w/o Methotrexate | Arthritis Information

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Hi,

 
For those of you on Orencia (I just had third infusion yesterday) are any of you taking it without Methotrexate?  I want to be free of Methotrexate in the worst way!   I have several RA nodules, and I think they are getting  worse since I started the Mtx in January plus it makes me feel so exhausted.  My RA doctor wanted me to take Arava instead (because of  nodule risk) but I talked him into the Mtx.  I've just heard too much about hair loss on the Arava.  Now I'm thinking of quiting the Mtx (7.5 mg) and just taking Aleve along with the Orencia.  At this point, I'm questioning everything and everyone.
 
Thanks for listening ---- Sharon
Hi Sharon,
 
I am on Orencia with no Methotrexate.  I do however take 5 mg prednisone daily.  This has worked  well for me.  I had to stop taking Methotrexate because of stomach problems.
 
Good luck with everything
 
 
Melody
I take Orencia and Mtx. RD has never mentioned me going off it. Didn't really think it was an option. Would be nice though...My doc took me off mtx long ago when my liver enzymes went up, didn't even give me a chance to get them down with supplements. I tried Arava but the side effects were horrific for me.  I've been on Imuran (azathioprine) for a long time now without problems...maybe that's an option for you?
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