I turned MTX down for now but will have to go there if these dont work. But just HOW will they know they are working if I continue to feel like this?? My R factor wasnt real high at all...there are still some mysteries for me to solve with the help of you all.
Lyn
I'm relatively new myself- only diagnosed 7 months ago. I had a very severe start and had to be on a high dose of prednisone with the MTX before I got relief- it took a little over 2 months. I can tell the MTX is working because I have tapered down 33 mgs of prednisone and I still feel good for the most part. Not that I feel like my pre RA self but I can't tell you the last time I had to take a pain reliever.
You guys are scaring me! LOL!!
I JUST started 4mg/day of Medrol (which I hear is also prednisone) . The dr. said it's a very low dose but he's trying to get rid of the malaise I feel every night. Also increased my Plaquenil. I tell you what though, I am so scared to gain any weight! For over 10 years I was 45 pounds overweight then went on a "divorce diet" which caused me to lose 30 pounds! It's very hard for me to lose weight. Now I hear over and over how Prednisone causes round face and weight gain. I dont really have a choice though, I'd rather feel better and stay as healthy as I can even if it means going on Prednisone!
How Fast does Prednisone work? This is my 3rd day on it now.
Hi Klynn, 4mg. of Pred. is extremely low dose and most likely you won't have any side effects at all. On such a low dose it may take you several days to see any results. It may or may not help with the malaise. Fatigue is part of the disease and it's probably the number 1 complaint and extremely hard to get rid of unless you go into clinical remission. LindyThanks Lindy! He called it malaise, but what I feel is like the flu symptoms. Just feel awful every night the longer I stay up past dinner time. Achy, chills, really soar all over just want to cry. Anyways, we will see if this helps. I am still fairly new to all this and when I see all the meds everyone is taking at such high dosages it still blows me away.kylnn-
Congrats on your weight loss! As long as you are not on high doses for a prolonged period don't even worry about it. If by chance you have to- try not to give in to your appetite. I think had I tried harder in the beginning I would not have stretched out my stomach making room for more. I should have stayed with my old eating habits instead of making a pig of myself. I have to say though I never had such a tough time in all my life to say no to myself. It was like I was just compelled to eat. Sometimes I had to go to bed just to stop eating!
wanttobe: I COMPLETELY understand! i was on high mg of antidepressants and a b/c pill at that time, one of those or both made me feel like i just couldnt' satisfy my hunger... I remember eating all the time....and yes, I also remember making myself go to bed at times to try and stop from eating. Jeeze, the things we go through!
You Know guys, I have started remicade. On the questionare it askes if you are depressed. I keep trying to convince myself that I am not. The fatigue thing is really getting to me. I am on a small amount of cymbalta I can't take to much of it . I don't go all the way off of it because I don't want to deal with the head shocks. I really don't want to deal with any thing getting dressed and going some where is just to much to bare. The proablem is it I am depressed or this Maylaise thing. I have so much to be grateful for. I am going to San Francisco for some what of a vaction(daughter is going for H.P camp) I can't get excited I feel ver over whelmed. Trie to talk to husband he just dosn't get it. He say's he does when I look into his eyes I know he dosn't. Sorry I just had to get this out. Wannab I didn't mean to hy-jack your thread.....peanut- don't you ever worry about hi-jacking my thread. I love to share. I just don't feel that way!
I think of depression (my definition) as being totally unable to cope with every day life to the point where you don't care for your hygeine, can't go to work, take care of your family etc.
I think you have a lot of anxiety which adds to your fatigue and malaise.
OK Dr. Wannabe is done now- sorry
I suffer from these things on occasion too. I start to add things on my plate until I get so busy I can't think about it anymore and it goes away.
I don't recommend this method.
Oh and I forgot- for some reason I do the same thing and turn a positive event into something I stress over. If I am going on vacation I worry something will happen to the kids while I'm away. (No one is under 16) If I take them with me I worry that one of them will throw up on the plane or something. Really stupid things that really don't matter...
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