Hi guys, I am sorry it took me so long to post this but I am utterly exhausted!
Liam is doing ok at present, still sore in spine, heels and knees. The Paediatrician rheumy was great, very thorough, addressed Liam and us instead of like a lot of Drs bypassing the child.
The RD's opinion was that there is not enough inflammation at present to make a firm diagnosis, which I am happy about as you can imagine, hubby and I don't want poor Liam to have this like any parent would be.
The plan of action is to see a sports physio for an individual training programme for Liam to try and get his muscles and joints moving properly again, slow return to school, 3 afternoons only for 2 weeks, then 5 afternoons for 2 weeks, then normal again, if all goes well, if however there are more fevers, flares in joints and raised blood markers then more tests need to be done. He felt that as Liams pain is so widespread, tender and sore all over basically, that it may even be fibromyalgia. I don't agree but who am I to say? My GP today agreed with me saying that as far as shes concerned you can't get eye inflammation from FM!
Anyway, we asked for his respected opinion and will do as he asks, and pray to God that he is right about autoimmune arthritis maybe not being the problem. However we are going to monitor him closely and my GP wants bloods done any time Liam has high fevers which is approx 3 x a week. Rashes and swellings are to be reported also.
I am going to try and exercise with Liam even if it hurts to show him how important it is to do it. Thankyou everybody for your care and concern and your continued prayers if you don't mind. HUgs Janie. He also diagnosed scoliosis which is in both sides of our families!
Janie - well, good news and bad news, and still uncertainty. I know you will do what's right and I hope Liam's fevers break soon. CathyJanie, I'm glad he's doing ok right now and hope things go well with the exercising, for both of you. I'm not so sure it's fibro either, but eye problems can come with fibro, like sensitivity, dryness, and pain. It's not such a stretch to think this irritation could trigger inflammation. Here's some additional info:
http://fibromyalgia.ncf.ca/dseye.htmHang in there Janie! I will definately continue to keep you and Liam in my nightly prayers. I'm glad the doctor was sensitive enough to address him when speaking. Was he glad to hear he could return to school? Might sound like a strange question about a kid but I know I was happy to hear I could return to work because it made me feel like I was getting better. (And who the heck wants to go to work?)Thankyou so much JSNM, you always answer my posts, I appreciate it. Inner Glow, thankyou so much for the info, very interesting. WanttobeRA free, I appreciate your prayers and kind thoughts. Believe it or not he doesn't want to go back to school, but he has always just wanted to be at home with mum. So I have to be very careful with him as he sometimes tries it on. Regards Janie.xx
Janie, I so feel for you with this process about Liam.
Having suffered so much yourself as I have, the likelihood of Liam with RA would be heartbreaking and devastating to both you and Gary.
My RD told me that child RA almost always presents with swelling, after that I stopped worrying so much about Neve. Whether that is true or not, I don't know but I would tie myself in knots if she complained of a sore anything.
How I have felt is this, and you probably feel similar, is that if she had RA I would want her to get dxed quickly and not go through all the suffering I have.
I hope they find some answers and a definite dx for Liam soon.
Janie,
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