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Hello to all here, to be honest with you I wish I was not, but having been diagnosed with R/A on July 7th I need to speak to others with the same problem.
My problems started in April of this year,, one afternoon I felt a pain in my left shoulder, it got worse durin gth evening to the point where I could not raise my arm over my head.
Thant night I went to sleep and the next day i was fine. A few days later I got a pain in my left knee again by evening it was worse, I got out of i the middle of the night and decided to sit in my lazyboy chair, by 4:am I could not get up, I tried everything but as soon as I moved my left leg I would get this severe pain which ran from above my knee around the outside to just below the knee.
I had to call out for my wife, she did out hear me ( sound sleeper) so I ended up calling her cell which was on the charger nest to her bed, I asked if she could help me up as I could not get up, after about 1/2 hour and many attempts I finally gritted my teeth and she pulled me up the pain was such that i almost passed out! Now I tried to walk and could not walk, I finally managed to shuffle my legs a few inches at a time until I go to the bath room once there I took some aspirin and went back to bed so I would be near my wife if i needed her again.
I had to sleep on my back (something I never do) with my legs straight out, and the slightest movement on just about any part of my body caused this severe pain to re occur. Again by morning I was fine but scared , "what the H---" was that all about?
My wife suggested I make an appointment with the Doctor, but I shrugged it off, saying" I must have pulled a muscle or something".
With a few very minor flare up all was good until the end of April first of May My hands started to swell and pain shot up my wrist's, my ankles also swelled up as well as my knees.
I decided to take Aleve and it did help somewhat.
About middle of May I decided to see the doctor, (I had spoken to my Granddaughter pediatrician and he said "just a guess but sounds like Psudo Gout to me" ) after looking up Psudo Gout I was sure that is what is was time had gone by and it was now late June, the pain and swelling had parked it self in my hands, wrists knees and ankles and was not going away even after taking tons of Aleve (like 2 tabs every 2 hours), so I made an appointment with the Doctor , he said he doubted it was Psudo Gout and wanted to run a bunch of blood work, ok, ( mind you I have no insurance) the bill came to 0.00 plus dollars, but he gave me a discount so it only cost a little over 0.00, I almost fell thru the floor at that cost!
When the results came back on July 7th it was RA!
He gave me a shot of cortisone in my arm saying that would give me some relief  (it didn't) and a RX for  Naproxen  5oomg to be taken twice a day.
After a few days of wlaking, around in a fog,  feeling like a zombie, I decided to stop the med.
I have to go back to the doctor on August 8th for a follow up. I had told the doctor i did not want to take steroids  because of the side effects.
I don't know what to do, every thing I read discourages  me more, most every med, the side effects are worse then the problem.
I  am back to taking the Aleve, and aspirin  until i see him again, but they seem to be ineffective now.
I have had to give up my lazyboy because once in it I can't get back up without help and the pain in my knees is blinding!
My wrists and fingers are in constant pain and both my thumbs are to the point of being worthless, I can not open a soda bottle, to pour a cup of coffee takes 2 hands, I sleep about an hour  before the the pain wakes me up, and then it takes a while to get back to sleep.
Question at this point? maybe someone is still reading this LOL does heat or cold help with the joint swelling and pain? I can't seem to find a happy medium with either?
I should add that I am 63 year old Male, and have always been in perfect health except for headaches which I take aspirin. Now I read that aspirin and or other over the counter meds might have triggered this, Is that true?
I read elsewhere that a change in diet might help, but no diet was provided just suggested.
I joined here in hopes of getting some information and peer support and would appreciate any and all responses.
I'm sorry to be so long winded, maybe the fact that the pain is worse now cut me short or I might have rambled on longer.
Please all I want is some relief from this pain, constant pain!!!



Welcome slohand 2 sorry you have to be here!

 
I'm no expert having only had RA for a little over half a year now but what helped get me right was methotrexate and prednisone. Yes they have side effects (possibly) but they definitely brought RELIEF.
For me heat always brings more relief that cold but everyone is different.
Hope you find something that works quickly and puts you into remission.
Thank you for your response, I will discuss those meds wit my Doctor! and if he prescribes them I hoe and pray they will do for me what they have done for you!

Don't be discouraged if it's not an immediate relief- it sometimes takes awhile to kick in. Best of luck!

If i could get it to subside for one day just to get some relief i could wait out the meds to take effect I think, lol Ask for some pain meds too- you need to get over the hump. I found once I got the pain to "bearable" levels I started to heal faster.
In the beginning I did a lot of hot showers- did some range of motion exercises in there too. I found standing at the sink running hot water on my hands and wrists helped too. As for not being able to hole things like a cup etc..I bought something called Handeze. They are like spandex gloves with no fingers. They have ace bandages that wrap around your wrist and the support really helps. Also Icy Hot Gel is a Godsend! Get the kind that has an applicator like a shoe shine kit!
 
feel better!
I will try the Handeze. thanks, the icyhot I tired didn't seem to help at all, but it was no the gel, so maybe I'll have better luck with the Gel thanks

A friend suggested copper bracelets, do they work?  that I haven't tried- but I think I heard it's an old wives tale

Welcome to the board, slohands2. I am sorry you have RA.

Heat helps my pain & swelling to a certain degree. Ice makes mine much worse.
 
I take a lot of hot showers when I am flaring. Helps ease some of the stiffness in the less painful body parts.
 
Hope to see ya around!
Ok yes I do take hot showers too, Just before going to bed and it does seem to help.
I guess I should be reading more , please excuse me for not , I will read all infor here, but just very frustrated with the level of pain and need I don't know something, I guess support from guys like you!
I read that Vit.D  (sunlight ) help and that people that don't get enough tend to get RA, I fould that interesting, so I spent 1/2 hour in the sun today and will keep it up, so I guess I have a great tan if nothing else lol.
I did spend much of the day inside and did not get out much, but I guess that holds true for most of us unless you work outside.
It is my intention to spend lots of time here , learning at this point, and maybe someday  being in a position to be able to give advice to someone like me now!
Thanks for baring with me!
Maybe ask for pain meds to help with the pain.
 
Aleve and asprine do not help my pain one bit, and that was before I got worse.
Welcome  - my RA started out somewhat similar to yours about 2 years ago.  It would hit one joint or side at a time and then be gone.  No pattern to it so I just figured I over-did something.  Then, my feet started in and gradually went to both hands/wrists.   Things can get better once you find your combination of meds, so don't despair.   Until then, just do what you can to minimize any extra stress on your hands.   My first purchase was an electric can opener - couldn't open cans w/o it.   My husband became my bottle opener as well.   Now, I can do these on my own, but still ask him to help out somedays - just to keep him in practice.  
 
The medications do have side effects, but you have to weigh the benefit you gain from keeping RA from progressing.   You'll hear from others as well  that the goal is to stop the damage and unfortunately that usually means taking medications on a long-term basis.   I never took much more than an aspirin a couple of times/year, so having to become someone who has mulitple meds was a tough transition, but well worth it.     Read what you can about RA and treatments, ask questions and educate yourself about this fun roller-coaster of a ride. 
 
Take care
Cathy
Hello and welcome slohand2. Like the others have mentioned I am sorry you have to be here but you will get heaps of info and understanding so fire away!
 
I was DX'ed with RA just 3 months ago and like you, it hit me like a ton of bricks and pretty much out of the blue. Could not walk, drive car etc but now with the meds I have listed at bottom of this post, I am doing well. Will be tapering off the Prednisone in a couple of months time and we shall see how I go then.
Have to mention that I didn't want to go with steroids either but in the short term at least, they have me mobile and painfree. Thats worth it to me!!
 
I cant get over how much it costs for meds and seeing RDs etc in the States. I can see my Rheumy within 2 weeks privately and pay 0 or see him at the Hospital within 6 weeks for free. My meds maybe cost each prescription, some are free. Long may this situation last... but Im not holding my breath.
 
Hang in there and visit often, I am still mining for info and am constantly amazed at how much I have learnt from this site. Plus...they are a great bunch of people!
 
Best of luck.....Lyn
Thanks for the well wishes, This is a Journey that I will not be taking alone the extra burden on my wife although she says it ok, I know it bothers her. But she is being very helpful!
I will continue to read everyone's post, and appreciate any help you guys can be and any suggestions no matter how small with regard to making things easier.
Once again Thank  You!
Hi Slo_hand2, like you I was so fit and healthy until 4years ago when I had been out dancing up a storm (I am a rock and roll dancer & teacher). The next morning I woke and couldn't move my neck, I thought it was just stiff from all the head movement.  Then the pain just went from one area to the next I was like an old women.  When I was finally dx I went into denial and still now I keep hoping for a miracle.  When I was first put on MTX the doc forgot to tell me it takes 6 weeks to kick in, I can remember trying to get up the stairs with so much difficulty and then doc put me on Prednisone. wow what a difference, I was sprinting up the stairs within a few hours.  Unfortunately it wasn't long lived, I am now having orencia and hope that will help.  I do think diet plays a big role with inflamation, it has with me you just have to learn to be strict with it. 
Try not to be discourage, I know that is a hard call, but I think since I have joined this forum, I feel more positive and you will to!, they are a great bunch of guys with a lot of knowledge.
I know some might cringe at what I am about to say , but here goes,
First off I am 90% better today then yesterday! Why you might ask?
I told my wife what everyone was saying about Prednisone, and lo-n-behold she says" I have some that the doctor gave me a  while back, (yes I know not rx'd for me ) it was like a starter card or sample card, directions start with 2 pills with breakfast, 1 at lunch , 1 at dinner, and 2 at bedtime etc.

Ok so this was afternoon so I took one with dinner, and then 2 at bedtime, and this morning I am here to say I am 90% better with only a slight tinge of dull pain in the wrists and knees WOW!!! 

I never thought such a little pill could do so much over night to reduce swelling and relieve pain.
I will be going back to the doctor in  a few weeks( nothing earlier available)  and Yes I know he will jump all over me for using someone else's meds, but she was not going to use them because she is a diabetic and the doctor even told her it would shoot her blood sugar way up, so I have some relief thanks in part to the wonderful people here!
I know this is only a temp fix  but just to have a few moments of relief  is wonderful!
I am hoping that is will last all day, and I will take these sparingly for now but WOW!!!
I'm sorry I'm just so excited LOL! I hear ya and I'm glad you got relief! Do you think if you called your doctor and owned up what you did and let them know just what kind of relief you got they would give you a temporary prescrip of your very own? Why should you have to suffer just because he doesn't have time in his schedule?that is true and I have called but only a message did not get to talk with him, I am awaiting a call this afternoon

Hi Slo-hand, prednisone was like a miracle drug for me too, within 24 hrs nearly all pain was gone, I couldn't believe it. My doctor prescribed 5mg twice a day, along with Methotrexate, I stayed on the prednisone about 2 months and then tapered off slowly, you do not want to quit all at once if you have been taking it more than a couple weeks.  The prednisone relieved the pain until the MTX kicked in.  I have been off pred for 2 months now and still no pain so it looks like MTX is working.  Prednisone is a very powerful drug and it can be a god-send but it must be "handled with care".   I agree with WTBRAF that your doctor would surely give you your own Rx for it if you tell him how well it's working for you. 
As for the side effects, not everyone gets them, there are many people (myself included) who are taking one or more of the DMARDS with no side effects at all.  It may sound on paper like the drugs are worse than the disease but without them you will continue to incur damage to your joints. My initial work-up included x-rays of hands and feet, has your doctor mentioned that? Are you seeing a rheumatologist or your family doctor?
Best wishes,
Andrea
Oh, you took the Medrol pak! Those are some good stuff! They are used to help you get over a flare if you are not on prednisone already.
 
For me good effects (decrease in symptoms) from it last a while on it and maybe up to a week after I have stopped taking it and other times it wears off when I get down to days 3 thru 1.
 
Glad you are feeling better. Sounded like you needed some relief.
 C/P from your post
My initial work-up included x-rays of hands and feet, has your doctor mentioned that? Are you seeing a rheumatologist or your family doctor?
So far just a family doctor, and he has not recommended a rheumatologist yet, and no x-rays were not even spoken about , but this again was the second visit to the doctor about the pain and swelling, I'm sure he will get around to it in time.
As for the relief  yes the pred was a God send, I'm sure you understand the pain i was enduring, you have to experience it first hand it's not something someone can say " know how you feel"
Still waiting to hear from the dr's office I guess it will be the last of the day before I hear anything!
TY Joonie it was such a wonderful surprise to wake up 90% pain free I am going to get my doctor to get me a script prior to my next visit on Aug/8th.
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