Enbrel | Arthritis Information

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Hi,

I am copying and pasting my post reply from the Introduce yourself forum.

Thanks Hula and Roxy. I just went and joined the other board. The Enbrel really is a wonder drug. I did not know that I would get such fast relief. I swear from my first injection things were looking brighter. I have a friend that has RA and Lupus and we both, by coincidence have the same Rheumatologist and she is on Enbrel also. She is on numerous other heavy drugs as you are and she said after the 4th injection she was starting to really feel the difference. I'm glad you are feeling the relief. I hope that it will soon last longer. When speaking with the pharmaceutical company that delivers my prescription they said that it can take up to several months to get the full benefits by building up in the system.

Roxy...does the injection give you much pain? Or sting a lot? I have to spray a numbing agent on the area because it stings so bad. But it is all over in less than 20 seconds for me. I do have a fairly large red circle on the area for several days after. But no pain or itching or burning. I will share this with the doctor next visit in October. Where do you inject? I am going for the thigh area.

Hula...How is the Humira working for you? Do you have RA? Has it been aggressive? I work at a church as the Parish Secretary and Bookkeeper and the youth director's mother has RA and he told me she was just suffering so much and as soon as she started on the Humira he saw his mother come alive again. I hope your results are just as good.

I am going to go watch the rest of a movie. I will check in tomorrow.

Have a good night Hula and Roxy and everyone.

RozBuds

PA...enbrel, mobic, ibuprofin 800mg, elidel.

RozBuds38619.867962963

Hi Rozbuds. 

My RA is aggressive /severe and no, I have not felt any improvement yet with the humira but my Rheumy said may take a month, so I am thinking positive.  Course, I have plenty joint damage so not really sure how it will effect me pain wise.  All so confuzing it is.

But I am so happy you and Roxy are doing well on Enbrel.  Maybe I should have tried that instead.  Or are they very different?  Perhaps Lovie will drop by to answer that one. 

Enjoy your movie!

 

  Rozbud; Try the stomach area, I never have red marks there and don't even feel it!!!  You may want to leave the enbrel out for at least 30 minutes before giving yourself the shot, this takes the sting out of the shot.   meme

Thanks for the tip meme. I have been thinking about the tummy area but haven't got the nerve yet. I do take it out and set the timer for a half hour and get everything set up in the bathroom. Best light in the house. It's like a ritual every Thursday night. Then spray and spray the area. I do some chanting also. I have some anxiety always before but I think that is normal. Don't you? I'm also curious if the red patch could be from the spray I use to numb the site.

Bed Time...

Goodnight everyone. Sleep Well and Sweet Dreams.

 

Hehehe Hula.  I feel you over my shoulder


 I was scared silly about giving myself shots.

It is such a non issue now. I used to faint at finger tip blood tests..Her is what works for me.

First thing give yourself time, this isn't a facial, but it is something you are doing for you. treat it like a gift. fix a cup of coffee, go someplace quiet, play calming music.

Make sure the syringe is WARM. your body is 98.6... room temp will be a shock. I rest the syringe across the top of my coffee mug. Then just before I inject I roll it between my palms until I can't feel it, since it and my palms are the same temp..

Inject in your tummy. I can't begin to imagine using my thigh. There are more nerve endings there and far less lose skin/flab. Ice the area of your tummy you will inject. Get it REALLY cold. I have an ice pack in a light tshirt, and leave it there for a good long time. You want that area numb. Wipe your tummy with the alcohol pad and let it dry.. Completely.

Pinch up a roll of flab about the size of your thumb and finger together, check the syringe, and gently push the plunger in a little to get the air out of the syringe..

Hold the syringe like you are throwing a dart, and slide the point into the skin you have pinched up. The ice will have numbed it so much you won't feel the needle slide in.

Release the flab, and shift your fingers on the needle holding it between the index and middle finger, with the thumb on the plunger.

SLOWLY depress the plunger..I depress to a chant..."My toes won't hurt, my ankles won't hurt, my knees won't hurt, my hips won't hurt, my fingers won't hurt, my wrists won't hurt, my thumbs won't hurt, my elbows won't hurt, my shoulders won't hurt, my jaw won't hurt...this shot stings, but far less than my body hurts."

You should be finished then, remove the syringe, place the ice pack back on for maybe 30 seconds, and dispose of the needle...now finish your coffee.

 

Hope this helps.  I used Enbrel the 1 X week shot, and now use Humira. I feel zero difference in the medication as it goes in. I truly believe the ice and WARMING the medication make all the difference.


Rozbud, Kathy has a real good list there, give it a chane in the stomach, I DON'T FEEL A THING IN THE STOMACH NOR DO I GET RED SPOTS!!!!  Pinch a piece of flab and poke it with the needle I go from underneath with the needle but then I have  a FAT BELLY

Basically they give you 2x the medicine in a thicker suspension to slow the progress into your system. The thicker suspension requires a thicker needle. I felt the needle more and the medication burned as it went in. I often had to stop and then start again it hurt so bad.

Also, I felt like it was a "work week" not a calendar week dose. About 5 days in I'd be hurting.

Deborah

Welcome Roz~

I take Humira; not Enbrel but they are very simluar. I've been doing the shots since December and in May I started doing it weekly verses bi-weekly which is the standard Humira dose.

Still to this day I can't quite get use to it. My husband does it for me and although I hate it...I know it's nessesary. It has changed my life dramaticlly...although it took several months for me to get the full effect from it. Some people get great results right away, but for me it was much more gradual.

Where can you buy this numbing spray? My doctors office uses it; but I might want to get some too. Although to be honest it's not the needle that hurts me...it's when the medication is injected in and I'm not sure the spray would help with that at all. Will it?

Again, Welcome to AI. We're glad you're here.

Kathy your instructions are awesome!!! i start Humira on wednesday and i read the intructions they gave me and watched the cheesy dvd they gave me also but your insturctions have been the best yet

shannon

Shannon I take it weekly now. I did it bi-weekly for about 6 months before switching. It would wear off about 7 or 8 days into it and then I'd spend the next 6 or 7 days counting the days. It works well for me. I hate the injections....and I do still have some problems; but all in all I've been real happy with it.Guess it did post Shannon...this board makes me crazy!!the numbing spray is so neat if it's the same one my rd uses when he gives me shots in the joint..I don't even feel the shot when he uses that spray.  I've found that with my humira shots, some hurt more than others. This last time I really warmed up the injection by rolling it in my hands...it helped a lot more. It stings for awhile afterwards tho. The last time was not as bad as the previous times.My husband also gives me the shots..I don't think I'll EVER be able to do it on my own

Can we buy this spray...and don't you agree Mags; it's when the medicine goes in that it hurts...not the needle going in. Would the spray help this?

My doctor uses it when I get a shot in the joint with cortisone...but it still hurts like hell!! (Way worse than Humira) It's not the needle that bothers me then either...it what they squirt inTo me the needle isn't what hurts either, it's the medication. I don't know if this would help us much or not...I'm thinking not too much .  Then again there was a post where someone got dull needles...if we had a dull needle then this would help..maybe best to spray first in case?

Hi Lovie,

Thank you for the welcome. Everyone is so nice and helpful and caring here. I have Psoriatic Arthritis and even though my condition seems far less in the degree of severity than the rest here it was coming on like gang busters. In less than a year my life completely changed. Depression was coming on too. Fortunately it seems to be selective with the joints and was hitting the left side of my body more than the right side. My thumb on my right hand and wrist and knee seemed affected. All the rest is my left side from shoulder, hands and fingers and my wrists in both hands lost all use. Had to keep them wrapped. My feet and ankles and toes were so stiff in the morning I would stumble out of bed. The Knees... Sat down on the potty one day and couldn't get up for the longest time. I'm so fortunate to have a good RD. She got me on the Enbrel almost immediately and I am one of the lucky ones that had immediate relief. I couldn't believe it. Thursday night will be my 5th injection. I even think it is starting to have some affect on the Psoriasis Plaque. That crust stuff is a drag. My best friend calls me Crusty (not much longer) and I call her "Hurry Up" because she takes forever.

Now, for the spray. It is by prescription and it is called Ethyl Chloride Med. Spray Geb. I get it at Costco. Cost is about .00. But you have to be quick. No waiting around after you spray because it wears off fast.

Let me know if you get some and how it works for you.

Have a good night!!!

RozBuds

[QUOTE=Lovie]

Welcome Roz~

I take Humira; not Enbrel but they are very simluar. I've been doing the shots since December and in May I started doing it weekly verses bi-weekly which is the standard Humira dose.

Still to this day I can't quite get use to it. My husband does it for me and although I hate it...I know it's nessesary. It has changed my life dramaticlly...although it took several months for me to get the full effect from it. Some people get great results right away, but for me it was much more gradual.

Where can you buy this numbing spray? My doctors office uses it; but I might want to get some too. Although to be honest it's not the needle that hurts me...it's when the medication is injected in and I'm not sure the spray would help with that at all. Will it?

Again, Welcome to AI. We're glad you're here.

[/QUOTE] RCG research is conducting interviews with Psoratic Arthritis patients who are currently using  Enbrel & Humira for their condition.

This is a 90 minute phone interview.
Each participant receives 0.00

Please email Yale @ rollinpics@aol.com
Name:
Age:
PHONE:
Meds Currently taking for PSA:
Meds in PAST

thanks much!
Yale Russcol
Coordinator PSA Interviews
877-433-4093  toll free

I was diagnosed with PSA 7  years ago at age 56. Celebrex and metho was my usual medication. For flareups the doc put me on predisone for about 4 weeks and all subsidized. However, my recent flareup was both on my elbow and index finger and now the doc wants me to try the TRF. I am confused between taking enebral, humira or remicade?

With remicade I am concerned that a large dose of medicine is put into the system all at one each 8 weeks. However, with the other two self-injections, they are smaller doses. Also, i am concerned about the muscle problems and the risk of MS. But I guess, everthing has a risk

I have been quite lucky in some respects. Each time there was a flareup, then there is not another for at least one or two years. I have had both my posterial tibial tendons replaced on my legs (marathon running or arthritis?) and also a tendon replacement on my left thumb. When the thumb swelled up, then the blame moved from running to PSA.

I am very active. Ran marathons up to end 1995 and since then long distance biker and swimmer. The exercise is the best medication that I have.

Any views.

Merrorun


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