FIRST RESULTS AVAILABLE FOR INTERNATIONAL SURVEY. | Arthritis Information

OVERVIEW

Thank you for taking the time to participate in this survey. There is a tremendous amount of anecdotal data available regarding PMR, but apparently very little systemic data collection to categorize various aspects of the disease. Almost every article describing PMR says the same thing:

Little or no incidence below age 50
More women than men suffer from this disease
Average age of onset is 70
Disease is self-limiting lasting anywhere between 1-4 years
Most common symptoms are bi-lateral shoulder and hip/leg pain
Successful treatment of symptoms with Prednisone

The purpose of this survey is to collect a standard set of information regarding PMR patients that could be used as a starting point for people who are new to the disease.

The survey is simple and should only take about 15 minutes or less to complete. When all answers are completed, simply click the Submit button at the bottom of the page.

Please be assured that your responses will be completely anonymous.

SEEING THE RESULTS

When a sufficient number of responses have been received, a variety of reports will be generated from these responses. These reports will be available for anyone to view at the following location:

http://www.quantisurve.com/pmr/reports.htm

REQUESTING RAW SURVEY DATA

In addition to the available on-line reports mentioned above, we will also make available the survey response data in "raw" format, i.e. exactly as entered by the survey responders.

This format will consist of either 1 or 3 csv (comma separated values) files. The reason for the csv is that this is a well known export format that many applications (spreadsheets, databases, etc.) can import. The reason for 3 files is that Microsoft Excel, until quite recently had a limit of 256 columns. The results are exported with one row for each response and one column for each question (each checkbox is a separate question). The survey therefore has 327 separate questions, exceeding Microsoft Excel's limit for most older versions. The results are split up as follows:

Main results: all questions except for taper and family history
Taper results
Family history results

The first column in each file is a response identifier, which will make it easier to link responses from each of the three files. The second column is the response date. The responses are in the order of when they were submitted. The remaining columns are the actual result values.

If you have the ability to process zip files, the csv file(s) will sent in a single zip file as an email attachment.

To request the survey data, click on the link below and fill in the information requested in the body of the email:

Survey Data Request'); //--> Survey Data Request

Mrs. UK:

The mailto link you copied from the survey page did not transfer correctly in the post. Although it will bring up the mail client, it mangles the body of the email. The link in the survey page was coded to prevent spammers from harvesting the email address, and I guess it did not copy well given the forum's post editing capabilities.

For anyone who clicks on the link, the following information is required in order to receive the data:

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