I like being a stay-at-home-mom, but some times, it gets "old", especially during the summer, but I would feel better about being home all the time, if I could actually have "something" to show for it. I use to tell hubby, I done my job... which was keeping the kids alive while he was at work
I am sleepy. Just wanted to reply. I understand what you are saying. Seems like a plan everyone should have... to live life to the fullest, but for some of us the ongoing battle of trying to get this disease under control, it is just not possible until then.
Ok... this does not really have anything to do with your friends, but it is related to the situation. I keep thinking that maybe me & my siblings were being selfish in wanting my mom to go thru all this ordeal she is going thru. Because I know she done it for us. It was slefish of us to expect her to be in all this pain and have all these problems just to stay with us years longer. It really makes me feel bad to see her like she has been the last month, because she just looks so misrable and helpless and all that pain and problems and not knowing if she is going to die still, when she could have just lived out her life without all this she is going thru now, just to possibly have her life end short anyways. But she was in pain the whole time. It just seems selfish to me. I feel bad about expecting her to stay and be in pain just so I can have her around and talk to.
Ok... I am going to bed now. I feel better now that I got that all off my chest!
One of my best friend's mom's just died of cancer, in her 50's. She had been battling it for years. She was just an inspiration. She was a teacher and just so into celebrating life and grabbing each day and taking advantage of it. She came down to my college graduation and made it the most memorable event--having her around just made any party better by about 20 fold. It's tragic that she is gone but at her visitation there was so much joy, pictures everywhere. It was definitely the same kind of wake up call for me. Joonie, in her obituary, they had a part about how she fought so hard because of her love for her grandkids. I'm sure your mom feels the same way. JR- It is so hard to remember to be thankful for all the little things- which are really the most important things-when life is going along smoothly. When I was so sick with RA in the beginning I remembered...and it was a good way to be. I worried so much less when I was so sick because I didn't take anything for granted. Lo and behold since I've been doing much better I lost touch with being grateful again. I get aggravated with myself. I'll keep your friends in my prayers for strength and healing.
Joonie- when my mom had a series of heart attacks she couldn't speak because she was on a respirator but she was writing notes DNR! My father told the nurses- I don't care what she says! You bring her back no matter what if something happens! I cried to her Mom, I'm pregnant don't you want to live to see your grandson? She said NO. They had to put her in a medically induced coma and I whispered in her ear- Mom if you need to go it's OK. But she lived- and now it is 20 years later and she's glad to be here. She had to go through a rough time but it was worth it. In fact I just talked to her yesterday and told her about your sugar sandwich. She said Oh my- I haven't thought of one of those since I was 8 years old! We used to eat them because we never could afford candy! She turns 80 in Sept. Bet she eats one!
Jasmine....you are very right. Every day I tell myself that I have had 55 years of a good life free of any major health problems. Last week a young friend died of cancer. She was 28 yrs old and had 3 children, the youngest 4 yrs old. Mitch visited Dr Robert Nagourney in California a few months ago to receive some treatment from him ( an amazing man). Sadly it was too late.
Sure does put my problem into perspective. And thanks for a timely reminder of that today as I have been wallowing in self pity!
{{{{Hugs}}}} to everyone.......Lyn
Good Morning Jas, unfortunately, we all have these reminders of our own destiny and of those we love. Sometimes we don't stop and listen but you did Jas, and you're so right. It could be much worse and we need to enjoy and be thankful for each aspect of our lives.
I've learned to live in the present. The past is finished and the future is just that. Because of RA and it's complications my DH and I retired early and are living our dreams. It seems like we've always worked towards this goal.
I'm truly sorry about your friends. My best friend is 54 years old and had breast cancer. She's just finished a full year of chemo and radiation. She's just about the strongest woman I know and she inspires me each and every day. We're in the midst of planning a 5 month trip with her and her husband to Mexico and South America. She's not letting cancer stop her, so why should I allow RA to stop me?
Start on your bucketlist now, don't wait. Lindy
Joonie, I can tell how much you love your mother by your posts. And I suspect the reason she has fought so hard is because she loves you so much and wants to see your face. There i no reason for you to feel like youve been selfish, hon, dont think like that. so sorry about your friends, Jas..
we all need a little reminder of what's good in life every once in awhile.......
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