Legs too weak to walk scared | Arthritis Information

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Long story but medvac car broke down yesterday and I didnt get to doctor's office til 2 hrs. late, than had to wait two more hours to see PA. In tears and agony when I went in. I forgot to bring pain meds as I thought I would not be gone long. Then I had to wait two hours for a ride home. By then I had a migraine and legs were so weak, like wet noodles, could not walk at all, even with walker or cane. Had to be carried to the medical transport. I had to cover my eyes the whole time while I was being transported. I had to be carried in the house. I had to pee in a bowl where they left me. Called my sis in law and she came down.   After several percocet and a couple valium it wwas not quite as bad.    Kelsey and my sis in law had to carry me to bed. My aide came this morning and migraine came back bad. My aide found my migraine med that I took, 3 percocet and valium. It only got worse. Still could not walk. My aide looked at me and one eye had tiny pupil and the other large pupil so she called an ambulance. At the hospital,at first they thought I had another stroke but because it was not bilateral they decided I had a cluster migraine which they said could cause the unequal pupils. They gave me a shot for migraine. They sent me home. Remember I only have state insurance. No MRIs like my stroke when I had good insurance.   I still have a bad headache, not quite migraine, but my legs do not work at all - AT ALL. I cannot move them. I know I stood on them too long yesterday but I have never not been able to use them at all. I cannot lift a foot sitting in my recliner. I have feeling in them and they ache but this is scarey. I was released from hospital so I do not know what is up. Have your legs ever been so weak that you cannot move them at all. It is scarey. Which is probably contributing to my headache not going away. Should I be scared?roxy2008-08-08 18:57:37oMGoodness, roxy!

 
Of course that is scarey.... what did your PA say?
 
I would be concerned.. that kind of pain is scarey..
 
I hope all gets better quickly....... 
Oh Roxy,
My eye are tearing up just thinking about you. I had 3 strokes 8 years ago, and I still remember the horrible migraines. Some lasted for over a week. And to have all this AND arthritis!
I hope the doctors will be able to figure out how to give you the best help.
May you recover quickly and get the use of your legs back.
 I'll keep you in my prayers!
Roxy,
 
That is really scary, I'm so sorry.  It seems that they should have been very concerned that your pupils are uneven.  It does not sound to me like you should have been discharged.
Have you called your Doc?  I really think you should be back to the hospital.  At the very least page your Doc asap and let him/her guide you.
Roxy, I think you need to go back to the hospital A.S.A.P. (as soon as possible). That doesn't sound good.
Please keep us posted.
Seek medical attention, call an ambulance to take you!
I know this sounds ridiculous but I am sick of hospitals. I do not have a doctor, I cannot find one to take my insurance so I have a physician asst. I cannot stand but at least he gives me some scripts. It is a long story but I was banned from a clinic that actually employs sixty doctors. I don't really like to talk about it but long story short, my ex husband drilled a hole in the bottom of my safe that I could not lift. Finally my aide figured it out and because I was afraid of pain AND withdrawals I called and told them what happened. I have not lived with my ex in a year, I asked him to leave after that and he went to rehab but I will never trust him again. That is already TMI. Anyway, I do not like how I am treated at the hospital, like a low life because I am on state insurance and the noise and bright lights makes my headache much worse. I am getting a bit more muscle strength and walked to bathroom with my walker. The good news is I get my wheelchair on Tues. I cannot use it on my own as I need an electric one but at least my aide will be able to take me. I cannot wait to go to a park. So for tonight, my pupils are equal, my headache is not as bad, and I have very little but some muscle strength in legs.

I was really wondering if any one of you have lost all muscle strength in your legs? I do appreciate all the concern but for tonight I will rely on my prayers and I am thinking maybe after a nights rest I will get some strength back.

So many of you are so kind and I know some think I am looking for a pity party but I swear I am not. I still do not know anyone else with RA and you know how it is - you wonder if other RAers have experienced what you are experiencing. One thing for sure is I have to get my sh*t together and quit smoking. I started when my daughter moved in with me and I know it is not a good excuse but when I try to quit, every time I flare I go screw it and smoke.

My faith has gotten so much stronger the last few months and I have someone from my church visit me every week. I have never been to church as I do not have an aide on Sundays but my friend brings me cds of the sermon and singing. Maybe now that I am getting the wheelchair, I can get someone to take me to church.

I have never been religious but always prayed and believed in God - All because of my wonderment with nature. Anyway, I go to Unity - they believe God is all good and does not punish people from other cultures that are not Christian. I love Unity but that is enough about religion.

Foot in mouth - I Seem to hit all the taboos on AI - politics, religion, and self indulgence. OOPSroxy2008-08-08 21:44:49Pam, The doctor said cluster migraines can cause uneven pupils but thank you for your expertise and concern. Anaudlife, thank you for the prayers, no tears, if you read the board, we could all shed tears every day for others worse off,   You are so young and beautiful, cannot imagine you having all those strokes. Now that is scarey. I am very scared of another stroke. You are very brave.   Thanks Babs but I am feeling like I am going to be ok and Cin Dee, the ambulance ride was horrible, my vein rolled and somehow the medic hit something that was a real bleeder and can you imagine a migraine with lights, sirens, and speeding around corners. PURE HELL. So all the concern and support is appreciated but I am better. Thank you

PUPILS LOOK EQUAL AND FEELING BETTER.   
 
Sorry to hear you still are doing so bad. Do you think the weak muscle feeling could be Fibro?
 
I have been having a lot of weakness in my right leg, since I had that TIA, but was told it was fibro. Then was told pinched nerve or nerve damage. Heck... it could be all the above, plus RA LOL!
 
My right leg, when the inflammation and RA are not controlled, it will get really weak to the point that I cannot lift my leg without assistance of my hands. I can try to use my leg muscles to lift it all I want, but sometimes I get it raised a few inches and other times, it is like my leg is dead and I have to use my hands to lift it up.
 
Since being on the pred flare taper, it has not done it again until wednsday, I am now at my normal pred dose 10mg. So... it was bound to start doing that crap again.
 
I hate it when I sit on the bed and then turn to get my feet in the bed and I cannot lift my right leg enough to get it on the bed, or it just hangs off the side of the bed while I TRY to make it move, but then hubby hates to see me struggle with it and he will lift it up onto the bed for me. I am in real bad shape if I ever go pee thru the night LOL! I have actually woke him up to help me get my right leg in the bed. Pretty pathetic, I think.
 
I guess keep and eye on your pupils and hope the migraines go away. I Have fibro induced migraines, but I did not even know they were migraines and argued with my RD that they were not migraines I was having Roxy; I'm sorry to hear things have been so very difficult for you. I'm happy to hear that your faith is growing. I don't go to Church either, but I have a very strong faith. I don't believe you have to go to Church to know and love Christ. I like to listen to Joel Osteen. He doesn't give your traditional sermen. He speaks of positive thinking....imaging and energy. Practical Christianity is how I think of it and it's helped me to grow in my faith very much.
 
He is on TV two or three times a day on Sundays as well as the internet.
http://www.lakewood.cc/Pages/index.aspx
That's the link to Lake Wood Church in TX. CHeck it out if you have time. It's pretty neat and I think you'd like it very much. I'm on their email list and they send daily emails. Sometimes I don't read them....but it's nnice to get in my mailbox everyday to remind me to stay strong.
 
I'd have that SOB husband of yours arrested if he stepped foot on your property again. I know at times you think you need him but he's been nothing but trouble for you and he'll never be a strong enough man to take care of you. He only makes things harder for you. I know that's difficult to do. I know you're heart broken over the situation; but over time it will get easier.
 
Hang in there.
Roxy-
I'm glad to hear your pupils are doing better. Yeah for symmetry and equality! I was wondering what caused your stroke. Mine was caused by a a syndrome my sister and I have called protein-C deficiency, it causes our blood to be a lot thicker than the average person and I need to be on high levels of blood thinners just to keep mine therapeutic.

I'm really interested in the cause of yours.

I can relate to the smoking thing. Even though I haven't had cigarette in 9 years, not a day, sometimes hour goes by that I don't crave one, sometimes I feel like I'm going out of my mind for one! Especially when I'm stressed out. The biggest reason why I don't start again is not because it's bad for me, or my children, the list goes on.... but I want to be able to keep saying "I haven't had a smoke in 9 years!"  Crazy, but at least it's kept me going!

Has your ex been successful in rehab? I don't blame you for not trusting him. Trust is earned and once it's broken, takes triple the effort to gain it back. I hope he has enough integrity to take ownership of what he's done to you.

I hope you have a better day today, even better tomorrow, and get to that park as soon as you get your new chair!!
Joonie; Who knows if it is my fibro but could be. Sounds like similar symptomsas your leg except I cannot get to bathroom . I cannot sleep with my migraines. I had one last migraine pill (free sample) and took it in the middle of the night. I pray my insurance will pay for a script.

Audlife - my stroke. It was one of the times I kicked my hubby out - I went to to park while he was packing and I took my weimeraners to park. They got rambuctious and knocked me over good. I was already upset. OK TMI then came home - I am crying - hubby still packing - and I had to go. You know how constipated you can get on pain pills. Well, I think I tried too long and hard. I don't know what exactly it was except stressand strain. My husband left and I started hearing ringing and chain sounds in my ears. My stepson called ambulance. I looked real bad. Long story short - MRI - I had a stroke.

Lovie - My hubby will not be back.

Weak but better today. Fingers sore so I think I am done for the day. Oh geez.  Why oh why do you always have to go that extra mile to talk about your nasty elimination fetishes?

News flash - they don't treat you poorly at the hospital because of your insurance.  They do it because you're a disgusting pain in the ass.
WTH? I'm not sure who you are....but that was totally un-called for. We have endured Roxy and her BS fairy tales for years. Sad thing is there are always fools to fall for it and feed into her insanity. She lends nothing to this forum and it' users. She is a troll. I'm not going to get into all this crap....Roxy is well aware that many here (Honestly; I've been amoung them sadly) have little tolerance for her "TMI" but the poor woman is having a horrible time. She's just looking for a little kindness.
 
Obviously if you don't want to listen to any of Roxy's "fairly tales" just don't click on any of the post she starts. It's as simple as that.
 
I see no reason to kick the woman while she's down. That's just cruel and although I don't want to fight with folks like you that hide behind different screen names just to be mean; I wouldn't feel right ignoring it.
 
Grow up!
[QUOTE=Lovie]WTH? I'm not sure who you are....but that was totally un-called for. [/QUOTE]
 
 
I totally agree Lovie. Henrietta, that is really rude of you . I thought this forum was a place to come when you are hurting and to get support not to beat someone up because they hurt alot.
I guess in the long run it really does not matter what you write because Roxi is getting the support that she needs.And she always will.Prayers for you.  Hope things get better.  You said your ex was in rehab.  Drugs or alcohol? Al-Anon is support for those affected by these.  Can be helpful.
 
Jan
Roxy- so sorry you are so ill. Prayers going up for healing.
 
I did have that muscle weakness during my onset. I could not sit up or stand unassisted. Mine was caused by 2 weeks of 0 sleep and 12 hr. uncontrolled pain cycles with off the charts levels of pain and inadequate pain meds from RD #1. As soon as I was given sleeping pills and got a few nights under my belt and oxycontin for the pain within a couple of weeks I was stronger.
 
It is very scary- hope it passes quickly for you.
[QUOTE=Henrietta] News flash - they don't treat you poorly at the hospital because of your insurance.
[/QUOTE]



Actually, you are wrong about that Henrietta. Take a look at the two women who recently died, one on the floor of an ER in California while the janitors swept around her body. The other more recently...can't remember where but she died of a blood clot in the waiting room and it was an hour before someone approached the dead body and decided to do something about it. Were these women uninsured? Underinsured? Probably indigents. So, don't say you don't get treated poorly because of insurance....or lack of it. You do. I happen to work in a great place that does not do that but not everywhere is like here.

Oh, and don't come to this thread and spew your nastiness on Roxy. You are not welcome here. lorster2008-08-09 13:48:51Henrietta- I cannot imagine the kind of person that can make such evil spirited malicious accusations about a person you do not even know. By the way, bowel movements, taking a dump, a sh*t, pooping - are all parts of all people's lives and especially people on pain pills. Why it was pertinent to this conversation was the doctor at the hospital told me that you can actually cause a stroke by straining too hard without isloating only the rectal muscles instead of scrinching your face and head and putting a strain on your brain as you push. It can cause blood vessels to burst. Ask a doctor. I am sure you are not familiar with this horrible physical neccessity of life by all but you but some of us actually have to contend with constipation from pain killers. I am sorry for anyone this offends but I find it ridiculous. It is just part of life for all animals. I also do not drink a cup of tea with my pinky held out from the cup..

PS Please ignore the meds at the bottom of page as they are totally different. That was when I had insurance. My only RA med is prednisone now and Lyrica for the Fibro.roxy2008-08-09 14:14:28Jan, I do Al A Non on the computer and read its books. I will always love my husband and believe he has a disease - drinking mainly but he likes opiates. Anyway, he has been in rehab four times and every time I welcomed him back with open arms and was very supportive. He still began drinking. I was certain this time he had it after eight months but drank on the plane on his way here so Ilove him but the relationship is toxic for me.

PS Thank you for support and especially those that made me feel better that they had had similar muscle weakness. It was very scarey that I had to be carried and my legs just dragged on the ground. Good news is my muscle strength is back and Henrietta - I can now get to the bathroom on my own.

Also, I had a migraine up to the middle of the night last night but Thank you God - which I do use prayer - I only have a slight headache now and Kelsey and I are about to watch the Spiderwich Chronicles.

Lorster, I was able to get a unique perspective on how you are treated according to insurance. I was on one of the best medical plans out there. I was treated like a queen. Now I am treated with minimal effort and next to no testing or respect when I go. I cannot get a doctor and my several hospital experiences, with exceptions from some nurses, have been demeaning experiences with me leaving never knowing what to do or have any clear cut plan how to resolve health issues. I am never asked to follow up when I was ALWAYS asked to follow up with the good insurance. So there are no absolutes but there is a huge disparity in medical care. I pray when I get my Medicaire in October it will improve but I do not know.

I will say a prayer for you Henrietta. The anger you have in your heart will manifest itself in your life. People can change and a loving positive attitude toward people and life is what it is all about. Try being kind to someone today. You will be surprised how much YOU benefit by it.roxy2008-08-09 14:33:26Well... it is true that your insurance does play a big role in how doctors treat you. I have to go to a medicaid dr, even though I have private insurance. I would say my medicaid Dr kinda lacks in helping me to find out my problems. I go to him because of not being able to pay co-pays and because I like his nurse practicioner. She is pretty good and listens and spends a lot of time with you. As for him... he seems to keep it all in his mind and written in your file. Most times when I see him I feel like I left without an explaination for my problems, because he just gives brief statements and not much detail, like his nurse practioner.
 
I mean look how look it took before he decided he was going to refer me to a cardiologist for my rapid pulse problem. I guess he wanted to fix it himself, since I am on medicaid. OH and what about my 24hr holter monitor tests I had done? I have not heard anything about the 2nd one yet and that was over a month ago. The results from the first holter monitor back in march I did not get until May, I believe.
 
Not saying he is a bad doctor, he does help and try to fix, but he has a protocol he has to go by for medicaid to pay for it. He is always looking at the treatment from the medicaid point of view, even though I have BC/BS, too.
 
Much hugs Roxy. Hope next week is better for you.
Roxy and Joonie.  I totally agree.  I hear comments all the time from certain doctors that will not take a referral if the person has no coverage or medicaid.  But there are doctors with huge hearts who will.  I went to a big hospital in Seattle a few years back.  I had great insurance.  Well, after the insurance settled, I made arrangements to pay 50 dollars a month for the balance.  I was sending it every month as agreed.  A few months later, they turned me into collection.  Seems as though, that 50 bucks was just for one department.  Each department wanted  50 dollars a month which would have added up to 200 a month.  I didn't have that kind of money but they threatened me with court action if I didn't put it on my credit card or finance it in some way which I did.  They informed me that I would not get any further care until the balance was paid in full which at the time I needed the botox.  I never went back as I talked my doctor here into doing the botox.  I was a person with good insurance...and I was treated like less than human just because I didn't understand their terms.   Roxy, I have a question, maybe you can help me out. How do you get your Lyrica covered? It is sooo  expensive, I cannot hardly believe it. I dread to even have to think about getting a refill every month.  Do they have some kind of program where you get help getting it paid for or something? I sure could use it if they do. Just curious and wondering if you would be willing to tell me how you get it paid for. Thought maybe I could get some help too.
thanks
Reader do you have to get your insurance to agree to pay for it every month or at you also? Or do you not have insurance? I never have a problem with my insurance.Reader - It is NOT covered. My PA gives me free samples every month. I do not know if it is doing any good. If my PA did not give me samples, I would be in big trouble. He also gives me ulcer medicine and medicine for my migraines. He gives Kelsey medicine for her incontinence.Roxy
why haven't you applied for prescription assistance from the various companies.  I can't believe you wouldn't qualify for assistance with the cost of at least one of the biologics
[QUOTE=buckeye]Roxy
why haven't you applied for prescription assistance from the various companies.  I can't believe you wouldn't qualify for assistance with the cost of at least one of the biologics
[/QUOTE]
 
Because then she wouldnt have an excuse to come here and talk about pissing the bed!
Hi Roxy
 
I wish things were going better for you.
Things should get better with Medicare.
 
Henrietta just don't click on the Roxy posts
I hope things get better for you Roxy.
 
Also TMI is sometimes very helpful.  Truthful if you went into the doc for a problem he would tell you just exactally what and why it happened.  (If he knew).  And if others do not share what happens then we don't learn.  Unless we experience it.  (or something like that).
 
Roxy have you been tested for MS??  If not I really think you should be.  Especially from what my doc has told me and the reading I have done on MS.
My GP has given me a month worth of FREE samples of Coreg CR, twice now. Because I could not afford the co-pay for the private insurance of ! NUTS!
 
If you go to a medicaid Dr, they most times will help you out with meds and treatment, especially if you are in really bad health.
 
I have actually had one medicaid Dr that questioned me having J/RA and she just did not seem like she was there to help me, so I moved on to this GP and I like him, but I like his nurse practicioner better. Sorry roxy I misunderstood about the lyrica.
Yes, I do have insurance but lyrica is not a "covered drug" on our plan so insurance does not pay very well on it. My part is .00 a month.
I will have to ask about samples
Well Roxy last winter I layed in bed so much because of my aching knees I couldn't walk some days.  When I got up my legs felt like spaghetti.  My husband bought me an exercise bike and a stair stepper.  Now they are much stronger but muscle atrophy will occur if you don't use them.  It doesn't take long.   Try to do some type of leg exercise every day if you can.  Even if it's just leg lifts in the bed.   I hope you feel better soon.I have applied for PPA. It is not easy as I have difficulty writing. That is how I am supposed to get my Enbrel. Just waiting on the beauracracy.

Henrietta, Do you realize how you are making your life difficult because of the anger you show. You must feel shame also as you come on under a new name to attack. I swear to you, you manifest your reality and if you are filled with anger, you will be the one to suffer.Hey Roxy!  
 
I do have to agree with Aleva, she has a good point. A lack of exercise will cause muscle atrophy and that will cause you to feel weak. I know you can't do a lot in the way of exercise but at least try to do so modified stretches, anything that will help increase muscle tone.
 
Also, since you can't write easily, try doing as much of it as you can with the computer. I know you can't do it all that way but I know that you can do at least some of it that way. Some of it can surely be done on line also.
 
As for Henrietta, just ignore them. They have a right to their opinion just like everyone else. We all have the right to give it time and attention or ignore it. The more attention you give Henrietta the more attention they will give you. Ignoring them takes away their fun.
 
Just a some suggestions and my thoughts, for what they are worth.
 
jamie
Aleva and reader - I go to the pool for water therapy once a week. It is absolutely wonderful. This is the only exercise it seems I can do but I would like to try to incorporate yoga. I did yoga for 15 years and really miss it. My aide quit yesterday after fight with Kelsey so right now I am without an aide. It is always scarey to get a new aide and trusting them but once I do, I hope to get help with laying down yoga poses. They are in my cell memory. I do some yoga in the pool and my body remembers how to do it

I wrote this after my FIRST time back at the pool for weeks. I was feeling very optimistic and I still am. I did not make it to pool today which would be once a week but am hoping to go again soon.roxy2008-08-13 17:42:05Hey roxy.. I'm sorry so much has built up on you and you are having a difficult time..
 
to Henrietta and anyone else who things BMs are TMI... Hell, Jamie Lee Curtis talks about it in commercials!! 
 
 

 

 
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