PMR and Profuse Sweating, Weakness | Arthritis Information

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Does anybody have this problem with their PMR? I'm just clammy and hot all the time it seems to me. Limited in what I can do. I've only seen one post someplace on this and wonder if it's common?I had it at the start, for about 12 months- dreadful - sweat just dripping off me. I was never very sure whether it was pmr or predisolone. It hasn't happened recently since I've been on the lower doses (or it could be the pmr is on its way out).

It was horrible, and very embarassing - you have my sympathy.

margaretThank you Margaret. I wondered the same but I'm only on 20mg at present.

Got to complain to a Dr. that will listen!! It makes me feel weak and I could ring my clothes out after awhile.

Have a good day. At least I have hope now that maybe it will go away after your post.dear kewanee,  the sweating and weakness is my biggest complaint as far as the pmr.
is the weakness and fatigue
i will start to feel very warm and get very weak, then i am dripping wet and have to go and lie down,  it seems to happen in spurts, sometimes are better than others, last week i was not too bad, then on saturday i felt it coming back, today i spent most of the day in bed because of the weakness.

i am so sorry you are not feeling well, this is a terrible disease we have, i have never suffered so much, i have friends that have worse conditions but they do not seem to be suffering like this,  more needs to be learned as it is not anything to take lightly.  i am seriously thinking of going to Mayo Clinic to see if they can help me there, has anyone on this forum gone to seek outside help for their pmr?  there is also Lehy Clinic in Boston.  I am at my wits end, i cry all the time and am in so much pain, i count the hours to take the next pain bill,  sorry i am rambling on but i need to vent

hope things get better for you                        Georgiana
Georgiana,
Boston seems to be the place to go but it's so hard to get around there.

I went to Mass. General area for a neuro. and said I just couldn't go back. I'm a country girl I guess.

You are suffering so much that you need to see someone in the know however. Must be someone that could help you if you are going to Boston area.

I appreciate your input as this has certainly been confusing. I have not seen this symptom or problem in the literature so far. Like you somedays are better than others.

Arthritis Today magazine has a good article on a new form of prednisone that won't have the side affects that may be introduced this year. Something called GILZ for all of you here that may be interested will build bones instead of depleting them. Keeping my eyes and ears open.

I hope you can find a way to get to better help. May today be a good day for you.
CoyoteOops signed Coyote and that is me, Kewanee. Confuse everybody why don't I?My GP prescribed Premarin (conjugated estrogens) 0.625mg per day.  It alleviated the sweating both day and night.  It does not all go away, but at least 75% effective for me.

These tablets are compatible with prednisolone, both the Chemist (Pharmacist) and GP (Doctor) checked before prescribing as some hormone replacement tablets are not compatible.

Hope this helps.


mrs UK
Kewanee

Can you tell me which edition of Arthritis Today magazine, I presume it is the one published in the USA.  I went onto their site and typed in GILZ in the search engine, but it came back not found.  Can you help please.   Kawanee

 
I have the sweats and feelings of weakness.  Fatigue and a hell of a time climbing the stairs.  I was evaluated by a Neurologist and Cardiiologist.  Nerve testing, stress test. Steroids can, and do cause muscle weakenss.
 
I'm in menopause, too, which accounts for some of the sweating.  Hotflashes.  My rheumatologist told me the Medrol makes the sweats worse.  I get a fluttering in my chest right before the redness and sweats start.  Those, I know. are hot flashes.
 
The sweats and weakness comes in waves.  I have to usually sit down and rest.  My rheumatologist prescripted a supplement called Fosteum.  It has helped greatly with the hot flashes.  I was having them about 10 - 12 times a day.  Dreadful and embarrassing if I was out.  Now, they happen about 4 times a day.  Worse in the nightime,  Guess that's why they call them night sweats.  THe supplement helps with the bone loss issues, also.
I had little faith when he suggested taking it since I have tried other supplements for other things.  But, this I have to say works.  I also take Cinnamon to help balance out the blood sugar.  I eat protein snacks in between meals, also.  Keeping blood sugar levels even helps somewhat, too.
 
They had suggested in the beginning taking a low dose of anti-depressent to help with the hot flashes.  I declined.  All though they probably could help with the bouncing emotions throught out the day as the steroid dose starts to wane in the afternoon.  I take a split dose, with the lower dose in the afternoon.
 
I take Ambien to sleep which helps a little.  Neurontin for Restless Leg Syndrome and a BP med.  My legs would drive me nuts with pain and burning.  Would keep me from sleeping.
My Internist is big on getting enough sleep and rest.  The steroids keep me awake, but do not give me extra energy. I have to take breaks in between doing things. 
 
It seems every month they have to add another pill to treat the side effects of the steroids. 
 
 
Donna
I had used soy isoflavones (50 mg) for hot flashes associated with menopause which helped tremendously (didn't tolerate estrogens).  I was eventually able to discontinue the soy and no longer had hot flashes, but in the last few months they have returned.  I've had PMR for 3 years.  I've restarted 50 mg soy isoflavones a few weeks ago, and the hot flashes are disappearing.  I just don't know if the hot flashes are postmenopausal or associated with the PMR.  In any case, the soy works for me, so I will continue.  I have a very sensitive stomach, and the soy doesn't cause any trouble.  Soy isoflavones are also supposed to help with osteoporosis, which I also have, so I think I will continue for quite some time.  The only thing about soy is that you are not supposed to take it the same time as calcium supplements as it interferes with absorption, so take it at different times of the day.  This is my 2 cents worth.  NancyDonna you may have a sensory neuropathy going on in your legs, which does not show up on EMG most of the time. Ask your Doc. about it. RLS is one thing but the pain and burning sounds like a PN. I found out Neurontin can help some but clonzepam or Klonopin does more in my opinion. It helps to sleep at night alot. Ambien seems to stop acting in about four hours with many people. Don't know about the CR one.i also have extreme pain in my legs and can not climb stairs i have to drag myself up by the railing, what is pn is it part of pmr or a separate condition?  what can be done about it and how do you find out if that is what you have?  thanks   georgiana Peripheral Neuropathy can occur in inflammatory illnesses. It may be seperate however. Tingling and pain or numb kind of feelings. Usually it has a burning pain if there is any.

Usually a Neuro. tells you if you have it after testing but there is a sensory that does not show up on an EMG.Only when I contracted PMR.  Night sweating was one of my symptoms.  Every night I had to change my nightgown it was so wet. When I went on prednisone (10 mgs) that stopped and has not returned in the 3 years I have had PMR.

I am now down to 3 mgs and hopefully can get off of this poison.  I'd rather work through the pain than have osteoporosis, cataracts, weight gain and the other side effects.

Since they know so little about PMR, I have had to spend so much time on the internet and reading researching about PMR, so I started a website for people like us...www.livingwithpmr.com to try to get as much info in one place as possible.   Visit the site and let me know if you think it is a good idea.
I am sure the sweats are due to the pred and not the PMRThanks for the web site.  Good information.  Geri
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