hi guys, I was doing better for awhile, plus took 2 vacations..
(first time in over 5 yrs, a vacation)
I was still fatigued, but managed to get lots of needed sleep, in w/ the visiting.. all i needed really .. the good 12 hrs, plus, lol
but.. i can't remember the lyric to the song "back again"..
I'm getting hit really hard /& hurt lately, nausueous, the RA flu, (was in denial , just thought flu, )..
and overwhelming fatigue..
The weight is becoming.. becoming??? LOL.. an even bigger problem, bc the only thing that my tummy feels good on , is just bread and butter.. (please no details.. just wobbly tummy is more then enough info :P lol)
and i can't sleep at night, even w/ all the tons of bipolar meds, i take.. but i'm exhausted anyway....
it was just sooo nice, to not feel sooo uggy allllll the freaking time ya know.. and coming back in
to my life. Slamming..
just sucks..
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Also, when i was on vacation, i was like "finally" having a "normal life", out and about doing things, a CAR.. either rented or friends/ sisters , ya know..
i did have some flares.. tho.. and it was easier to identify where they came from.. when you're staying w/ someone..
Like my knee one day, started aching really bad.. and she said she noticed, i had a hard time, getting up, from the ground..
and before she could help me, i was up..
but its soooooooooooooo frustrating.. and please don't mention the pool.. . so no exercise either, which does make it worse.. oh plus heat.. sorry just having a moan..
i hate this disease.. this creature who won't leave and is always lurking and skulking about, ya know?
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anyway, to get my next RItuxan Infusion, (overdue, last 2 were in Jan), I have to find an agency that will help pay the 3,000 co pay for the ridicioulsly high 15,000 for one infusion.
I think i'll find someone
and i hope the rest of you have been doing better or managing.. thanks for listening!
blessings and joy~
Hey Whispered- I was just thinking about you and wondering where you were! Welcome back! Sorry you are not feeling well.