RA, Fibro and Families | Arthritis Information
Okay folks, I am on my soap box. I have read many peoples struggle with this diease. We all know it is a hard road to pave. What makes it worse is the lack of family and friends support and understanding of our needs!
Family and friends seem to be #1: Scared #2: Denial #3: Dependance #4: Want there family member back: #5: Just plain selfess and sel-centered.
So where does a person go when all else fails? Forum groups like this one. Thank God we have something to lean on, someone that listens and someone that knows your struggles.
It truely worries me that some of the sweet people on this board are not only trying to deal with their RA and the mutitude of their other illness, but their family life and the comforts of home are depleting..falling apart for misunderstanding of our diesease.
I feel it is crucial that we as a forum, stick together and keep our rope tight, as we my be the only family and friends for many.
We need to pray for the people on here that are struggling through mairage problems, children problems and the disapearance of their friends. This is crucial to all. I love this group and we all try and help the best we can and we need to continue. Funny, sad, devistaded etc, I feel we will always be here for each other.
Really don't why I wrote this..just had to. Thanks for reading guys!
It is true a lot of us are reaching out for understanding, hope, and someone who understands. It is hard to go through everyday with people who supposedly love you, saying hurtful things and not supporting and trying to help you.
I feel blessed that for the most part my husband is sympathetic to what I am going through. I know that he doesn't realize entirely how I feel, but he tries. I love my dad, but I watched for years as he was less than understanding while my mom dealt with what was just recently diagnosed as fibro. But it certainly is nice to have some place like this to connect with others!
The emotional aspect of this disease is causing me more trouble then painful joints. I am glad to have a place like this to come to. Not only am I misunderstood at home but I also know better then to bring up my RA on a regular basis at home. It gets old. I wouldn't want to listen to someone's complaints/problems constantly either. I know I am coming here to lend support and I can choose to come or stay away. I feel comfortable that I can vent or whine if necessary when I come here without judgement.Emotional support is probably the one thing we would appreciate more than anything else and few of us get it from family and friends or if we do, it's only when we are in a crisis and frighten them.
Groups like this offer a safe place to hang out without being judged and a soft place to land when we need some virtual hugs.
Ann.
I don't think that anyone truly understands what it's like to live with an illness that just doesn't go away unless they too have one. I've been really feeling better lately and then I get those little painful reminders. I'd like to believe that I'll somehow get over this, my doctor thinks I will, and those around me say the same thing. But it's not honest. Better, yes, completely well...probably not (at least here on earth).
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