From people.com:
http://www.people.com/people/article/0,,20223292,00.html
" Finally, doctors were able to diagnose her daughter's ailment. "It turned out to be a form of JRA [Juvenile Rheumatoid Arthritis] and we treated her and it's in remission," says Garth. "It was tough, but she's better now."
I'm glad she is in remission, but I wish they would explain what "a form of JRA" is!!!!!
I had JRA and now my rheumatologist says that it is no longer called that. It is now called Juvenile Inflammatory Arthritis because it is quite different from regular RA. I don't understand the differences, but there are a number of different strains or types, I guess. Some are much more aggressive than others. Kelly from 90210. She's also on the new 90210 on the WB.
[QUOTE=gwendolyna]I had JRA and now my rheumatologist says that it is no longer called that. It is now called Juvenile Inflammatory Arthritis because it is quite different from regular RA. I don't understand the differences, but there are a number of different strains or types, I guess. Some are much more aggressive than others. [/QUOTE]
Also being called Juvenile Idiopathic Arthritis.
It struck me as odd for her to say "a form"; moms don't say that any more than adults would say they have "a form" of RA.
I'd like to know her med, too.
I can share the two real world conversations I've had here with moms of kids who have been dx'd with JRA. Both were identical - one big fat knee misdx'd by a few drs. before they got the JRA dx; steroid injection and NSAIDS for a year and both are in remission. Just like that.
One big fat knee. I know it is horrible and scary and painful when it is happening, but as far as I can tell, it's the best case scenario!
The Arthritis Foundation lists 3 subgroups or "forms" of JRA/JIA:
The type of arthritis is usually determined based on the symptoms your
child has had during the first 6 months of the illness. The 3 major
types of JRA are: pauciarticular which affects 4 or fewer joints;
polyarticular JRA which affects 5 or more joints; and systemic onset
JRA which affects at least one joint but causes inflammation of
internal organs as well.
http://www.arthritis.org/disease-center.php?disease_id=38
Perhaps this is what she's talking about?
I kinda doubt it, but who knows. I've never heard anyone put it that way, that's all I'm saying. I don't say 'my daughter has poly JRA', I just say JRA.
If she wanted to go into that, it seems like she'd say 'systemic, which also causes high fevers', etc.
We went through the same "6 months of hell" as Jennie did. It was the hardest thing EVER to get diagnosed. We were even told at one time that our daughter, who was 9 at the time, had a condition that she would die from. Talk about hell!!! She is in remission now as well. Has been a long road. She is 14 now and you would never know a thing was wrong with her. Still on 2 shots a week, but I will take that everyday over where we were! Vanderbilt Children's Hospital was a lifesaver. We found out in December that our 5 year old daughter has Poly JRA. We see a doctor at the University Of Virginia. She is currently taking Naprosyn twice a day, Methotrexate once a week and Prednisolone every other day. I was just wondering if someone could share other treatment plans?? Also, how do you know when the arthritis goes into remission?? Any info would be great! I am new to this message board.
Thanks,
AmyHi Amy,