Kinda OT | Arthritis Information

Share
 

Well.... HELLO EVERYONE!!!

 
I have not felt much like posting or even being on the internet the last week or so. You know my hands were acting up with swelling and being painful for a while now, and I just did not want to be upset about them not cooperating... so... I just stayed away from things that caused me to use my hands and fingers. I think I had one good day with my hands & fingers not swelled as bad and able to make a fist, but that was short lived. I think all this weather is doing it or I just need the Remicade.
 
Oh and hubby has been sick, and I have not felt well... just been feeling blah and oh so tired. Saturday-Sunday I actually slept 18hrs straight. I did not feel any better blah wise or even tired wise, just still felt like I needed to sleep more.
 
The Bystolic really makes me sleepy, and sleep good.
 
The drop in Nortriptyline has my shoulder blades burning a lot more again and my neck tenses up and gets very stiff. I even hear the "swish" sound in my neck when I turn my head or move it. I have had a lot of increased pain since dropping down to 50mg of Nortriptyline. Places & parts that were not bothering me as much when on 80mg, are now bothering me.
 
I am just waiting on my hands & fingers to behave.
 
My knees have been doing pretty darn good! They still swell, but not like they were. Which is a nice change, but I would really rather my knees swell bad, than my hands & fingers.
 
My mommy has decided she is going to live down here and with my oldest sister. They are going to build her a room on to my sisters house. My mom started crying when she told us she would live down here. She said she just did not know just how much we all wanted her to live close to us. They moved all of her stuff from her apartment to a storage shed Saturday. So... now there is no changing her mind
 
My mommy is having a rough time again. She says she just feels tired and not well. She has a spot where her incision is that will not heal. She said she thinks the hospital gave her "tired" blood.
 
I went Friday for my VQ Scan of my lungs. I was radioactive once again. Seems like I am going to be glowing ALL the time if they do not find out soon what is causing the rapid pulse. Man... that scan was an hour long! No one told me it was going to be that long or even that it was a nuclear medicine procedure. I did not feel well after that. That is when I felt like I needed sleep and lots of it. I had that same feeling when I had the nuclear bone scan, too.
 
Welp, I guess that is all. I do not know.... my mind just went blank. Hi Joonie, Glad to hear your mum is moving closer to where you live, just sorry to hear she isnt feeling so good, she need to keep an eye on that incision and go back if it doesnt heal, the last thing she needs now is for it to become infected. I hope you get over feeling so sleepy..Oh and something new... or maybe not....
 
I sweat even when I am cold. I mean I will have sweat pouring down me and my skin will be really cold. And the "Best" part of it all is...!!! I am doing NOTHING when I sweat like that. I am just sitting or laying and I will be sweating like no tomorrow! I even sweat in air conditioning! I do not feel any different when I sweat like that. It just bothers me because my clothes will be soaked and I can feel the sweat running down and I know I have done nothing to warrent me to sweat like that.
 
I do not even sweat like that when I am up and walking about!
 
Oh and what is even stranger.... my blood pressure is like 107/76 and my pulse is like 118. Yeah... I cannot tell when my pulse is rapid anymore, until it gets to about 130. Then I can feel it pulsating in my neck and my teeth.
 
I do not know it is all just getting stranger and weirder as the months go on LOL!
Oh Joonie-  I've been wondering where you were. Sorry to hear you are not feeling well and have all these new ailments! Hope you feel better soon and they correct themselves. BP sounds great- but that pulse!
 
Glad mom is moving near! You will enjoy that! Hope she feels better soon too!

Thanks Lisa! Hope you are doing well!

They took out her stitches, a week ago and was hoping the opened area would close by itself, but it has not. She goes back today for them to figure out how to get it to close up. My sister and home nurses have been tending to the incision 3-4 times a day cleaning it and replacing the gauze.
 
I am going back to sleep after my daughter gets on the bus! You would think with that much sleep.. that the bed & sleeping would be the last place I would want to be doing and in LOL!
My shoulder blades even burn when I type. I can stop typing and the burning will go away, until I start typing again. They burn when I use my arms. And sometimes if I do the "No Pain, No Gain" way of thinking... then they will not stop burning until I go lay down.
 
Thanks WannaBe. I hope you are doing well.
Oh and Thursday... the Remicade nurse from RD's office called to see how I was doing and to see if I was still on Remicade. *confused look* I thought that was a bit strange.
 
She called and left a message on the answering machine and I tried to call her Friday, but she went on vacation and would not be back for a week.
 
So... I made an appointment to see RD. I see her again on the 24th or 27th, I am not sure which... I did not write it down. I will call sometime next week to find out when it is exactly.
 
They told me to get my pulse straightened out before I can have more Remicade... so... that is what I have been doing. It just is slow going, but it is a bit sped up now.
 
Oh and I would have been crap out of luck again... because for the VQ Scan I had to put some kinda breathing hose in my mouth and breathe in some stuff. If my jaw was swelled I would not have been able to fit that between my teeth either. BUT LUCKILY my jaw was not as swelled and it fit between my teeth. I did happen to take an extra 5mg of prednisone the night before... so... that is what helped there.
I was wondering about you!  Glad that your mom will be close by, and I hope you can get back on remicade soon! 
Copyright ArthritisInsight.com