New Member | Arthritis Information

 

I've been watching this forum for awhile. I have ra. Have had it for almost 18 years. I have been on every med there is and either failed it or had a reaction to it. I work as a new construction plumber, well I stand as a plumber. My helper does all the work. Lucky for me, my boss's daughter has ra as well, so he understands what I'm going through. I'm a 38 y.o. male. If that matters. So I figured it was time for me to join.  Sorry you have to join the group.  Welcome though, you'll get some good adviceHi and welcome to the forum.  I lived in NPR back in the 60's for about a year.  Hope to see you posting.  LindyNPR? New Port Richey, Florida [QUOTE=r_a_reallysux]New Port Richey, Florida[/QUOTE]

Gotcha.  Never heard of it.  Welcome to the asylum! Welcome aboard!  This is where the elite meet and discuss everything from politics to sex.
And oh, RA too!
GG2008-09-08 16:23:51Welcome!  So great that your boss is understanding...Welcome! Sorry you are one of the people who seems not to respond to meds- that does really suck!Hi there   Welcome to the board!Welcome, sorry you have to be here but there is great advice and great people.  The best is the great people and their advice.

Hi and welcome from me too! I'm glad you decided to speak up. RA does suck!

Hi and welcome!

Well, remicade worked for about 4 months. They dripped it over a 2 hr period, I believe. Then all of a sudden I had a reaction to it. My whole body started burning. Started with my head and working to my feet. Face was real red. Chest pains and shortness of breath. After that reaction, it stopped working. I was getting 9 vials. Well actually after the reaction they dripped it for about 7 hours. No reaction but it stopped working. That was about 2 years ago. he just did it again last month. This time, the gave me 10mg out of the 600 for the 1st hour to see how I would do. As the hour ended I had the same reaction. So no more remicade. Had a reaction to enbrel, plaquenail,arava. Been on these and nothing Humira, kineret, orencia, um what else. So I don't know. Don't kow how much more I can take to be honest. Thanks for the warm welcome r_a_reallysux2008-09-08 20:30:17You should like me I had reactions to several meds and couldn't take them. I took humira for 8 months and it didn't work. Also plaquenil for 6 months, nothing. I am on enbrel and do ok for a couple days a week but when this prescription card runs out in Dec. I won't be able to afford it. Should be a law against what they can charge on these meds. I hope you are able to take pain meds at least they help me some. Some days, nothing helps. Does the humidity bother you  down in FL? Humidity here in IL does me bad! lorrie2008-11-21 22:25:59Hi RAR, and welcome to this forum, like you, I watched for a while and then joined, you will meet, and get great advice from all the guys here.Glad you are a man, we need all the help we can get on this board.

We are outnumbered at least 20 to 1 and I'm growing tired by the day.
Welcome. Welcome RAR, Hello!  Welcome!Welcome. I'm at the early stages of trying to find the right med combo. It must suck to not have much for results, and with all the reactions you've had. I hope you find some relief soon. Yay.............another guy on the board.  Sorry about you having to join, but welcome!  Look forward to your posts.Welcome, though I am sorry you have to be here. You'll love all the knowledgeable people here! Great tips and ideas to try. I hope your pain is tolerable since the meds don't seem to be working. Maybe it's just a matter of trying  to find the right combonation of meds? You know, a little of this and a little of that.... seems to work for some people. I currently am off my meds because it doesn't seem to be working. I think my rheumy wants to re-try embrel again this week - we'll see [QUOTE=CinDee]You should like me I had reactions to several meds and couldn't take them. I took humira for 8 months and it didn't work. Also plaquenil for 6 months, nothing. I am on enbrel and do ok for a couple days a week but when this prescription card runs out in Dec. I won't be able to afford it. Should be a law against what they can charge on these meds. I hope you are able to take pain meds at least they help me some. Some days, nothing helps. Does the humidity bother you  down in FL? Humidity here in IL does me bad! [/QUOTE] Hi RARS, have you ever researched antibiotic protocol therapy? A lot of people had had success with it when everything else failed (some even before that point!)

Sorry you have to be here but welcome to the board. I see you have already met the resident troll(s?).Gimpy-a-gogo2008-09-09 13:18:25resident troll(s)?????Owiemom, I was referring to a different thread---present company excepted!How long have you been on Minocycline and please tell me that the doc put you on probiotics?  Please.  If not, run out now to Whole Foods or the local vitamin store and get the biggest bang for your buck.  Get the most 'live encapsulations' and the most strains.  Hurry! I missed that you said you were on minocycline...sorry for being such a bonehead. I'm right in the middle of Illinois. 20 miles to Springfield and 20 miles from Decatur. I live among the corn and the cows in the boondocks. Not too far from civilization. [QUOTE=CinDee]I'm right in the middle of Illinois. 20 miles to Springfield and 20 miles from Decatur. I live among the corn and the cows in the boondocks. Not too far from civilization. [/QUOTE] [QUOTE=Pip!]How long have you been on Minocycline and please tell me that the doc put you on probiotics?  Please.  If not, run out now to Whole Foods or the local vitamin store and get the biggest bang for your buck.  Get the most 'live encapsulations' and the most strains.  Hurry! [/QUOTE] Welcome, r_a_, we are always glad to have new members! But I, too, am sorry you need to be here with us.