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  Hello to everyone!

I'm new here; I was dx'ed with fibro in June of this year.  I never realized the full context of the syndrome until I began to research it.  Hope to get acquainted with you all.

Ebony





 

Hi Ebony, Welcome, I have had fibro since 1992 if you have any questions i would love to be able to help you out with any that I can. Sorry about your fibro. It is not a very fun or pleasant thing to end up with. I have alot of pain with mine. Mostly from mid back down into my legs is the worse. I just try to get by day by day. Hope you have a gareat day!

Pamlamay, It is okay to whine. We all do it when we hurt and with Fibro you hurt alot. I too have fibro and deal with alot of pain. I am not sure why you say you have no support. It sounds to me if you have been there to support your family whom all are having problems why on earth would they not be there for you. You just need to maybe stop dealing with their problems and start dealing with your own. Go to the Doctor and have him help you with some meds to help you with the pain. Good Luck to you!

Thank you, RLS2, for the "welcome." 

I have noticed that fibro is really weather sensitive.  I work 12 hr shifts- 6pm to 6am.  Every night I work I have noticed that between 9pm - 2am, I hurt soooooo BAD.  The room that I work in is 62 degrees at all times.  I finally figured out why I hurt more from 9 to 2am....that's the time frame that the temperature drops during the night.  It's really weird how fibro works.  I hear many sufferers talk about the disrupted sleep and things like that; I can totaly relate.  I was only sleeping 1 1/2 hrs to 3  and waking up  My PCP had to give me a Rx just to make me rest.  

I have terrible thought processes too, Pamlamay...I have forgotten several things.  Sometimes, I even forget how to get home when I am on my way home from work on the interstate.  

Anywho, I'm glad to be able to discuss with others the effects and symptoms of Fibro.  One thing for sure, it never ceases to amaze me... I learn something new about it everyday.  I hope to get to know each of you.  Stay in touch.

Ebony

 

 







I don't think I have the problem of remembering where I am going and where I have been. I know I forget some of the things that normal people forget at the grocery store and just things like that. But not to the point of remembering where I live. My fibro affects my body pain and most of it is in my low back and my legs. I take sleep meds or I would not be able to sleep at night. And I too have spasms in my calf's. Lately if I straighten my leg or just stretch it out it will go in to a spasm and I have to get up and stand on it to get it to come out. It even spas's up into my hip. I think my hip is rolling out of socket and causing it to go down into the leg. It sure does hurt when it does that. I'm not able to do any distance walking or be up to long or I have horrific pain in my legs. So I use a W/C once in awhile. Since the doctor put me on prednisone I have been able to be out of the W/C. Which is good. But I still can't do alot.

Allow me to clarify...I don't forget where I live, however, I do forget which direction on the interstate I need to go from time to time.  Which definitely is NOT normal when I've been driving to and from my job 7 years.  I make a list to shop at the store because if I don't, I wil forget what I need.  I also forget how to spell words and I've always been a good speller.  I misplace things too.  But, then again...the same is with fibro as several other syndromes and diseases; they effect each person differently.  I have noticed that the fibro is more weather sensitive than the RA, at least, that's the case with me.
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