Pip wants proof that I have RHEUMATOID ARTHRITIS. I am going to take a few pictures and I will post a link for the whole world to see. I certainly am not posting the pictures for pity or sympathy. I have up to this time preferred not to show anyone my joints. I have it, I live it, crying don't change nothin'. NOTHING. I've got it and I accept it and the pains and meds that go with it. After I post my pictures of my RHEUMATOID ARTHRITIS damaged joints, then it's time for PIP to post a picture of her damaged toe. I know that Pip and her friends will try to convince everyone that I either doctored the pictures or that I took them off the internet. But, the pictures that I post are are my pictures. They won't get me a date but I'm not lookin' anyway. For those that are a little squeemish, don't look. Ha ha.
Lev don't feed into it. Ignore. Take care
I agree with Honey, don't get sucked into anything. With what we have we can do without succumbing to negativity, just let them do their own thing and ignore them.
I have had RA for 20 years but hardly have any joint damage because I was diagnosed in the early stages and put onot the right treatment straight away. When it comes to RA & other auto immune conditions it varies so much between individuals. Joint damage doesn't prove anything except some people are unlucky enough to be affected by it.
Then again I guess some people tend to like to wear it as a badge of their suffering and may think those without don't suffer as much, which is of course total rubbish. Each to their own but don't let them make you feel inferior or feel you need to prove anything to them, you don't.
Not sure I see the need to post your pictures. If you say you have RA, it should be more than enough.......................... You do what you want but I have a question , Is she even worth it?
out also. And I also like when you call someone out when they post half
truths or just right out lies. And I want to thank you for helping so many
people here on this board.
person with Ra , or anything for that matter.
Lev, I find you very entertaining and intelligent and that's enough for me. And I feel the same way about Pip.
You do not have to prove anything Lev, that's Zippo.
I agree. Don't post your pics. :)
LEV, YOU DON'T HAVE TO PROVE ANYTHING TO ANYONE ON THIS SITEI agree- no proof neededI don't know if any of you read Levs post but sounds like to me that he wants to post his pics. Let him. I would like to see his twisted joints. Maybe it will make us realize how much suffering he does. It may then, make us realize why he is so angry all the time. Chronic pain can cause immense amounts of anger and resentment. Sounds like you know first hand lorsterI'm not angry. Yeah, now that I took them, I guess they don't look that bad. I want to post them so that everyone can see why this is my forum. I want everyone to know that when I read your pain, I really know what you are saying. I want everyone to know that I know what they are talking about. Someone some time ago posted pictures of their hands and I felt so bad for them, maybe bubbagump. When someone talks about depression, or fatigue or the way we look or walk, I understand it and feel it, it's all good but I'm not angry. I never got angry about this disease, so many others have worse diseases than me. I'm not angry, this is all just normal day to day. My biggest problem is not getting lazy and it's hard to not. I want to post these for Lorster knowing that she and her friends will get a good feeling knowing that I am sick, so it's all good just to put a smile on her face as she and her friends look at each and every picture. ENJOY.
I don't see Lev as an angry person- only when he has been ganged up on and pushedWantobe.....I think Lev can hold his own. Yikes! Looks pretty painful to me! Is this permanent damage or something that comes and goes? [QUOTE=levlarry]. I want to post these for Lorster knowing that she and her friends will get a good feeling knowing that I am sick, so it's all good just to put a smile on her face as she and her friends look at each and every picture. ENJOY.
Uc=172ny0sz.rncpcyr&Uy=v28nv9&Upost_signin=Slideshow.jsp%3Fmode%3Dfromshare&Ux=0&UV=538888796634_72357283715&mode=fromshare&conn_speed=1[/URL][/QUOTE]
Lev, I saw the pics and your joints look painful and I'm sorry you suffer. I didn't laugh. I found nothing funny about it. We may not agree with each other on things, but I"m not a monster. I find nothing funny about human suffering. I see it everyday when I work and go home feeling horrible some days. Anyone who has worked the bedside can relate to this feeling. You can say anything about me that you want, but I do care about human suffering. I would not be in this profession otherwise. And for you to think that I would enjoy looking at this, is beyond my comprehension. You need to rethink that.
Sorry, but I don't know thats you. You've posted pics of damaged hands before - remember when you terrorized that newbie? I still do. You took a lot of flack for that one.
And you always do this crap - start getting jumped on when somebody stands up to you. Remember when you pulled off the Vietnam Vet routine when people got too outraged over one of your stunts? I think it was the insensitive remark about Asians that caused that one. The only way you stopped that outrage was to use the Vet card. And even I fell for it.
In person - man up for God's sake.
Looks like you have ulnar drift in both your hands and feet. I hope the Rituxan is working well at stopping anymore damage from occurring.
[QUOTE=Pip!]Lev -
I can't see them because it's telling me that the kodak site is down this morning. I'll look later but I don't eally need to. I know what this diseae can do to people and it's horrible.
The only thing this threaad shows though is that you have a lot more support here than even you may have thought.
Hey Lev, you have Knees like mine, only mine arent quite as hairy....site's up, Lovie...
I just checked it out..
Though I never felt the "need" for you to share, lev.. I mean.. why would someone want to hang on an RA board if they didnt' have the disease? there are lots more boards on the great net that are more fun...
I've never posted my joints..
but I'm believed...
I think taking a step back... and thinking about why we're ALL here is in order..
we're here to learn and support....
let's try some of that..
ok..all together now.. Kumbaya!!!
Site is down again....I'll look later. You really did not have to post Lev.
Sorry Lev, I'm having a little problem with this.
Here you said you hate liars and you hate thieves -
levlarry
Senior Member
|
Arriscolwell,
A little thief is just a big thief waiting to grow up. A little liar is just a big liar waiting to grow up. I hate liars, I hate hieves.
LEV | |
And here, in December 2007, you say you've had this disease for two years. Correct my math, but December 2008 would be 3 years, correct?
And in June of this year, you refer to your disease as 'creeping crippling'. Please excuse my correcting of your spelling.
Yet here, you're posting a picture of a person with advanced RA. Like years and years.
So, I'm a bit confused.
Do you or do you not have RA? Because with the advent of new meds like the Enbrel you've been on and the Rituxin - you shouldn't have this kind of damage in only 3 years. Even without meds and supposedly being severe - you shouldn't have this kind of damage in only 3 years.
Pip
Lev - are left handed? Because your left hand looks more affected than your right. Where as, my right hand has more visual affects than my left and I am right handed.
Lev,
Thank you for posting your pics. I can see that you have obvious joint damage and I liked the sign saying hi to all your AI friends. Although I don't always agree with you and you can be rentless, I like you and think you contribute to this board. You have a lot of knowledge.
Sorry it has come to this (and I never thought I would say this to you Lev).
Hang in there.
Phats
[QUOTE=pin cushion]Hey Lev, you have Knees like mine, only mine arent quite as hairy....Lev
Thanks for posting, even though there was no need. It makes me feel more confident in continuing my treatment as I don't want that damage to occur if I can help it.
A friend of a friend with RA, has joint damage in both wrists (can't bend them much at all) and that happened in the first year, so not sure why early joint damage is a puzzle to some people. Doesn't RA impact people differently, no matter what your treatment may be?
Cathy
Lev, I'm sorry for the obvious pain your RA must cause you. Those pictures speak volumes. I hate bullies. Maybe it's because I have a little scrawny, skinny but ever-so-sensitive son, but I HATE bullies. I believe that PIP has bullied lev here. She/he had the chance so stop this crap before it progressed but did not. I frankly don't give a rat's ass if the pictures posted are his or not, fact is, she tormented "someone" until it came to this.
We all are here because we are in pain, feel alone, are scared, or have no one else to talk to, WHY DETER SOMEONE??? If you don't like what is being posted then move on. Simple. Geez, I don't post often (and I"m sure most of you will say "great") but really, have an iota of compassion, if not for Lev than for everyone else in his place. Geez!!!Perhaps if someone had shown some compassion to those people he has attacked, there wouldn't be this thread.
We all have RA, or some similar condition, some of us quite severely, with joint damage and mobility issues that make the most basic activities difficult, so why add to someone's stress by verbally assaulting them? If one disagrees with what someone says, can't that be expressed in a civil, noncombative manner? We don't know what each of us faces everyday coping with RA, so why make life any more unpleasant by being cruel.
Sorry Joy, but people get atttacked on this board all the time, myself included. I've never threatened anyone because of it. Seems like irrational behavior to me.........
ps....Rituxan can take up to 6 months to work in some people, so you could certainly experience damage while you are waiting for it to work.
Lynn492008-09-18 16:29:10So Lev can go on and on and belittle and harrass and be a bigot and it seems to be ok....no one calls him on the carpet for his behavior, but the minute one person...has the guts to get to the bottom of it, and calls him on some of his crap, you all turn against her. Some of you have so much as called her crazy. You are all a supportive lot. I have been harrassed by Lev....and yeah, I can hold my own and I like to banter with Lev. I agree with Jas that Lev loves this attention. He does not deserve it. Anger has made him toxic and is affecting his health. I don't feel sorry for him.
Joie,
I'm sorry, but I agree with Lynn. Lev has harassed a lot of people, even me. BUT, what PIP is doing is way out of line. She lost all my respect when she threatened to track him down and take her husband as backup. Many of you know my history with Roxy. With that said, I would never hunt her down or anything even close to that. My feeling about Roxy end when I close my laptop, as simple as that.
PhatsYeowza on those knees. How much damage is in there do they think and are you going to have to replace them in the near future? I tell ya...that knee replacement was one of the best things I have ever done for myself. Had my left one done in March of '08. Went to an ortho that specializes in joint replacement for people with rheumatoid arthritis. The only long term problem I am now having is getting the knee to want to drive my manual transmission car. I tend to bruise terribly from trying to drive.
Age or length of time that you have had this disease has no bearing whatsoever. There are people that have had JRA and now have adult RA with minimal damage. People like me that have had it for 16 years and just in the past 2 years have I gotten a lot of damage in my joints. I was 39 years old when they replaced my boo boo knee. The ortho I went to did a hip in a 13 year old female with JRA. Poor baby. All that really matters is that we are empathetic with one another and do not judge one another. Judging is up to whatever deity you worship.
We should be thinking of the important things right now as the Autumn and Winter seasons are upon us. Like..FOOTBALL!!! Packers v. Cowboys this weekend.
Lorster, people call lev out on a regular basis and give it back to him every bit as feistily as he dishes out. Geez. I see some on the board making nasty reference to him when he isn't even part of the conversation. [QUOTE=Phatgirl2] Many of you know my history with Roxy. With that said, I would never hunt her down or anything even close to that.
NO Phats...you did one better....You ran her out of here!!
I don't think one single person alone can take responsability for that. That was a combined effort I'm afraid.
Lorster,
That is bullsh*t and you know it. Roxy comes and goes, that is the way she operates. She has been on and off these boards for years. Don't pull that sh*t with me.
She will have another life threatening crisis, come back and get everyone riled up again. But...if it makes you feel better to throw me under the bus, knock yourself out. At least I'm honest about what I do and own up to it.
PhatsHey Lev, I'm not into all the bullcrap that goes on between some on here, but I can say I'm sorry that you have RA and obviously suffer. Your pictures say it all. This disease sucks.
It's too bad people feel the need to sh*t on others. (No single person, a general statement, please don't attack me!)
LMAO - LMAO!
Good catch Lynn. As the Klingons would say - you are a worthy adversary. Which is a HUGE compliment coming from me.
Yes, if he had no real damage as of 2 years with RA - and he has damage now - then he could have only gotten that damage on the Enbrel and/or the Rituxin. And since he's only been on Rituxin for a bit...it's looking to me it's the Enbrel.
Which I didn't know. I mean, from posts here, the damage would be stopped or at least slowed.
I'm glad I kept going. This will be interesting information to give to people regarding AP. I mean, people need to know this when weighing meds. Awful how this disease ravages the body ON meds. And the pics! OMG - what 'proof'.
Thank God we take people at their word here. If Lev has this damage - and from year 2 to year 3 - BY HIS OWN POSTS - then I need to be MUCH more sympathetic to him in the future. I mean...there by the Grace of God, go I.
Why would somebody say they have RA when they don't? Why would somebody say they have more damage than they do? In this case, maybe it was because they were being jumped on for 1) slamming another persons meds choice or 2) saying some were worthy of being here and some weren't or 3) they needed to back up and the only way to get out of a huge mess was to use the sympathy card.
Too bad that the link had come down - I'll check to see if it's back up. Running a search on Google Images showed a hand that looked remarkably like the one posted. I couldn't verify because the link went down. I'm assuming others caught that.
Hugs -
Pip
Here's the thing Pip, Enbrel can stop or slow damage for some people, not everyone.
I used Enbrel for somewhere around 6 to 8 months, I can't remember exactly. It didn't control the inflammation well enough and I continued to have damage. Not every TNF works the same for everyone.
Now I just got back from my RD appointment and I had x-rays done of my hands and feet. I haven't had anymore damage while on Rituxan. The x-rays looked good, very good. No swelling in my hands or feet either...It has been an outstanding day so far
ps..thanks for the compliment........
Lynn492008-09-19 09:02:23That is awesome Lynn that you haven't had anymore damage! Hope it stays that way for you!
I haven't visited here in months and it only took me a few minutes to remember why...Maybe some of you should consider finding another past time. How about a little fresh air and physical activity to help put your emotions in check and redirect your focus to what is really important in your life.
Lynn - I'm gladened to hear you have no more damage. Good for you! As I've said before, if AP fails, your med is the med I'd use as I'm assuming it will be available not only as a last resort by then.
And I meant that compliment - you were the only one who seemed to know what I was doing and what he'd done.
Hugs,
Pip
Well,
Let me assure everyone that Pip did not coerce me or taunt me into posting pictures of my rheumatoid joints. I did want to post them. I want everyone to know that I am going through what they are going through. I know what they know. I have felt the despair and fear and depressions. I've felt the pains and the anxiety of an uncertain future. It's a wild mental roller coaster ride. Like I also said, I in no way wish for sympathy or pity. It is now just my way of life and I am living it, not six feet under so that's pretty good. I will try to clarify my ra time frames. I guess that I was diagnosed in October of 06 since I believe that I found this forum shortly after diagnoses. The time of this disease is somewhat a blur and I really found no reason to remember dates and times. When I was diagnosed, I was told by the rheumy that apparently I had RA for quite some time prior to diagnoses. He asked if I'd had other joint pain and I told him yes but just figured it was part of getting older and that I had been quite hard on my body and especially my joints. None the less, I want to assure you all that most of all my joint disfigurement was caused in about the first six months. Yep, I said, the first six months, prior to the starting of enbrel. Fortunately the enbrel stopped the damage and actually made my joints look better. There you go, six months. That's how fast aggressive rheumatoid arthritis can damage and erode. So now not only did I post the pics for the aforementioned reasons, I also posted them to educate people like Pip that not only does not have rheumatoid arthritis, but is so very ignorant of the disease and it's dreadful potentials that she claims to have the cure all for. Yes Pip, ra can destroy joints in a very short period time. That's why even when rheumies do prescribe antibiotics for "mild" ra they also prescribe another disease modifier like plaquinal. Of course as some roadbakers are quick to tell everyone, they could do without the plaquinal and just get by with AP, yeah. I wish that I had also posted pictures of my giant bakers cysts. They are sacs behind the knees that fill practically to the bursting pont and are wedged between the muscles and ligamints and are about the size of golf balls and cause sometimes more discomfort than the ra. I will try to post the picture of the cysts in the near future, ugh, they look gross and painful and they are. Let these pictures be a warning to all that yes, in a very short period of time, if not treated aggresssivly, ra can cause great irrepairable damage. And Pip, when I posted those pictures of deformed ra hands to that newbie, they were what she asked about. You are talking about CalGal, right? She was the one that posted the private message that Gimpy had sent her informing her of levlarry's "mental illnesses" in the guise of "helping her" and she thought that he and those that stood up for gimpy were very "ugly". Yous ran her off, not me. All I said was that I knew Gimpy was a "back door" person. I think that she even stood up for me. Anyway, hopefully this has been very educational to people like Pip that do not have our disease and have no real concept of what ra is and even more informative to those that do have it.
LEV
$
lorster2008-10-13 05:28:39I don't believe you have this damage Lev. As we all know, anything on the Internet can easily be 'faked' - somebody elses pictures easily inserted into a gallery. Other people heads put on other peoples bodies (Palin).
You were the one that posted how little damage you had. You are the one that posted about one knee, and then the other both with miniscule (your word) tears. Those knees have MUCH more damage than what you posted.
You are the one that posted you 'reversed' your damage on Enbrel. You were the one that posted that you wanted to take that further with Rituxin. And you were the one that posted you were back to 100%.
Even I said I feel like 100% but still have one toe damaged.
So, play the sympathy card all you want - the real reason you won't even meet in a police station is because 1) you are a chicken 2) you also backed yourself into a corner and 3) to meet in person would prove without a shadow of a doubt that the pictures you posted were designed to elicit sympathy and were not you.
My opinion.
Pip
Seek help, pip.
Pip, honey..... let this go
lev has the disease... not all things from the disease are even visible... it truly matters not one way or the other.
babs102008-10-13 03:54:21It matters a lot for those seeking to NOT have the damage he supposedly has. Think about this for a second.
He had no damage at all according to his own posts one year into this disease.
3 years into this disease he posts pictures of serious damage - enough so that even people who've had this decades say 'Wow!".
The only difference is he blew thru 3 of the biologics - Humira, Enbrel and is working on Rituxin.
Even Nikkilynn says you can still get damage on the biologics - it can slow the damage.
An APer would say this is what one would expect if you suppress your immune system. The buggers would keep multiplying and keep building behind the scenes until you have no more options and should learn to 'live with the pain.'
We on AI have a few people now at this point - people who have been told - sorry recalcitrant RA, nothing we can do, yada yada.
But APers wonder - did the meds do that to them?
Lev - if his damage is true and NOT a scare tactic - works as a scare tactic for us. Why not try and see if a low level ACR approved DMARD will stop the progression of the disease if you're still going to get damage anyway and end up with no other options in the end?
Pip
Seek help, pip.
Lets be real clear about what I said concerning Rituxan.........Because Rituxan can take up to 6 months to work, I said it was certainly possible that Lev could have had damage while on Rituxan.
I recently had my yearly set of x-rays and Rituxan hasn't just slowed the damage, it has stopped it in its tracks. No new damage...none. That is the first time in 8 years. I find that to be pretty impressive. The research also says that Rituxan works better each time you take it. That would be fantastic for me being as it has been 16 months between infusions.
Pip,
Are you suggesting that everyone progesses the same way? Are you suggesting that LevLarry has the same damage as someone else who has this disease? We are all different. Let him use whatever treatment he wants. Geez. You have lost your marbles again. Give it a rest.
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