Narrative; you have to click on the pdf:
http://content.healthaffairs.org/cgi/reprint/27/5/1416
And this is the author's blog:
http://diaryofadyingmom.blogspot.com/
Excellent article! This is a pet topic of mine....being "difficult" and "non-compliant", which I've been labeled as both.....quite proudly I might add!
Yes, excellent!! You don't see many patients like this. She was very fortunate to find physicians that she could work with and have a good long term relationship with. She was also well educated and that helped. I'm printing it out and taking it to work. thanks for this suzanne, great find.
PS What a horrible diagnosis.
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