Slow going this morning | Arthritis Information

Got up early because someone said well you don't get up that early. Well normally yes i do but i have been sick. Well they are a no show. Really i usually take my pred before i get out of bed. But i waited fifteen or twenty minutes. I don't know why. Anyway just the amount of sillyness and disfunction i had getting up this morning. I was glad i did not have to be anywhere i would have been late if that were the case.

Have had some major headaches the last few days. Took my Biaxin this morning. Just have to take one tonight and then tomorrow morning and i am done. So the headaches i think will be gone by tomorrow night.

I have been flaring a bit but it's sort of come and go. It is trying to respond to the meds. First right side then left. Except for the spine which is in the middle. LOL

I am really talking to myself here. Trying to convince myself i will be well soon.

New subject. People do not know how to be my friend. That is they make me mad.

Never in my life have i had people complain and whine so much about me being sick. Well Yes i have been on antibiotics for a month. So one would think i would be the one complaining. I will still have RA even when i get rid of the lung infection. Which is clearing up.

I had what i will call a break threw allergic reaction. I do not think i could have tollerated the Biaxin without the pred. I had a rash and an awful headache followed by bad breathing problems asthma. Then the rash and breathing trouble went away. The headache is still there but not quite as bad. I was so close to being done with them i just kept taking them.

I really think that people are going to freak out in a few days when they will treat me no doubt worse. Well i will not have a lung infection and they will expect me to well. I will still have RA and i will try to explain this to them. They apparantly do not get it.

(((((((((((((milly)))))))))))))))

you have a right to grumble.. if you're talking about the people in your life.. friends, family..

you're going to have to let them know this is a

CHRONIC illness.. LiFELONG. it doesn't leave and meds we take, only help for a bit..

but sigh, yeah it is hard for people to get it!! and frustrating for us, to have to keep explaning!!

After 4 yrs, I still have people ask causually oh hows your arthritis? arghhhhhhhhhh its not arthritis, its

RA!! lol and

1.) People can't treat you bad, unless you allow it..

so DON"T allow it... have you got the spoons theory?.. that explains a lot if you can do that w/ them...

also explain how it feels, when your knees/ wrists

(whatever your problem areas are) .. feels like that a hammer is being taken to..

That people go to the hospital w/ this.. that this

disease is attacking your own body!! That people Do die from this..

Tell them about the constant RA flu, and extreme fatigue.. even w/ all the meds and pain killers!

Tell them its disenterigrating and if they're still mean..

welll bye bye.. you don't need people like that in your life..

I've cut out a friend, about 95%.. bc of her attitude toward me.. she lives nearby and i rarely see her, or talk to her..

its enourmously frustrating, bc its mostly an invisble disease... people just can't seem to grasp it..

i have another "friend"..and she'll start moaning about her knee.. and i'm like umm you go do aerbics, have a job, never take naps, always on the go, etc etc..

you're not anywhere close to where I am.. bc I can't do any of those things..

( i know some of you guys work.. so please don't take that personally, kudos to those who can!

So.. change friends!!.. cut down on their time..

show them your swollen parts..

I wear big ass hand braces, w/ steel in them, when i shop and do things or am in a wheelchair.. and

also when no ones around, but in public, it helps..

they're just very ignorant .. so keep explaining.. and

come and vent here, find vent friends to email, lol..

and it might be time, for new friends.. new people..

Its a really hard illness for people to get.. sigh..

but..keep trying and Hugs!!

trust me, i know how you feel!!~

almost all of us here do!!

ps: I'm sorry you're having such a rough time w/ it..

and there is hope, but no need for the idiots to know that! not when you need some understanding and nuturing and hurting!

Whispered2008-09-25 08:55:15Well dad thinks he is having a heartattack and sister thinks she is having a baby. Off to the eroom with me. And sis has a bad cold or something. Guess i will complain later. Labor that takes awhile guess I will let you know how things turn out.Yeah, I know what you mean Milly. Except it is me that thinks I should be better already LOL! My mind is well, most times, but my body cannot keep up with my brain.

I just want to be doing better already. I just want to be able to do things I like to do, want to do and need to do. I do not want to lay around or sit around a ho-hum about things I would or need to do.

I hope you feel better soon, Milly.

O.k. I am home. Dad was fine i pretty much figured he would be. I think he was trying to get attention from my sister. He mentally out of it. By the time we got to the hospital he was discharged and walking out.

My sister was having contractions. They hooked her up to a monitor and ran some test. Gave her a shot. The contractions quit and they let us go home about four or five hours later. She gets a shot every Wednsday. Guess she needs more meds now. Good she got her steriod shots a week ago so the babies lungs should be developing.

We are used to this. She had several misscarrages. Then her first was born at 30 weeks. Under three pounds. The last two she had to take alot of meds but went full term with.

Well she is 29 weeks so we need to let the baby grow some more.

She had an eptopic pregnancy and had to get an ovary removed while she was pregnant a few months ago. So she has been getting the shots every week scince then. I was glad to hear she had gotten her steriod shots last week. I had been reminding her to ask for them.

They just moved i asked mom did the boys know how to take the bus home? She said yes they have been taking it home everyday and there mom has been picking them up at the bus stop. I asked Mom do you know where the bus stop is. She said your sister just told me.

Well i figure that is all under control. Then i said to my sister about the conversation i had with Mom about the boys and the school bus. Sis said oh no I told them I would pick them up at school today. No problem we called the school. Long day all is well. So far. I pray this shot works and the baby grows a little bigger before coming.

Glad things turned out ok with your dad and sister. I know exactly how you feel about "slow going"...at my last RD appt when he asked about fatigue I told I wake up in the morning looking forward to when I can lay down again!!
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