UCTD Anyone? | Arthritis Information

 

Anyone have any knowledge of undifferentiated connected tissue disorder? The more I read, the more I wonder if this will be my final diagnosis (that's if/when I get one) It seems that I exhibit classic signs of several disorders, but just not enough of any one to be diagnosed. I might even bring it up to RD when I go back in 2 weeks, depending on what the wrist MRI I am having next week shows. It might be bad, but part if me is really hoping for joint damage to show on the MRI. Not just to help the doc in diagnosing, but I guess I would feel vindicated that there was really something wrong and I had picture proof of it! Anyone else ever feel this way? Sure anyone else has felt this way. Hope you find some answers. I believe at one time they told Jessie88 that she had UCTD. Now her dx is Lupus and Sjorgren's. Sjorgren's can also make your joints hurt. Have you had your eyes checked to see how much miosture you have?

Carolina girl------Ditto here.  That was my Dx for 5 of the last 7 years but now have RA/Lupus/Srojens.  Basically I came to the conclusion that it means they have no idea what you have and are waiting for something solid to show itself.  I too couldnt wait for something positive to show up just so people would believe me, but even though I have a dx now and real swelling people still think I have the type of arthritis they have in their knee from an old sports injury! I am soo glad I found this message board and found that I am not really nuts.  ncpalinda2008-09-25 18:46:09My RD now is leaning towards fibro just bc he hasn't seen any evidence of joint damage or swelling. ( for some reason I seem to swell at night) He checked all the pressure points and it sure enough hurt when he touched me.  But I'm not convinced that's the only thing wrong. My ANA was positive this month for the first time in 3 yrs. As recent as january it was neg., this month goes up to 1:320, speckled pattern.(lupus specific test neg.) That helped me feel less crazy! I do have really bad dry mouth, I haven't mentioned this to my RD yet as I had radiation to the throat area when I was 12 (hodgkins disease) which basically destroyed my saliva glands. I actually wear full dentures because we couldn't keep the decay under control. Maybe I will mention it next time. Eyes do get dry more often than they used to. Guess I never realized how many little things could actually be symptoms of one big thing! I would definitely mention the dryness to the Dr.  I had major symptoms of srojens way before it ever showed up in any tests.  I have plugs in both eyes to hold the moisture in and have crowns on almost everyone of my teeth from the decay caused from dry mouth also.  The only thing I have noticed is that none of the RA meds seem to help the Srojens.  Your ANA should tell him something is going on and what you were saying about swelling during the night I had also.  I would wake up and my hands would be swollen, couldnt even open them the whole way. Would loosen up as morning went on.