Ugh my long message just got deleted. Have been on 15 mg (max dose) mobic & aciphex since Feb. Have been anemic the whole time, despite prescription iron. No symptoms of stomach bleeding though. RD was going to give me 2 more months to stay above 12 (kept going between 10 and 12) and then refer to gastro. But he didn't really think mobic to blame. But past few days I've had indigestion. Then 10 minutes into eating tomato soup tonight (because jaw still sore), I felt awful, had to lie down, then horrible burning pain in stomach for 15 minutes. So I guess that's an ulcer, huh? I guess I should skip Mobic until Thursday RD appt? Will not be pretty if I do. Any expierience? Thanks.
Maybe there is something you can try that is not so hard on your stomach. About your low iron. Is it from the RA? Have they tested you for other problems that can cause low iron?Katie. the other thing is was going to suggest is maybe the aciphex is not cutting it. Try some other ppi's such as nexium. The aciphex may not be the one for you.Ugh my long message just got deleted. Have been on 15 mg (max dose) mobic & aciphex since Feb. Have been anemic the whole time, despite prescription iron. No symptoms of stomach bleeding though. RD was going to give me 2 more months to stay above 12 (kept going between 10 and 12) and then refer to gastro. But he didn't really think mobic to blame. But past few days I've had indigestion. Then 10 minutes into eating tomato soup tonight (because jaw still sore), I felt awful, had to lie down, then horrible burning pain in stomach for 15 minutes. So I guess that's an ulcer, huh? I guess I should skip Mobic until Thursday RD appt? Will not be pretty if I do. Any expierience? Thanks.
[/QUOTE]RD doesn't know about the anemia. I wasn't anemic until February--which is when I stopped breastfeeding so I could start meds (so I got my period...could be part of it), started mobic (could be part) and mtx (could be...but my white blood/platelets are fine and they would go down before rbc if it were the mtx). RD thinks it may be unrelated to RA. I don't know why he doesn't think it's RA related anemia, I guess b/c the prescrip iron isn't helping, he thinks there may be internal bleeding. But there had been no evidence of that. He told me that if I were 60 he would have sent me to a GI person in a heartbeat, but hesitated with my age. It could also be fibroids? But now that I've had this symptom, I'm thinking ulcer. My rbc was 12. something 5 weeks ago, not sure about last week, but will find out on Thursday. I will get above 12, which is "normal", then one month later back down in 10's and 11's, then back to 12 something, etc.
Thanks JR! I haven't had a red bull in ages and had a big one this afternoon, so I was asking for it--but a few months ago I was having one every day (sometimes 2) with no problems. I can't imagine 2 months without nsaids!!!!!!!!!!!!!!!!!!!!!!!!!!Are you sure it isn't a gall baldder attack? I thought I was having severe indigestion/acid reflux a few months ago, turned out to be my gall bladder, had "100's" of stones. It almost felt like a heart attack, the pain even radiated around to my back. Just a thought...Thanks for mentioning that. I shouldn't assume. I've felt crummy all day but I injected MTX last night--I am usually okay though. I just felt bad, laid down, first I had pain in lower abdomen, left side, then on right side in my back, then the burning. I tried to get up and it was excruciating. Had my husband come and sit with me until it was gone, it took a while. I dunno. I am okay-ish now, but hungry and don't want to eat, and tired (despite ritalin and ridiculous 20 oz red bull--I don't know what could keep me awake!) will consider that...I tell you what, I was sooooooo happy to have that thing removed! It hurt so bad, anytime I ate something that would make it flare up (which was everything I loved to eat) and it would hurt like that for 4 hours or so and then just go away. I lost about 10 pounds in 2 weeks because I hardly ate anything for fear it would flare up. Once they got the sonogram results and saw how many stones I had they scheduled me for surgery in two days, I was thrilled! That was the 1st time I was actually excited to go "under the knife".Anemia is pretty common with RA:Alan
Wow just to keep you confused. I am not saying that you should not see a GI. You sound like you should. Burning pain in your back as well as the pain in lower left side could be gallbladder or a UTI. So i am sure they will. but ask them for a urine sample while you are at it.Alan thanks for posting that. I don't know why the RD isn't thinking of that. I think I need a second opinion about the anemia, he gets really freaked about it (he was only doing bloodwork b/c of mtx) and I don't understand why he doesn't see this more.
I have noticed that I have been needing to get up to pee at 3-4 am recently, like when I was pregnant (which i am not!!). Not an urge, but it seems like more volume. So I was sort of worried about my kidneys but I just had mtx bloodwork last week so we'll see...
[QUOTE=KatieG]Alan thanks for posting that. I don't know why the RD isn't thinking of that. I think I need a second opinion about the anemia, he gets really freaked about it (he was only doing bloodwork b/c of mtx) and I don't understand why he doesn't see this more.
I have noticed that I have been needing to get up to pee at 3-4 am recently, like when I was pregnant (which i am not!!). Not an urge, but it seems like more volume. So I was sort of worried about my kidneys but I just had mtx bloodwork last week so we'll see...
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