Hello, I'm a newbie here. Nice to meet you guys, but not under the Fibro circumstances.
I was wondering how many of you guys have had a muscle biospy and what the outcome was ?
I appreciate all input.
Izzie60 I have not had a muscle biopsy but my sister has she has a condition called mitachondrial myopathy desease. She has had 2 of them to be confirmed. There is no treatment for her condition and it is devastating to her. She really struggles everyday just to breath. Why are you having a muscle biopsy done? I am very interested to know your outcome and reason for it. My sister always tells me that she believes I have the same it just affects me differently. I have RA and was told this week that it is a possibilty of Fibro thats why I am lurking around in here. She seems to think that fibro is mitachondrial desease but just hasn't been looked into cause it is so rare. LauraThat sounds like what I need. That is I have many swollen muscles and tendons. What doctor do you see to have this done? What doctor dxed your sister? I have had fibro for years. But it is acting so much differently than it used to. I am not in so much pain because I am taking so much medicine. But I can tell the muscles if anything are getting worse not better. That is even the muscles in my head are sore. My right knee is awful as is back shoulder and neck. Just wondering how long your sister suffered before she was dxed?Izzie60 welcome to the forum let us know how your biopsy turns out.Milly, It took several several years for my sister to be diagnosed. They thought she had MS, Fibro and finally they did one test then did the biopsy. She goes to Emory Hospital in Atlanta Ga thats where a specialist is. Have you looked it up on line. It is scarey stuff and it can also be connected to RA and other Autoimmune deaseases. I know my sister wouldn't mind talking to you about her condition because she is crusading for better awareness. LauraI too had a muscle biopsy back in 1992 and was declared to have MITO (mitochrondrial myopathy). I too am very, very, very ill, and getting sicker all the time.
They are doing a LOT of genetics testing on me and will perhaps do ANOTHER muscle biopsy if those do not tell them anything.
MITO is so much like fibro it's not even funny.
Sorry to be so long answering you all, have been tooooooo ill to type...no muscles. Izzie60 I think my sister would love to be in contact with you maybe you'll can be a support for one another. If you are interested just let me know. Thanks Laura
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