Hello again, been missing! | Arthritis Information

 

HI guys, just a few lines to let you know why I haven't been online.  My son is still battling JIA/Ankylosing spondylitis, he is currently taking 400mg Brufen 3 x a day and penicillin daily for three months due to a high titre of streptococcus, he is still unwell and keeps getting intermittent fevers although they have slowed up.

As for me well winter knocked me around a bit, osteoarthritis throughout my spine and facet joint RA, now have been diagnosed with Ankylosing Spondylitis after a scan that showed sacroiliitis and damage in the pelvis and hip joints.  Feet showed fractures are still unhealed and my neuropathy Dr said I need surgery in neck but no-one will touch me with RA, so I am having some spinal nerve blocks done and I plan to start Rituximab in November.

I was on Lyrica and it really worked for nerve pain and numbness in hands and feet but I could not sustain the drug due to non coverage by the govt so have now switched to Tegretol, which is making me so drowsy even though I am on the lowest amount to begin with.

I hope you are all ok, I have been reading a lot of posts regularly but really had no energy to post, the fatigue is a killer.  My days have been breakfast, pain relief and back to bed until at least 1pm when the pain subsides a little, then I was walking up to half hour a day but my feet are now paying for it so thank God summer is coming I can swim soon.  Kind regards and I look forward to catching up with you all.  Love Janie.XXedited by me for typo's janiefx2008-10-13 01:59:45Aw, Janie, that sounds hard. I hope you get some relief soon.

Has the penicillin made your sons AS feel any better? Just wondering as I am suspicious that streptococcus might be where most of our troubles began.Hi Gimpy, yes there has definitely been an improvement in his pain, I hope this is a temporary arthritis!  Thanks Gimpy. bump - to let you know I am back - hee hee

Hi Janiefx,

Glad to see you back, Janie!  Sounds like you've got a lot going on.  Hope things get better for you!Nice to see you too, HikingGal!Janie, welcome back, am happy to see you posting.  I'm really sorry about the escalation and severity of the disease.  I take Lyrica and it's made a world of difference.  Did your doctor write a letter of necessity to the insurance company?  Never give up on insurance.  Hopefully, the antibio. will eventually help your son.  Sounds like he's doing better.  Take care and don't be a stranger.  Hi Hiking Gal.  LindyThanks Kelstev.  I have been busy lately as my husband and I went fly fishing in North carolina for a couple of weeks.  We are also getting a new puppy.  He is a mini schnauzer.  I wanted to post the picture of him taken by the breeder at 6 weeks old but I don't know how to do it.  Anyway, thanks for welcoming me back!  Hiking_galSounds like a fun time, HK.  I love schnauzers!  So cute and since they don't shed their fur, that's even better!
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