New to forum and wanting to whine | Arthritis Information

 

Hi I am new here to this forum (have been lurking for awhile now) But I finally just needed to vent.  I have been having really bad flares for about a month and a half now. And nothing seems to help.  It keeps going from one body part to another,  I cant tell if it is the fibro or the RA any more.  It seems like one feeds the other.  My pain management doc has given me percocets and also kadian. Of course neither have touched the pain.  I am on my fourth week of mtx. Luckily I dont have nausea do feel drained on Sunday.(I take it Sat nite)

Hi islandbaby I have had symptoms for about six years. I went to many doctors was first told  I had migratory tendonitis then they said it was my thyroid.  Then I finally had good insurance and went to a doctor while I was flaring in my shoulder (about 6 months ago) and he rushed me to my new rheumy and they did many test and the blood work should I had high arthritic levels.  I also take zanx and soma. They also had me on lyrica but I was gaining alot of weight and it was messing with my vision so we stopped that.  I am unsure of my mtx dose (bottle not with me) but I take 4 of those nasty pills every sat nite.Oh yeah when i first went to rheumy she gave me predisone which helped but she said i cant keep taking it. I don't know why your docs have you on all those wacky drugs (xanax, lyrica, percoset. I don't even know what soma is.). I think you should be on a short term dose of prednisone until the MTX starts working. If it doesn't work they might try plaquinel in combination with MTX. All very standard. If that doesn't work the bioligics could be next.

Sounds like you might have palindromic arthritis which is how I started out.the soma is a stronger muscle relaxer then flexeril I have been told. The zanx is for my nerves and the percocet and kadian is for the pain. Not sure what paindromic arthritis is Please tell me a little about itIB, First off you need to google RA and read everything you can about the disease and how it's treated.  Make a list of the meds that you see on the forum, a list of your complaints, and take to your RD.  You need to ask about increasing the MXT, sounds like your on 10 mg. of MXT and nothing else.  Ask about increasing the MXT and question your RD about starting a biologic if the increase in MXT doesn't help.  You need to find a combination of meds that will stop the damage from occuring.  Many people on the forum are taking Cymbalta for their fibro symptoms and it seems to help.  I also gained some weight and had some eye issues with Lyrica but after I was on it awhile - 6 months the side effects got much better.  It's been a great drug for my fibro and neuroapathy.  There's still a lot for you to do and try and you need to get moving before damage occurs.  I'm curious why you're going to a pain management doctor before your RD has prescribed other RA drugs.  When you find a combination of dmards and/or biologics that work then pain management will become less of a problem.  Take care, keep us posted.  Lindy I have googled quite a bit on RA just dont remember seeing paindromic arthritis, I also go to pain management for 3 bulging disc in my neck.  I had to wait taking the mtx and other stuff because I kept getting pheunmonia.  I had been on Lyrica for about 6months before the funky eye stuff started happening. Thats why I had to get off of it. It never bothered me until after about 6 months.  I had been taking cymbalta and had reaction to it then they put me on lyrica on 75mg dose then upped it to 150 3x aday. the predisone seemed to help but for some reason the doctor does not want me to take it anymore.  I have another appt with her on Oct 28 and will have more questions for her this. As far as the pain management doctor goes my rd will not presribe anything for the pain and the gp with rather me go to pain management for my pain meds.  I get severe muscle spams in my shoulders and upper arms that become so painfull and  dont go away for about a week that i was going to the er for help with the pain so thats when the gp sent me to the pain.   Ok, now it's all making more sense to me.  One thing that I've found that helps is water exercise.  Start gentle.  It's very soothing and helpful.  Have you been to physical therapy?  LindyGoogle palindromic arthritis. Make sure to include the"L".Just did thank you it does sound alot like what I am feeling.  From what I read you ussaully dont have a high ra factor but it does get to that point.  What joints or body parts do you seem to get the swelling or painoh and thank youHi Islandbaby - Another cool name, LOVE IT~ When I had Palindromic arthritis it literally seemed to affect just about every joint except my hips at some point. It was not symmetrical however. It might be my thumb on my left hand and my right knee. A week later it might me my jaw or the base of my neck. Eventually I did develop full blown RA. My doc at the time said it usually becomes RA or lupus.
Can Palindromic arthritis be symmetrical?Hi Island, Just wanted to say hi and welcome you. My ra goes all over. It started in my hands and feet then went to the bigger joints like my shoulders and hips. I mostly have more problems on my left than right side. IMO I think you need to get on a biologic to stop the damage from occuring. Ask your dr for a different pain medicine if yours is not doing the trick. Also, I find that if I take a hot bath at night it helps with the pain and stiffness. It also helps me to relax. I'm glad you joined us. Vent, whine, moan and groan anytime. That's what this forum is for. Take care!Thank you Cindee I was just having a real bad day yesterday. And just needed to vent to someone.  It actually helped to just put my feelings in writing.  My pain started about 8 years ago. It started in my right wrist and at first they diagnosed it as tendonitis.  Then after about a month it went to my left wrist and occasionally in my feet to the point I could not walk a couple of times.  Upon which time I went back to the doctors and they told me I had a form of tendonitis that would migrate to other joints. I personally thought it was kinda weird, googled it many times and could not find anything about it.   Then it seemed to go away for awhile before it would come back.  I had moved to florida so I did not go back to that doctor.  When I went to a new Dr in FL I told them what the other doctor said so they then did test for lyme and ect. Nothing showed up and  they would give me something for the pain and I would go on my merry way not thinking much of it.  Then about a year ago I started having the pain constantly in one joint/ muscle after another. Went to a new doctor that also apparently didnt know what they were doing.  I went with my entire hand swollen twice its size.  they kept insisting I must have hit it in my sleep and did lots of x rays they also took blood.  About a week later they called and said my thyrid #'s where not right and put me on synthroid.  Of course I researced that and did not see where my thyroid would cause the pain and swelling I was having.  So off to another "recommend doctor who also took a look at the other doctors test result and did new ones .  He said its not your thyroid your RA numbers are extremly high and I think you may have fibro.  And got me to a rheumy asap.  I have only seen her twice now. The first time she did lots of test and the second she started me on MTX.  I will be seeing again on the 28th of this month and I will definetly have a lot more questions then the second time I saw her and was in complete shock and denial.
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