Hi,

Please allow me to introduce myself. I'm new on this forum. I'm an author of a book on arthritis.

I'm preparing to write a new book also on arthritis, and I want to make sure I don't leave anything important out.

People on this forum, know better than anyone, what the real questions are, that really need to be answered. The questions that gnaw on you in the middle of the night. The questions your doctors never seems to have enough time to answer.

If you would be willing to share your single most burning question about arthritis with me, I'd be most grateful.

You can do that at the following web page:

http://www.lastingarthritisrelief.com/arthritisburningquestion.html

what have you written? what kinds of things do you write?

why do you have interest in RA?

uh oh.. I think I have your book

http://www.conqueringarthritis.com/

Her sig line says she wrote Conquering Arthritis. I googled her after I posted initially.... thanks.

BarbaraAllen,

I have a couple of questions:

Why do people trying to sell alternatives always use terms like my disease is very similar to rheumatoid arthritis as you claim? The number one cause of reactive arthritis is chlamidia, right? A bacterial arthritis is not like a rheumatoid arthritis, right?

Why do spammers always try to take advantage of the sick and disabled? Because they are looking for a miracle cure and a great percentage will actually pay for snakeoils in their search for a miracle cure?

Here is what the Mayo Clinic says abiut your reactive arthritis, what you call almost like rheumatoid arthritis:

Reactive arthritis

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Definition

Reactive arthritis (ReA) is an inflammatory condition that develops in response to an infection in another part of your body. Coming into contact with bacteria and developing an infection can trigger reactive arthritis.

Though inflammation of your joints (arthritis) is a defining feature of reactive arthritis, this condition can also be associated with inflammation in parts of your body including your eyes, skin and the tube that carries urine from your bladder (urethra).

For most people, signs and symptoms of reactive arthritis come and go, eventually disappearing within 12 months. Treatments for reactive arthritis involve therapies to manage your symptoms and to eliminate any underlying infection.

Reactive arthritis is among a group of disorders known as seronegative spondyloarthropathies that can cause inflammation in the joints of the spine, legs and arms and in other parts of the body.

Symptoms

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In 1986 on vacation I experienced food poisoning. That triggered 11 years of arthritis, including a few years where I had to use an electric cart to get around.

Because rheumatoid arthritis is very similar to the type of arthritis I had (reactive arthritis) I spent years in med school libraries researching what causes rheumatoid arthritis and what works to not just suppress its symptoms, but will actually cure it. Eventually I found what I needed to heal myself and I wrote a book about it (Conquering Arthritis). Ironically, and perhaps not surprizingly, this book works even better for people with rheumatoid arthritis than people with reactive arthritis although it seems to work for all types of arthritis, including osteoarthritis.

Barbara Allan

I am sorry that you think I am spamming and that you are willing to dismiss what I have to say based on what the Mayo Clinic has to say about reactive arthritis.

I realize that reactive arthritis and rheumatoid arthritis are not the same. What is the same is that they are both forms of autoimmune arthritis and they share they same type of T-cell malfunction.

I strted out learning everything I could about reactive arthritis. Unfortunately there are not many research studies on reactive arthritis because it is relatively rare. To my dismay, I soon exhausted the medical literature on it.

My next best hope was learning from what was know about what causes rheumatoid arthritis and what has been proven to effect a cure. Because rheumatoid arthritis is common, there were many more studies to learn from.

In the course of this I discovered my own cure. I also developed a system that works well for at least some people with rheumatoid arthritis.

Does my system work for everyone with rheumatoid arthritis? No. I you tried it, it might work no better for you than the snake oil you fear it is.

Does my system work very well for at least some people with rheumatoid arthritis? Yes. I know this from people who have been my coaching clients and from unsolicited letters.

Does a system have to be 100% sucessful,100% of the time to have value? I think not. Western medicine routine puts drugs on the market that work for less than 30% of the people they are mean for. Does this mean the 30% who can benefit should be denied that benefit?

If I have something that can benefit at least some people who are still in a similar situation to the one I used to be in, should I refuse to let them know, because someone might think I was a fraud? I think not.

I'm sorry you think I am here to prey on the sick and the disabled, because in my case, that isn't true.

Sincerely,

Barbara Allan

Barbara -

I haven't read your book (yet) but please ignore the Cut-and-Paste King - He's a moron. This board is unmoderated and he and his flunkies have taken it over. I am surprised at the amount of 'wrong' info on Mayo but he loves them because they are only 'traditional' meds.

Keep the faith - hang on - and if you stay here - ignore the flack and only respond to the 'polite' people. Lev was raised in a barn by wolves.

Hugs,

Pip

PS - I think all RA is ReA. JMHO

Every person who tries to sell cures always say they did a lot of research and exhausted medical literature.

They always say during the course of research they cured themselves.

They always say they want to help others and get unsolicided letters.

They state just enough of the facts --T cells--to act like they have real knowledge. They of course, can't say they cure everyone but imply they cure a certain percentage and what is the harm of trying it? AP use to get in trouble because they implied cured--they had to stop that.

Read what Larry wrote, Mayo Clinic knows more than a regular person who cured themselves. this is the kicker: For most people, signs and symptoms of reactive arthritis come and go, eventually disappearing within 12 months

I've had RA all my life.

Cure? You mean all the damage that's been done will magically be healed by your "discovery?" Well, now, that really is amazing. Perhaps you mean "halt the progression of...." I don't know, but the first doc that ever saw me told me to beware of people offering "cures." My question would be "What causes rheumatoid arthritis?"

The real question I would have is: is she here to share her experience? or is it a "you could be cured, for just .95, you can buy my book and give it a try...." Wouldn't that be the litmus test? Pip, you believe AP is the way to go but i am not aware of you selling a book on the matter. Or may be you did since I last talked to you? Heh... Anyway, I would welcome Barbara to share but if she were to start pimping her book, how could you not question her motives? Pip, you know I am very opened minded but I have been approached by others offering cures or more precisely something that "might offer hope of a cure"... Haven't you?

My bad, .95...Hey Jose - where you been?

I thought she was looking for research material and Lev went bonkers on her. I think she left because of that. I thought it was Jas who had her old book - maybe she can give us a synopsis.

Pip

PS - I'm not selling a book - yet! LOL [QUOTE=Pip!]Hey Jose - where you been? Dear Pip,

Thank you for your kindness and for reaching out to me on this forum.

Barbara Allan

You have correctly characterized what lay people (and experts and everyone else who has something of value to offer) does when they have something of value to offer to others.

The trick, of course, is sorting out who has something of value to offer from who is just whistling dixie.

You have a simple system for determining value; Mayo clinic type experts offer value. Everyone else is just whistling dixie.

I don't happen to agree, but you are certainly entitled to your decision making process.

By the way, my posting on this forum was a simple request for opinions, nothing more.

Barbara, don't get offended so easily. And don't worry about Lev he's harmless, that was just him saying hello and welcome... Also, don't be condescending. We aren't simple minded as you would suggest. We are a little... leary... every once in a while we see people come through and offer "possible cures" all you have to do is try their product at a nominal cost, of course... If all you want is too share and get some feedback, I for one am willing and there will be plenty of others here as well... You can post or PM me anytime... Barbara -

We do have a lot of people here who aren't using mainstream meds or are using 'alternatives'. Just hang and get to know us. Personally, except for one person here on AI, I've heard horror stories about Mayo. I'm not impressed. :-)

Jose -

I'm not so sure Lev is harmless.

Jas -

My bad, it was Babs who has her book and should post a synopsis. Same thing on that other thread, I thought it was you but it was Linncn.

Hugs,

Pip

Pip, he's like a nightmare. He only has power over you if you believe in him... I don't get caught up in his manner or offensiveness. If he has something worthwhile to say I take it in, if not, I ignore it...

Jose,

Thank you for your sage advice.

Barbara

I agree, Lev IS harmless... and I have the book but haven't read it yet

you see, when I get a DX, like RA... I buy, rent, borrow anything I can get my hands on and read til I can't anymore...

so... while I have it.. I can't synopsis it ...... sorry... right now, I'm reading Greenspan's book.. but perhaps next...

edited to emphasis "is" in first sentence

Here is Barbara Allen's thread

Just gonna give it a bump

Request from Arthritis Writer | Arthritis Information

Reactive arthritis

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