Poll: Biologicials | Arthritis Information
I just realized that I am nearing my 1 year anniversary of being on Remicade. I also noticed that out of that year, I may have had 6 months of actually being administered it. The other 6 months I was without being on it.
So... I was wondering... how many months out of a calendar year are you actually receiving your biological?
Not on any biologics, but Happy Anniversary
Have a good day!
I have been on Enbrel for about 2-1/2 years. Went off once for 2 weeks for a sinus infection.
So far have not had any issues and feel great.
I've been on Rituxan for almost 17 months. I've not had any problems and I feel wonderfulOn enbrel since March.... stopped three times for small infections.... all in the first two months.... i've been consistent since July.......
I feel good... not great.. but much much better.
Deleted out of respect for others.
AchingAudrey2008-11-06 21:05:18Well, Butter my Butt and call me a Biscuit!...........
Someone is a little testy this AM.
LOLOLOLOLOJust as I was about to sign off because of the obnoxiousness of it all, I saw your last post.
Still laughing! Made my morning.
I've been able to get my Orencia every month since I started it in April. Was even able to get my last dose moved up a week earlier to accommodate travel without having an infectious meltdown.I have been on Humira 6 month but too many sinus infections, then enbrel 4 weeks but was allergic, cant have remicade due to NHS policies here in the UK now...only allowed one biologic if it fails then no more...I was due to try Rutiximab but as im sero neg NHS wont let me....so only MTX until a miracle.....Good for you though Joonie. I hope its working
Shame on you and this forum!
AchingAudrey2008-11-30 11:57:28AA..it really has nothing to do with you and id rather you didnt answer to my threads or talk to me......Im choosy about who i wish to talk to .Joonie,
I've been on Enbrel for 10 months this week. I've only had to be off of it once for 2 weeks due to a respiratory infection.
Shame on you and this forum!
AchingAudrey2008-11-30 11:57:06i know that, you told me yesterday and the only reason i PM'd you was so the Colin Powell thread didnt get bumped up to the top again....Look to be honest I have nothing in common with you apart from RA . It is a public board that is why i chose to be civil to people on it which is becoming increasing dificult with you. The post where i left had nothing to do with you...it was addressed to those who i listed, it wasnt for sympathy and those who I listed know why i left and why im back....please go chat to your friends and i will chat with mine
Shame on you and this forum!
AchingAudrey2008-11-30 11:56:40I think AchingAudrey needs to change her name to AngryAudrey.
Anyways....
Thanks for the replies everyone!
I am happy to hear that no one has a similar situtation in not receiving their treatments as I have. I am always the odd one on here. I think most of the cause for my treatments being disruppted so much is because of that possible TIA I had beginning of the year. Yeah... still have not heard back about the results about the bubble test. So... I am guessing, since they will not discuss results over the phone, that I did not have one. They were to send a copy over to my RD & neurologist, & GP. I will follow up on it some time in November. Have to make appts, since I missed most of the ones I had this month. Just did not feel like dealing with doctors this month. It is so draining.
The Remicade does do me wonders! I do not think Remicade can fail me. It just does that good of a job. Humira never done this good and I was taking Humira once a week. As for Remicade I only have hopes it will improve my life to the point that I am "normal" all the time and not just for a month at a time.
[QUOTE=AchingAudrey][QUOTE=pin cushion]AA..it really has nothing to do with you and id rather you didnt answer to my threads or talk to me......Im choosy about who i wish to talk to .[/QUOTE]
Well...lets see. You posted your pathetic goodbye speech for sympathy in a PUBLIC forum which I am a member of so I would say it concerns everyone, since everyone could read it. Too bad, so sad. Don't bother PM'ing me anymore, you are blocked from doing so. [/QUOTE]
I dont' see anywhere that Pinnie gave you sh*t.. so why are YOU giving her some??? if you only do it in defense?????????????
Shame on you and this forum!
AchingAudrey2008-11-30 11:56:20Post my PM'S AA......I have nothing to hide......Anyway im off now, going to to enjoy halloween with my family.....
Have a lovely halloween everyone and if you have little ones i hope they have lots of fun trick or treating and getting all dressed up
I wrote a LLLOOONNNGG reply and it got lost, guess the internet gods didn't want it posted. Anyway, I've only delayed a Remicade infusion once, in 2 years, because I thought I was getting an infection. But what I was wondering from your post Joonie, was what you meant by "normal", because my normal is not what normal people would consider normal.
This came up the other night, when DH was reminscing(sp?) about his 3 week trip to Europe last Christmas with DD and how he wanted to go again and where did I want to go and he'd take me to Hawaii, or anywhere, just tell him. So I finally told him, this is it, this is what I can manage, this house, my 6 month job, my car, my bed. He said, yeah those airports can be pretty tough and I thought, "oh that is just the tip of the iceberg."
I'm really happy for you Joonie. I wish the biologics had been available when I first got this, not just to have avoided the damage that I'll be forever dealing with, but how RA affected my girls. I was fortunate not to have had any flares the whole time they were little, just a slow disengration of function in my hands and knees, but I have had some guilt over what they've missed because their mom wasn't healthy. I was so fortunate to have been a stay at home mom nearly the whole time, thanks to DH, and I wish that now that they're in college I could do some of the things he wants to do, like travel, but it is totally beyond my ability to cope.
Hi Deidre! Long time no see.
What I mean by "normal" is not the freakish way I am when I am swollen, inflammed, stiff, and all the "nice" things that come along with uncontrolled RA.
"Normal" to me is being able to do most things BY MYSELF without assistance from others or looking "normal" to where no one stares at me. Sure it might take me a while to get completely dressed and ready, but at least I am not needing assistance as compared to when the ole RA is on a rampage.
I hope you are doing well, Deidre. Oh and I completely understand about the "totally beyond my ability to cope." Maybe one day soon, something will change for the better in your health and you will be able to cope long enough to go for a travel with your hubby. I've been on enbrel for 15 months now, skipped it three times due to a sinus infection and the flu. I've been on enbrel going on 11 months. I had to go off a few weeks because of cysts. I was put on antibiotics. Started back up 2 wks ago and feel great again. I actually have days where I can shower and blow dry my hair, get dressed and go shopping. All without totally wearing myself out! Which is something for me! It used to be by the time I finished showering I was sweating and worn out from the exertion of it all.
I wish you all well on your bios.
take care
Been on HUmira for almost a year and never missed a dose.
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